Conn Family

Jordyn Conn

Alexander Disease

Jackson, MO

Born: 12/17/13

Schroeder Family

Ronald “Ronnie” Schroeder

Unspecified Leukodystrophy

Springfield, MA

Born: 9/1/56
Went to Heaven: 6/12/64

Johnson Family

Lucy Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaverton, Oregon

Born: 8/30/20
Went to Heaven: 10/21/22

Fisher Family

Brie Fisher

Aicardi-Goutieres Syndrome
(AGS)

Pittsburgh, PA

Born: 3/10/20

Hoffman Family

Liam Hoffman

Hypomyelinating Leukodystrophy type 3

London, Ohio

Born: 12/22/22

Lalu Family

Jaydev Lalu

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jetpur, India

Born: 11/29/22
Went to Heaven: 10/21/23

Myers Family

Amelia Myers

Metachromatic Leukodystrophy
(MLD)

Rockton, IL

Born: 5/29/13

Heaven: 1/24/26

Jones Family

Haydin Jones

Metachromatic Leukodystrophy
(MLD)

San Bernardino, CA

Born: 6/22/12
Went to Heaven: 10/4/20

Dirion Family

Riley Dirion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jenks, OK

Born: 2/11/08
Went to Heaven: 10/6/09

Dirion Family

Felicity Dirion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jenks, OK

Born: 10/31/05
Went to Heaven: 2/19/07