Butler Family

Trey Butler

Metachromatic Leukodystrophy
(MLD)

Victor, NY

Born: 9/21/96
Went to Heaven: 3/12/16

Glass-Witgen Family

Averie Glass-Witgen

Pelizaeus-Merzbacher-like Disease
(PMLD)

Webberville, MI

Born: 10/26/08

Hoffman Family

Ruby Hoffman

Hypomyelination with Atrophy of Basal Ganglia and Cerebellum (H-ABC)

York, PA

Born: 12/19/14

Anguiano Family

Daniel Anguiano

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dallas, TX

Born: 12/6/82
Went to Heaven: 3/6/87

Ramsey-Payton Family

Michael Ramsey, Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Meridian, MS

Born: 4/25/06

Lewis Family

Cory Lewis

Metachromatic Leukodystrophy
(MLD)

Moores Hill, IN

Born: 9/12/96
Went to Heaven: 2/18/19

Bryant-Wilson Family

Arobella Bryant

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)

Elmira, NY

Born: 2/21/15
Went to Heaven: 3/19/16

McNamara-Williams Family

Autumn Williams

Globoid Cell Leukodystrophy
(Krabbe Disease)

Santa Rosa, CA

Born: 8/3/16
Went to Heaven: 12/8/17

LaVictoire Family

Lauren LaVictoire

H-ABC
(Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum)

Ontario, Canada

Born: 12/12/12
Went to Heaven: 11/3/16

Al-Faifi Family

Yazan Al-Faifi

Metachromatic Leukodystrophy
(MLD)

Saudi Arabia

Born: 9/18/11