Posey Family

Corion Posey

Unspecified Leukodystrophy

Greenville, SC

Born: 1/20/05

Paul Family

Jeriah Paul

Vanishing White Matter Disease

Holderness, NH

Born: 12/28/2012

Haag Family

Ruby Haag

Alexander Disease

Harvard, MA

Born: 8/24/10

Goncalves Family

Valentina Guidi Goncalves

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marilia, Brazil

Coupe Family

Avery Coupe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Warwick, RI

Born: 10/29/18
Went to Heaven: 5/2/20

McKee Family

Ella Rose McKee

Vanishing White Matter Disease

Huntersville, NC

Born: 11/14/16

Woodard Family

Aden(AJ) Woodard

Metachromatic Leukodystrophy
(MLD)

Fishers, IN

Born: 10/10/16

Scheibe Family

Josiah Scheibe

Unspecified Leukodystrophy

Norristown, PA

Born: 10/27/18

Menges-LaClair Family

Oakley LaClair

Aicardi-Goutieres Syndrome
(AGS)

Wynantskill, NY

Born: 12/16/17

Phillips Family

Adeline Phillips

Aicardi-Goutieres Syndrome
(AGS)

Castle Creek, NY

Born: 4/7/16