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Hunter
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Annual Reports & Financials
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Podcast
Podcast Family Stories
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Family Programs
Wall of Fame
Hunter’s Wish Gift
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Resource Library
Symposium – July 13th – 19th 2026
Family Stories
LCN Family Collection
LCN Family Collection – Family Challenge
LCN
Leukodystrophies
Leukodystrophy Types
ALD
Alexander Disease
Krabbe Disease
Metachromatic Leukodystrophy
Unspecified Leukodystrophy
Leukodystrophy Care Network (LCN)
LCN Organization
LCN Leadership
LCN Care Centers
LCN Clinical Care Coordinators
LCN Clinical Practice Guidelines
LCN Membership
Family Stories
LCN Videos
LCN Funding Support
Leukodystrophy Publications and Videos
Clinical Trials and New Treatments
Symposium – July 13th – 19th 2026
NBS
What is Newborn Screening?
NBS Federal Advisory Committee
Krabbe NBS
Krabbe NBS Council
Krabbe NBS Publications
ALD NBS
Supplemental NBS
Take Action
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Resources
Wall of Fame
Simmons/Moore Family
Bentley Moore
MLD
Spencer Tennessee
Born: 06/20/2023
Ormotsadze/Gurgenidze Family
Gabriel Gurgenidze
PMLD
Kutaisi, Georgia
Born: 01/22/2015
Powell/Jones Family
Kierston Powell
H-ABC
Rocky Mountains, North Carolina
Born: 11/20/2022
Carnahan Family
Christopher Carnahan
Krabbe
Marana, Arizona
Born: 1/12/2024
Grennan/Somers Family 1
Anna Somers
MLD
Long Beach, New York
Born: 9/22/2020
Grennan/Somers Family 2
Joseph Somers
MLD
Long Beach, New York
Born: 2/13/2024
Collins/Dockins Family
Mavryck Dockins
ALD
Mountain Home, Arkansas
Born: 4/9/2019
Marini Family 2
Lara Marini
Cockayne Syndrome and Trichothiodystrophy
Long Valley, New Jersey
Born: 10/1/2010
Marini Family 1
Lucas Marini
Cockayne Syndrome and Trichothiodystrophy
Long Valley, New Jersey
Born: 8/6/2008
Dyer Family
Ronin Dyer
Cockayne Syndrome
Plattsburgh, NY
Born: 4/21/2020
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