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Wall of Fame

Welcome to the Hunter's Hope Krabbe and Other Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter's Hope since we started the Foundation in 1997.
This page is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to add your child, or update information for your child on the Wall of Fame, please contact Kathleen Scott.

Hunter Bear
"For I know the plans I have for you," declares the Lord.
"Plans to prosper you and not to harm you, plans to give you hope and a future."
~ Jeremiah 29:11


David Aaron Sroczyk

David Aaron

Globoid Cell Leukodystrophy (Krabbe Disease)
Durham, NC
Born: 12/2/97
Went to Heaven: 3/19/99

Katelynn Abner

Katelynn Abner

Metachromatic Leukodystrophy (MLD)
Winchester, CA
Born: 10/31/08

Auggie Ackerly

Auggie Ackerly

Globoid Cell Leukodystrophy (Krabbe Disease)
Bakersfield, CA
Born: 8/20/98
Went to Heaven: 3/28/99

Aiden Agee

Aiden Agee

Metachromatic Leukodystrophy (MLD)
Lewiston, ID
Born: 5/7/05
Went to Heaven: 6/17/11

Trevor Aldrian
Trevor Aldrian

Globoid Cell Leukodystrophy (Krabbe Disease)
Murrieta, CA
Born: 11/5/08

Trevor's CaringBridge Site

PeaceLoveTrevor Website
Laura Allan

Laura Allan

Metachromatic Leukodystrophy (MLD)
Chesterfield, UK
Born: 8/4/87

Karis Almy

Karis Almy

Globoid Cell Leukodystrophy (Krabbe Disease)
Jackson, MS
Born: 6/29/09

Karis's Website

Joaquin Altavilla

Joaquin Altavilla

Globoid Cell Leukodystrophy (Krabbe Disease)
Las Heras, Argentina
Born: 8/2/09

Fallon Akers

Fallon Akers

Globoid Cell Leukodystrophy (Krabbe Disease)
Fredericksburg, VA
Born: 3/18/13
Isaiah Amador

Isaiah Amador

Globoid Cell Leukodystrophy (Krabbe Disease)
Riverview, FL
Born: 11/27/11
Went to Heaven: 1/14/12

Vigoo Andersson

Viggo Andersson

Globoid Cell Leukodystrophy (Krabbe Disease)
Akarp, Sweden
Born: 3/6/10
Went to Heaven: 12/16/13
Ginevra Arnieri

Ginevra Arnieri

Globoid Cell Leukodystrophy (Krabbe Disease)
Alessandria, Italy
Born: 12/16/10

Breanna Arthurs

Breanna Arthurs

Globoid Cell Leukodystrophy (Krabbe Disease)
Woodstock, ON Canada
Born: 9/19/02
Went to Heaven: 1/18/05

Caysen Barnett

Caysen Barnett

Metachromatic Leukodystrophy (MLD)
Amarillo, TX
Born: 6/26/07
Went to Heaven: 7/16/12

Elijah Barron

Elijah Barron

Globoid Cell Leukodystrophy (Krabbe Disease)
Oswego, IL
Born: 11/17/99
Transplant

Alissa Barron

Alissa Barron

Globoid Cell Leukodystrophy (Krabbe Disease)
Oswego, IL
Born: 4/5/98

Aaron Bateman

Aaron Bateman

Globoid Cell Leukodystrophy (Krabbe Disease)
Cambridge, United Kingdom
Born: 9/20/03
Went to Heaven: 10/16/05

Warrick Bayford

Warrick Bayford

Globoid Cell Leukodystrophy (Krabbe Disease)
Hemsworth, United Kingdom
Born: 8/11/09
Went to Heaven: 8/12/10

Julia Beatty

Julia Beatty

Globoid Cell Leukodystrophy (Krabbe Disease)
Chelsea, MI
Born: 12/27/97
Went to Heaven: 7/23/05

Reese Behnken

Reese Behnken

Metachromatic Leukodystrophy (MLD)
Howell, NJ
Born: 6/14/04
Went to Heaven: 9/30/13

Brody Bensel

Brody Bensel

Globoid Cell Leukodystrophy (Krabbe Disease)
Pilot Rock, OR
Born: 2/20/08
Went to Heaven: 2/11/11

