Wall of Fame
Emery Family
Dylan Emery
Globoid Cell Leukodystrophy
(Krabbe Disease)
Ninety Six, SC
Born: 11/05/17
Went to Heaven: 10/16/18
Menard Family
Elias Menard
Adrenoleukodystrophy
(ALD)
Jackson, ME
Born: 06/13/09
Went to Heaven: 04/09/19
Perez Family
Briar Rose Perez
Pelizaeus-Merzbacher-like Disease
(PMLD)
Charleston, SC
Born: 07/04/16
Grujicic Family
Nikola Grujicic
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newport News, VA
Born: 03/15/18
Rodriguez Family
Abdiel Joel Rodriguez
Globoid Cell Leukodystrophy
(Krabbe Disease)
Rochester, NY
Born: 08/13/18
Went to Heaven: 10/20/20
Butterfield Family
Taiten Butterfield
Globoid Cell Leukodystrophy
(Krabbe Disease)
Eagle Mountain, UT
Born: 12/17/19
Went to Heaven: 03/14/21
James Family
Samuel James
Metachromatic Leukodystrophy
(MLD)
Fayetteville, NC
Born: 4/18/20
James Family
Emmanuel James
Metachromatic Leukodystrophy
(MLD)
Fayetteville, NC
Born: 7/25/16
Went to Heaven: 7/1/22
Surrett Family
David Glen Chester Surrett
Globoid Cell Leukodystrophy
(Krabbe Disease)
Moncks Corner, SC
Born: 03/03/98
Went to Heaven: 11/11/98
Leon Family
Jason Leon
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cleveland, NY
Born: 02/12/20