Wall of Fame

Fisher Family

Brie Fisher

Aicardi-Goutieres Syndrome
(AGS)

Pittsburgh, PA

Born: 3/10/20

Hoffman Family

Liam Hoffman

Hypomyelinating Leukodystrophy type 3

London, Ohio

Born: 12/22/22

Lalu Family

Jaydev Lalu

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jetpur, India

Born: 11/29/22

Myers Family

Amelia Myers

Metachromatic Leukodystrophy
(MLD)

Rockton, IL

Born: 5/29/13

Jones Family

Haydin Jones

Metachromatic Leukodystrophy
(MLD)

San Bernardino, CA

Born: 6/22/12
Went to Heaven: 10/4/20

Dirion Family

Riley Dirion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jenks, OK

Born: 2/11/08
Went to Heaven: 10/6/09

Dirion Family

Felicity Dirion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jenks, OK

Born: 10/31/05
Went to Heaven: 2/19/07

Smith Family

Jaxon Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Galesburg, IL

Born: 4/16/21

Brooks Family

Conner Hess

Adrenoleukodystrophy
(ALD)

Swain, NY

Born: 02/24/17

Brooks Family

Jayden Regatuso

Adrenoleukodystrophy
(ALD)

Swain, NY

Born: 07/07/09