Christopher Benson

Christopher Benson

Alexander Disease
Austin, TX
Born: 12/20/04

Faith Bear Faith is being sure of what we hope for
and certain of what we do not see.
~ Hebrews 11:1
Eden Benson

Eden Benson

Globoid Cell Leukodystrophy (Krabbe Disease)
Biddeford, ME
Born: 11/28/01
Went to Heaven: 10/31/02

Riley Bentley

Riley Bentley

Canavan Disease
Rochester, NY
Born: 7/24/10

Hope for Riley

Neah Bison

Neah Bison

Globoid Cell Leukodystrophy (Krabbe Disease)
Hamburg, Germany
Born: 10/5/11

Hugo Bjarlestam

Hugo Bjarlestam

Globoid Cell Leukodystrophy (Krabbe Disease)
Stockholm, Sweden
Born: 10/21/12

Garrett Curtis Blanchard

Garrett Curtis Blanchard

Globoid Cell Leukodystrophy (Krabbe Disease)
San Jacinto, CA
Born: 2/11/11
Went to Heaven: 12/10/11

Garrett's Video

Elijah Bonney

Elijah Bonney

Globoid Cell Leukodystrophy (Krabbe Disease)
Barrington, RI

Olivia Borodychuk

Olivia Borodychuk

Alexander Disease
Dewitt, MI
Born: 10/10/08

Joshua Bourassa

Joshua Bourassa

Globoid Cell Leukodystrophy (Krabbe Disease)
New Milford, PA
Born: 7/13/04
Transplant

Nicholas Bourassa

Nicholas Bourassa

Globoid Cell Leukodystrophy (Krabbe Disease)
New Milford, PA
Born: 3/18/02
Went to Heaven: 2/1/03

Joeson Bramlett

Joeson Bramlett

Metachromatic Leukodystrophy (MLD)
Rossville, GA
Born: 8/2/05
Transplant

Eden Brooks

Eden Brooks

Metachromatic Leukodystrophy (MLD)
Fort Wirth, TX
Born: 12/21/08

Eden's CaringBridge Site

Ryan John Brueske

Ryan John Brueske

Globoid Cell Leukodystrophy (Krabbe Disease)
Granby, CO
Born: 4/20/89
Went to Heaven: 3/27/90

Aleksandra Bunte

Aleksandra Bunte

Globoid Cell Leukodystrophy (Krabbe Disease)
Lund, Sweden
Born: 6/12/01
Went to Heaven: 6/7/02

Madylen Burk

Madylen Burk

Globoid Cell Leukodystrophy (Krabbe Disease)
Bay City, MI
Born: 8/3/06
Went to Heaven: 9/2/07

Harlee Rae Buttrum

Harlee Rae Buttrum

Globoid Cell Leukodystrophy (Krabbe Disease)
Glenwood, AR
Born: 1/22/08
Went to Heaven: 2/9/09

Jade Cagle

Jade Cagle

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 11/10/00
Went to Heaven: 1/5/03

Michael Calaman

Michael Calaman

Globoid Cell Leukodystrophy (Krabbe Disease)
Amity, ME
Born: 9/30/00
Went to Heaven: 3/8/09

Michaela Calaman

Michaela Calaman

Globoid Cell Leukodystrophy (Krabbe Disease)
Amity, ME
Born: 12/6/01
Transplant

C.J. Cammarata

C.J. Cammarata

Globoid Cell Leukodystrophy (Krabbe Disease)
Holland, NY
Born: 7/6/95
Went to Heaven: 2/2/02

Chase Carlson

Chase Carlson

Globoid Cell Leukodystrophy (Krabbe Disease)
Fullerton, CA
Born: 5/22/03
Went to Heaven: 7/21/05

Anthony Caruso

Anthony Caruso

Globoid Cell Leukodystrophy (Krabbe Disease)
Glendale, NY
Born: 11/28/74
Went to Heaven: 8/27/76

Hayden Casavechia

Hayden Casavechia

Adenylosuccinate Lysas Deficiency
Benoit, MS
Born: 6/1/2011
Went to Heaven: 8/15/12

Hayden's Website

Love Bear Love always protects, always trusts,
always hopes, always perseveres.
~ 1 Corinthians 13:7
Mac Casey

Mac Casey

Globoid Cell Leukodystrophy (Krabbe Disease)
Dunedin, New Zealand
Born: 8/24/09
Went to Heaven: 10/31/10

