Muhammad Family

Muhammad Sanan

Canavan Disease

Pakistan

Born: 12/20/18

Robberts Family

Roman Robberts

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dorsey, UK

Born: 7/25/20

Went to heaven: 4/16/21

Coleman Family

Trea Coleman Jr.

Pelizaeus Merzbacher Disease (X-linked spastic paraplegia)

(PMD)

Gadsen, Alabama

Born: 3/16/20

Sheffer Family

Ryder Sheffer

Adrenoleukodystrophy
(ALD)

Endicott, NY

Born: 08/13/20

Sheffer Family

Cruz Sheffer

Adrenoleukodystrophy
(ALD)

Endicott, NY

Born: 10/02/11

Finn Family

Conner Finn

Adrenoleukodystrophy
(ALD)

Saskatoon, Saskatchewan, Canada

Born: 03/29/16

Jones Family

Faith Ann Jones

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ontario, Canada

Born: 10/14/09

Jones Family

Alicia Leigh Jones

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ontario, Canada

Born: 08/30/04
Went to Heaven: 10/17/05

Van Houten Family

Ky’Zion Van Houten

Globoid Cell Leukodystrophy
(Krabbe Disease)

Willemstad, Curaçao

Born: 10/20/15

Whitman-Prince Family

Antonio Prince

Unspecified Leukodystrophy

Eagle Point, OR

Born: 05/20/08