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Hunter
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Podcast
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Family Programs
Wall of Fame
Hunter’s Wish Gift
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Resource Library
Symposium – July 13th – 19th 2026
Family Stories
LCN Family Collection
LCN Family Collection – Family Challenge
LCN
Leukodystrophies
Leukodystrophy Types
ALD
Alexander Disease
Krabbe Disease
Metachromatic Leukodystrophy
Unspecified Leukodystrophy
Leukodystrophy Care Network (LCN)
LCN Organization
LCN Leadership
LCN Care Centers
LCN Clinical Care Coordinators
LCN Clinical Practice Guidelines
LCN Membership
Family Stories
LCN Videos
LCN Funding Support
Leukodystrophy Publications and Videos
Clinical Trials and New Treatments
Symposium – July 13th – 19th 2026
NBS
What is Newborn Screening?
NBS Federal Advisory Committee
Krabbe NBS
Krabbe NBS Council
Krabbe NBS Publications
ALD NBS
Supplemental NBS
Take Action
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Katelynn’s Butterfly Kisses
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Wall of Fame
Sterner Family
Waylan Sterner
EIF2B CACH
Orange, Texas
Born: 07/07/2020
Matos Family
Elizabeth Matos
Aicardi-Goutieres Syndrome
Staten Island, New York
Born: 5/16/2023
Payne Family
Semira Payne
MLD
McCalla, Alabama
Born: 10/25/2023
Lockett/Lloyd Family
Ellton Lloyd III
LBSL
Oakland, California
Born: 6/18/2004
Rozenbeck/Thornton Family
Ezra Rozenbeck
GMI Gangliosidosis
Rantoul, Illinois
Born: 1/24/23
Vega/Sloan Family
Malia Vega
MLD
Grayson, Kentucky
Born: 05/03/2022
Biltucci/Fitts Family
Alto Fitts
PMD
Rochester, NY
Born: 07/23/2025
The Collins Family
Jeremiah Collins
Peroxisomal Biogenesis Disorder – Zellweger
Laurinburg, NC
Born: 06/03/1998
The Collins Family
Elaysha Collins
Peroxisomal Biogenesis Disorder – Zellweger
Laurinburg, NC
Born: 07/04/1994
The Collins Family
Elizabeth Collins
Peroxisomal Biogenesis Disorder – Zellweger
Laurinburg, NC
Born: 09/30/2001
Went to Heaven: 05/14/2017
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