Anaya Cassin  Potts

Anaya Cassin Potts

Globoid Cell Leukodystrophy (Krabbe Disease)
Nelson, BC, Canada
Born: 8/26/09
Went to Heaven: 11/13/11

Healing Anaya

Dylan Changle

Dylan Changle

Globoid Cell Leukodystrophy (Krabbe Disease)
New Kensington, PA
Born: 4/15/09
Went to Heaven: 12/22/09

Lucas Chappell

Lucas Chappell

Globoid Cell Leukodystrophy (Krabbe Disease)
Little Elm, TX
Born: 10/18/11

Andrew Christiansen

Andrew Christiansen

Globoid Cell Leukodystrophy (Krabbe Disease)
Dublin, CA
Born: 4/8/13
Kieran Chumbley

Kieran Chumbley

Globoid Cell Leukodystrophy (Krabbe Disease)
Harlow, United Kingdom
Born: 11/9/84
Went to Heaven: 4/11/01

Jessica Claassen

Jessica Claassen

Globoid Cell Leukodystrophy (Krabbe Disease)
Durban, South Africa
Born: 3/2/10

Aubrey Claflin

Aubrey Claflin

Globoid Cell Leukodystrophy (Krabbe Disease)
Streetsboro, OH
Born: 12/11/00
Went to Heaven: 12/15/02

Linda Jane Claverie

Linda Jane Claverie

Globoid Cell Leukodystrophy (Krabbe Disease)
Netherlands
Born: 3/4/84
Went to Heaven: 1/28/85

Devon Cole

Devon Cole

Adrenoleukodystrophy (ALD)
Chicago, IL
Born: 12/6/97

Jacob Cole

Jacob Cole

Adrenoleukodystrophy (ALD)
Chicago, IL
Born: 8/15/00

Gracie Cooley

Gracie Cooley

Globoid Cell Leukodystrophy (Krabbe Disease)
Marshall, WI
Born: 6/12/00
Went to Heaven: 9/20/01

Ashley Cooper

Ashley Cooper

Globoid Cell Leukodystrophy (Krabbe Disease)
Sun Prairie, WI
Born: 5/5/00
Went to Heaven: 11/24/01

Evan Cousineau

Evan Cousineau

Adrenoleukodystrophy (ALD)
San Clemente, CA
Born: 11/3/97
Went to Heaven: 11/2/07

Katelyn Craft

Katelyn Craft

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 7/4/05
Went to Heaven: 9/25/07

Katelyn's CaringBridge Site

Carmen Crilly

Carmen Crilly

Globoid Cell Leukodystrophy (Krabbe Disease)
Toronto, ON Canada
Born: 3/2/07
Went to Heaven: 1/21/08

Joshua Cross

Joshua Cross

Globoid Cell Leukodystrophy (Krabbe Disease)
Saint Louis, MO
Born: 11/12/92
Went to Heaven: 2/20/95

Laura Cross

Laura Cross

Globoid Cell Leukodystrophy (Krabbe Disease)
Saint Louis, MO
Born: 7/31/99
Transplant

Emily Cullen

Emily Cullen

Unspecified Leukodystrophy
Dixon, IL
Born: 2/16/03
Went to Heaven: 4/22/08

Abigail Cullen

Abigail Cullen

Unspecified Leukodystrophy
Dixon, IL
Born: 8/05/09
Went to Heaven: 3/1/13

Brady Cunningham

Brady Cunningham

Globoid Cell Leukodystrophy (Krabbe Disease)
Campbell, MO
Born: 4/16/08
Went to Heaven: 4/6/09

Brady's Family taking action...

Beautiful and Baby Bella You knit me together in my mother's womb
I praise you because I am fearfully and wonderfully made.
~ Psalm 139:13-14
Collin Cushman

Collin Cushman

Globoid Cell Leukodystrophy (Krabbe Disease)
Wisconsin Rapids, WI
Born: 12/19/10

John D'Amico

John D'Amico

Globoid Cell Leukodystrophy (Krabbe Disease)
Martinez, GA
Born: 10/25/99

Emma Daniels

Emma Daniels

Globoid Cell Leukodystrophy (Krabbe Disease)
Franklin Park, NJ
Born: 7/20/09
Went to Heaven: 3/24/12

Emma's Family taking action...

