Wall of Fame

Jones Family

Haydin Jones

Metachromatic Leukodystrophy
(MLD)

San Bernardino, CA

Born: 6/22/12
Went to Heaven: 10/4/20

Dirion Family

Riley Dirion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jenks, OK

Born: 2/11/08
Went to Heaven: 10/6/09

Dirion Family

Felicity Dirion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jenks, OK

Born: 10/31/05
Went to Heaven: 2/19/07

Smith Family

Jaxon Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Galesburg, IL

Born: 4/16/21

Brooks Family

Conner Hess

Adrenoleukodystrophy
(ALD)

Swain, NY

Born: 02/24/17

Brooks Family

Jayden Regatuso

Adrenoleukodystrophy
(ALD)

Swain, NY

Born: 07/07/09

Havlik Family

Reed Havlik

Vanishing White Matter Disease (VWMD)

Jesup, IA

Born: 12/03/12

 

 

Foreman Family

Nash Foreman

Vanishing White Matter Disease (VWMD)

Tuscola, IL

Born: 04/11/14

 

 

Williams Family

Elizabeth Williams

Globoid Cell Leukodystrophy
(Krabbe Disease)

Childress, TX

Born: 5/13/21
Went to Heaven: 5/20/22

Bell Family

Jadie Bell

Vanishing White Matter Disease (VWMD)

Nephi, UT

Born: 06/07/16