Dubon Family

Vladimir Dubon

Unspecified Leukodystrophy

Comayagua, Honduras

Born: 05/09/20

Rennie Family

Raife Rennie

Metachromatic Leukodystrophy
(MLD)

Seymour, TN

Born: 08/30/03
Went to Heaven: 10/10/22

Magnúsdóttir Family

Aron Elí Örvarsson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Reykjavík, Iceland

Born: 11/06/18

Stewart Family

Eric Stewart

Cerebrotendinous Xanthomatosis (CTX)

Albany, OR

Born: 01/09/91

Orszula Family

Steven Orszula

Globoid Cell Leukodystrophy
(Krabbe Disease)

Oak Lawn, IL

Born: 12/01/59
Went to Heaven: 03/18/00

Jones Family

Tanner Jones

Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL)

Fleming Island, FL

Born: 01/15/20

Hurst Family

Bobby Hurst

Pelizaeus Merzbacher Disease (X-linked spastic paraplegia)

Middleburg Heights, OH

Born: 09/12/93
Went to Heaven: 04/18/16

Hurst Family

Brian Hurst

Pelizaeus Merzbacher Disease (X-linked spastic paraplegia)

Middleburg Heights, OH

Born: 01/07/91

Frost Family

Joseph Arthur Frost

Adrenoleukodystrophy
(ALD)

Poestenkill, NY

Born: 11/27/02
Went to Heaven: 03/07/14

Website: www.joyfromjoseph.com

Feldt Family

Dawson Feldt

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin, VA

Born: 07/16/19
Went to Heaven: 11/08/20