Addilyn Davis

Addilyn Davis

Globoid Cell Leukodystrophy (Krabbe Disease)
New Sharon, ME
Born: 8/23/11

Madelyn Davis

Madelyn "Maddie" Davis

Globoid Cell Leukodystrophy (Krabbe Disease)
Danville, VA
Born: 7/21/11
Went to Heaven: 2/2/13

Hannah Dement

Hannah Dement

Globoid Cell Leukodystrophy (Krabbe Disease)
Pocahontas, AR
Born: 8/18/07
Went to Heaven: 8/19/08

Sandrine Dion

Sandrine Dion

Globoid Cell Leukodystrophy (Krabbe Disease)
Laval, QC Canada
Born: 9/27/00
Transplant

Yannick Dion

Yannick Dion

Globoid Cell Leukodystrophy (Krabbe Disease)
Laval, QC Canada
Born: 10/4/90
Went to Heaven: 10/4/93

Jaylah Donaire-Bechtel

Jaylah Donaire-Bechtel

Globoid Cell Leukodystrophy (Krabbe Disease)
Harrisburg, PA
Born: 4/19/12

Ludmina Dotti

Ludmina Dotti

Globoid Cell Leukodystrophy (Krabbe Disease)
Santa Fe, Argentina
Born: 1/13/12
Went to Heaven: 1/2/14
Jonas Droessler

Jonas Droessler

Globoid Cell Leukodystrophy (Krabbe Disease)
Cuba City, WI
Born: 4/20/88
Went to Heaven: 9/29/90

Haley Duffer

Haley Duffer

Globoid Cell Leukodystrophy (Krabbe Disease)
Chase City, VA
Born: 11/26/07
Transplant

Robin DuPerron

Robin DuPerron

Globoid Cell Leukodystrophy (Krabbe Disease)
Lincoln, NE
Born: 5/10/98
Went to Heaven: 1/19/99

Ellane du Toit

Ellane du Toit

Globoid Cell Leukodystrophy (Krabbe Disease)
Karen Park, South Africa
Born: 12/23/09
Went to Heaven: 7/4/11

 

Marwa Elmouzayen

Marwa Elmouzayen

Globoid Cell Leukodystrophy (Krabbe Disease)
El Cerrito, CA
Born: 8/13/98
Went to Heaven: 3/15/05

Jeramie Eveland

Jeramie Eveland

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 9/27/97
Went to Heaven: 3/14/01

Jared Faria

Jared Faria

Globoid Cell Leukodystrophy (Krabbe Disease)
Taunton, MA
Born: 10/17/00
Transplant

Scarlett Fedorak

Scarlett Fedorak

Globoid Cell Leukodystrophy (Krabbe Disease)
West Vancouver, BC Canada
Born: 8/30/05
Transplant

Chloe Fedorak

Chloe Fedorak

Globoid Cell Leukodystrophy (Krabbe Disease)
West Vancouver, BC Canada
Born: 2/5/01
Went to Heaven: 12/2/02

Connor Forde

Connor Forde

Globoid Cell Leukodystrophy (Krabbe Disease)
Dubai
Born: 11/8/95
Went to Heaven: 2/9/07

Frankie Forgione

Frankie Forgione

Globoid Cell Leukodystrophy (Krabbe Disease)
Lancashire, United Kingdom
Born: 8/28/09
Went to Heaven: 1/1/11

Frankie's CaringBridge Site

Hunter Bear Trust in the Lord with ALL your heart, and lean not on your own understanding...
~ Proverbs 3:5
Mitchell Forslind

Mitchell Forslind

Globoid Cell Leukodystrophy (Krabbe Disease)
Farmington, NH
Born: 9/21/99
Went to Heaven: 1/18/03

Jason Forslind

Jason Forslind

Globoid Cell Leukodystrophy (Krabbe Disease)
Farmington, NH
Born: 11/9/03
Transplant

Kyle Forslind

Kyle Forslind

Globoid Cell Leukodystrophy (Krabbe Disease)
Farmington, NH
Born: 6/25/01
Transplant

Tadan Foss

Tadan Foss

Vanishing White Matter Disease (Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)
Belton, MO
Born: 12/29/06
Went to Heaven: 4/26/12

Anthony Foster

Anthony Foster

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 3/9/96
Went to Heaven: 9/16/01

