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Hunter
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Leukodystrophies
Leukodystrophy Types
ALD
Alexander Disease
Krabbe Disease
Metachromatic Leukodystrophy
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LCN Organization
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LCN Leadership
LCN Care Centers
LCN Clinical Care Coordinators
LCN Clinical Practice Guidelines
LCN Membership
Family Stories
LCN Videos
LCN Funding Support
Leukodystrophy Publications and Videos
Clinical Trials and New Treatments
Symposium
NBS
What is Newborn Screening?
NBS Federal Advisory Committee
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Krabbe NBS Council
Krabbe NBS Publications
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Take Action
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Katelynn’s Butterfly Kisses
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Please Donate
Donate Monthly
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Bears – Collectible, Limited Edition
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Wall of Fame
Walker Family
Jasmine Walker
Krabbe
Charlotte, NC
Born:12/22/23
Gargurevich Family
Isayas Gargurevich
MLD
Hollywood, Florida
Born: 9/14/2019
Moore Family
Regann Moore
Krabbe
Springfield, Missouri
Born 01/21/2018
Campbell Family
Colton Campbell
Metachromatic Leukodystrophy (MLD)
Dewey, Arizona
Born 08/05/2015
Heaven 10/29/2021
Brown Family
Penelope Brown
Krabbe
Raleigh, NC
Born: 03/12/2024
Schnars Family Child 2
Trevor Schnars
Krabbe
Erie,
PA
Born:07/30/2021
Schnars Family Child 1
Brendan Schnars
Krabbe
Erie,
PA
Born:07/30/2021
Schmiedel Family
Madaline Schmiedel
Unspecified Leukodystrophy
Pflugerville, Texas
Born: 08/04/2007
Sheppard Family
Remy Levine
Multiple sulfatase deficiency (MSD)
Buffalo, NY
07/29/2021
Richter Family
Donna Richter
Cerebrotendinous Xanthomatosis (CTX)
Tavares, Florida
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