Wall of Fame
Perez Family
Briar Rose Perez
Pelizaeus-Merzbacher-like Disease
(PMLD)
Charleston, SC
Born: 07/04/16
Grujicic Family
Nikola Grujicic
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newport News, VA
Born: 03/15/18
Went to Heaven: 6/16/24
Rodriguez Family
Abdiel Joel Rodriguez
Globoid Cell Leukodystrophy
(Krabbe Disease)
Rochester, NY
Born: 08/13/18
Went to Heaven: 10/20/20
Butterfield Family
Taiten Butterfield
Globoid Cell Leukodystrophy
(Krabbe Disease)
Eagle Mountain, UT
Born: 12/17/19
Went to Heaven: 03/14/21
James Family
Samuel James
Metachromatic Leukodystrophy
(MLD)
Fayetteville, NC
Born: 4/18/20
James Family
Emmanuel James
Metachromatic Leukodystrophy
(MLD)
Fayetteville, NC
Born: 7/25/16
Went to Heaven: 7/1/22
Surrett Family
David Glen Chester Surrett
Globoid Cell Leukodystrophy
(Krabbe Disease)
Moncks Corner, SC
Born: 03/03/98
Went to Heaven: 11/11/98
Leon Family
Jason Leon
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cleveland, NY
Born: 02/12/20
Jones Family
Cassidy Jones
Globoid Cell Leukodystrophy
(Krabbe Disease)
Maynard, MN
Born: 10/05/18
Went to Heaven: 01/28/20
Edwards Family
Ryder Marcus Edwards
Globoid Cell Leukodystrophy
(Krabbe Disease)
Adelaide, Australia
Born: 06/29/17
Went to Heaven: 08/14/19