Ava Francisco

Ava Francisco

Globoid Cell Leukodystrophy (Krabbe Disease)
Fountain, CO
Born: 11/24/01
Went to Heaven: 9/22/02

Dylan Freeman

Dylan Freeman

Alexander Disease
Salem, OH
Born: 11/20/96
Went to Heaven: 4/30/04

Haley Nicole Freeman

Haley Nicole Freeman

Globoid Cell Leukodystrophy (Krabbe Disease)
Fort Wayne, IN
Born: 12/20/96
Went to Heaven: 4/22/98

Nickolaus Frisch

Nickolaus Frisch

Zellweger Spectrum: Zellweger Syndrome
Troy, NY
Born: 7/5/07
Went to Heaven: 6/7/11

Dominic Froio

Dominic Froio

Globoid Cell Leukodystrophy (Krabbe Disease - Later Onset)
Baltimore, MD
Born: 7/15/80
Went to Heaven: 7/3/98

Leandra Frye

Leandra Frye

Globoid Cell Leukodystrophy (Krabbe Disease)
Brazil, IN
Born: 2/3/01
Went to Heaven: 12/28/03

Kinnari Gala

Kinnari Gala

Globoid Cell Leukodystrophy (Krabbe Disease)
Fremont, CA
Born: 10/21/97
Went to Heaven: 3/26/01

Zarely Galindo

Zarely Galindo

Globoid Cell Leukodystrophy (Krabbe Disease)
Whittier, CA
Born: 6/2/04
Went to Heaven: 2/26/07

Johnny Galvan

Johnny Galvan

Adrenoleukodystrophy (ALD)
Costa Mesa, CA
Born: 7/13/00

Trevor Garbe

Trevor Garbe

Globoid Cell Leukodystrophy (Krabbe Disease)
Newhall, CA
Born: 9/2/89
Went to Heaven: 7/15/12

Ailene Garcia

Ailene Garcia

Globoid Cell Leukodystrophy (Krabbe Disease)
La Puente, CA
Born: 11/2/03
Went to Heaven: 10/20/07

Victoria Garcia

Victoria Garcia

Globoid Cell Leukodystrophy (Krabbe Disease)
San Antonio, TX
Born: 7/2/03
Went to Heaven: 8/6/04

Adam Garcia

Adam Garcia

Globoid Cell Leukodystrophy (Krabbe Disease)
San Antonio, TX
Born: 12/22/10
Went to Heaven: 1/27/13

Hailey Gaston

Hailey Gaston

Unspecified Leukodystrophy
Boston, MA
Born: 5/12/08

Zoe Gavriilidis

Zoe Gavriilidis

Globoid Cell Leukodystrophy (Krabbe Disease)
Peoria, AZ
Born: 9/10/07
Went to Heaven: 1/26/09

Leonie Gelhart

Leonie Gelhart

Metachromatic Leukodystrophy (MLD)
Nortorf, Germany
Born: 11/3/09
Went to Heaven: 7/28/12

Hunter and Baby Bear And we know that in all things God works for the good
of those who love Him, who have been called according to His purpose.
~ Romans 8:28
Parker Gerlitz

Parker Gerlitz

Globoid Cell Leukodystrophy (Krabbe Disease)
Mesa, AZ
Born: 7/27/12
Went to Heaven: 12/11/13
Dalton Gibson

Dalton Gibson

Globoid Cell Leukodystrophy (Krabbe Disease)
Kilgore, TX
Born: 3/26/08
Went to Heaven: 2/25/09

Hannah_Ginion

Hannah Ginion

Globoid Cell Leukodystrophy (Krabbe Disease)
Levittown, PA
Born: 1/15/13

Jacob Given

Jacob Given

Metachromatic Leukodystrophy (MLD)
Elkton, MD
Born: 8/14/01

Laura Glaudesman

Laura Glaudemans

Metachromatic Leukodystrophy (MLD)
Idlewylde, MD
Born: 11/29/89
Transplant

Evalina Gonzalez

Evalina Gonzalez

Globoid Cell Leukodystrophy (Krabbe Disease)
Wildomar, CA
Born: 1/28/11
Went to Heaven: 1/29/14

