Wall of Fame
Lalu Family
Jaydev Lalu
Globoid Cell Leukodystrophy
(Krabbe Disease)
Jetpur, India
Born: 11/29/22
Went to Heaven: 10/21/23
Myers Family
Amelia Myers
Metachromatic Leukodystrophy
(MLD)
Rockton, IL
Born: 5/29/13
Jones Family
Haydin Jones
Metachromatic Leukodystrophy
(MLD)
San Bernardino, CA
Born: 6/22/12
Went to Heaven: 10/4/20
Dirion Family
Riley Dirion
Globoid Cell Leukodystrophy
(Krabbe Disease)
Jenks, OK
Born: 2/11/08
Went to Heaven: 10/6/09
Dirion Family
Felicity Dirion
Globoid Cell Leukodystrophy
(Krabbe Disease)
Jenks, OK
Born: 10/31/05
Went to Heaven: 2/19/07
Smith Family
Jaxon Smith
Globoid Cell Leukodystrophy
(Krabbe Disease)
Galesburg, IL
Born: 4/16/21
Went to Heaven: 12/15/23
Brooks Family
Conner Hess
Adrenoleukodystrophy
(ALD)
Swain, NY
Born: 02/24/17
Brooks Family
Jayden Regatuso
Adrenoleukodystrophy
(ALD)
Swain, NY
Born: 07/07/09
Havlik Family
Reed Havlik
Vanishing White Matter Disease (VWMD)
Jesup, IA
Born: 12/03/12
Foreman Family
Nash Foreman
Vanishing White Matter Disease (VWMD)
Tuscola, IL
Born: 04/11/14