Raymond Gonzalez

Raymond Gonzalez

Unspecified Leukodystrophy
El Paso, TX
Born: 11/22/05

Chloe Goss

Chloe Goss

Unspecified Leukodystrophy
Wauchula, FL

Born: 10/18/10

Henry Green

Henry Green

Metachromatic Leukodystrophy (MLD)
Raleigh, NC
Born: 6/21/09
Went to Heaven: 12/14/12

Riley Greene

Riley Greene

Metachromatic Leukodystrophy (MLD)
Chattanooga, TN
Born: 8/26/02
Transplant

Ashleigh Gwin

Ashleigh Gwin

Globoid Cell Leukodystrophy (Krabbe Disease)
Durham, NC
Born: 11/15/02
Went to Heaven: 11/29/07

Adam Haines

Adam Haines

Globoid Cell Leukodystrophy (Krabbe Disease)
Maple Grove, MN
Born: 2/6/93
Went to Heaven: 5/29/95

Erik Haines

Erik Haines

Globoid Cell Leukodystrophy (Krabbe Disease)
Maple Grove, MN
Born: 12/7/91
Transplant

Terry Hallock, III

Terry Hallock, III

Globoid Cell Leukodystrophy (Krabbe Disease)
Shirley, NY
Born: 9/25/01
Transplant

Daisy Hamid

Daisy Hamid

Globoid Cell Leukodystrophy (Krabbe Disease)
Lyme, United Kingdom
Born: 4/7/10
Went to Heaven: 2/5/11

Daisy's CaringBridge Site

Liam Hammonds
Liam Hammonds

Globoid Cell Leukodystrophy (Krabbe Disease)
Country Club Hills, IL
Born: 9/4/00
Went to Heaven: 6/19/01

Liam's Family taking action...

Liam's Foundation
Lekendric Harris

Lekendric Harris

Globoid Cell Leukodystrophy (Krabbe Disease)
Pembroke Township, IL
Born: 1/27/04
Went to Heaven: 6/13/08

Brad Barlow

Bradley Hartman

Adrenoleukodystrophy (ALD)
Lancaster, CA
Born: 11/30/95

Ryder Hauer

Ryder Hauer

Unspecified Leukodystrophy
Mesa, AZ
Born: 9/05/09
Went to Heaven: 8/22/12

Ryder's Journey

Elaina Hayslett

Elaina Hayslett

Aicardi-Goutieres Syndrome
Covington, VA
Born: 03/07/02
Went to Heaven: 06/24/11

Elaina's Smiles

HH Logo Green No Text How great is the love the Father has lavished on us,
that we should be called Children of God! And that is what we are!
~ 1 John 3:1a
Madison Heflin

Madison Heflin

Globoid Cell Leukodystrophy (Krabbe Disease)
Lexington, KY
Born: 7/16/01
Went to Heaven: 8/19/05

Kyle Heidrich

Kyle Heidrich

Globoid Cell Leukodystrophy (Krabbe Disease)
Strasburg, ND
Born: 6/19/08
Went to Heaven: 11/29/13

Kyle's CaringBridge Site

Emilio Hernandez

Emilio Hernandez

Globoid Cell Leukodystrophy (Krabbe Disease)
Sonora, Mexico
Born: 9/25/98
Went to Heaven: 12/10/09

Melanie Hernandez

Melanie Hernandez

Globoid Cell Leukodystrophy (Krabbe Disease)
Peekskill, NY
Born: 5/19/99
Went to Heaven: 2/26/01

Elly Hernandez

Elly Hernandez

Globoid Cell Leukodystrophy (Krabbe Disease)
Littlerock, AR
Born: 5/3/01
Passed Away: 9/11/03

Megan Hill

Megan Hill

Globoid Cell Leukodystrophy (Krabbe Disease)
Waterdown, ON Canada
Born: 12/16/86
Went to Heaven: 2/23/88

Hunter Hodges

Hunter Hodges

Alexander Disease
Ada, OK
Born: 4/17/02

Jameson Howard

Jameson Howard

Pelizaeus Merzbacher Disease (X linked spastic paraplegia)
Durham, NC
Born: 5/9/05
Transplant

Ella Hudson

Ella Hudson

Globoid Cell Leukodystrophy (Krabbe Disease)
Cleckheaton, United Kingdom
Born: 7/21/99
Went to Heaven: 6/19/00

Daniel Hughes

Daniel Hughes

Alexander Disease
Peach Tree Corners, GA
Born: 4/10/10

Kayla Irving

Kayla Irving

Globoid Cell Leukodystrophy (Krabbe Disease)
College Place, WA
Born: 4/21/98
Went to Heaven: 5/14/03

Daryn Jackson

Daryn Jackson

Globoid Cell Leukodystrophy (Krabbe Disease)
Clarkston, MI
Born: 7/17/01
Went to Heaven: 8/22/04

Rachel Jarrell

Rachel Jarrell

Globoid Cell Leukodystrophy (Krabbe Disease)
Taylorsville, NC
Born: 2/8/93
Went to Heaven: 12/16/96

Matthew Jarrell

Mathew Jarrell

Globoid Cell Leukodystrophy (Krabbe Disease)
Taylorsville, NC
Born: 1/17/96
Transplant

Joseph Jarrell

Joseph Jarrell

Globoid Cell Leukodystrophy (Krabbe Disease)
Taylorsville, NC
Born: 10/28/98
Transplant

Hasan Jawaid

Hasan Jawaid

Globoid Cell Leukodystrophy (Krabbe Disease)
Melrose, MA
Born: 9/26/12

Taylor Jeffries

Taylor Jeffries

Globoid Cell Leukodystrophy (Krabbe Disease)
Newport News, VA
Born: 7/25/00

Gabriel Jimenez Vasquez

Gabriel Jimenez Vasquez

Globoid Cell Leukodystrophy (Krabbe Disease)
Monterrey Nuevo Leon, Mexico
Born: 3/30/10
Went to Heaven: 7/21/13

Olivia Johnson

Olivia Johnson

Globoid Cell Leukodystrophy (Krabbe Disease)
San Diego, CA
Born: 5/29/04
Went to Heaven: 10/8/09

Trinity Johnson

Trinity Johnson

Alexander Disease
Medford, OR
Born: 2/28/01

Tears Bear Those who sow in Tears
will reap with songs of Joy.
~ Psalm 126:5
Trevor Lee Joiner

Trevor Lee Joiner

Metachromatic Leukodystrophy (MLD)
Lubbock, TX
Born: 7/27/96
Went to Heaven: 10/4/04

Trevor's CaringBridge Site

Ross Joiner

Ross David Joiner

Metachromatic Leukodystrophy (MLD)
Lubbock, TX
Born: 9/20/01
Went to Heaven: 2/28/04

Ross's CaringBridge Site

Hayden Jones

Hayden Jones

Globoid Cell Leukodystrophy (Krabbe Disease)
Clermont, FL
Born: 1/10/06
Went to Heaven: 12/6/08

Jacek Kadlubowski

Jacek Kadlubowski

Globoid Cell Leukodystrophy (Krabbe Disease)
Gdansk, Poland
Born: 4/18/09

Kayalvizhi Karivalavan

Kayalvizhi Karivalavan

Globoid Cell Leukodystrophy (Krabbe Disease)
Ypsilanti, MI
Born: 12/5/06
Went to Heaven: 4/21/08

Alexandria Keene

Alexandria Keene

Globoid Cell Leukodystrophy (Krabbe Disease)
Columbus, MS
Born: 10/14/91
Went to Heaven: 3/5/95

Hunter Kelly

Hunter Kelly

Globoid Cell Leukodystrophy (Krabbe Disease)
Orchard Park, NY
Born: 2/14/97
Went to Heaven: 8/5/05

Meet Hunter

Olivia Kemist

Olivia Kemist

Globoid Cell Leukodystrophy (Krabbe Disease)
Redwood City, CA
Born: 3/4/03
Went to Heaven: 12/4/05

Madison Klafehn

Madison Klafehn

Globoid Cell Leukodystrophy (Krabbe Disease)
Denver, CO
Born: 4/19/06
Went to Heaven: 12/29/12

Spencer Klein

Spencer Klein

Metachromatic Leukodystrophy (MLD)
St. Louis, MO
Born: 1/9/87
Went to Heaven: 1/21/02

Travis Klein

Travis Klein

Metachromatic Leukodystrophy (MLD)
St. Louis, MO
Born: 9/23/84
Went to Heaven: 12/19/02

Phoebe Knibbs

Phoebe Knibbs

Globoid Cell Leukodystrophy (Krabbe Disease)
Suffolk, United Kingdom
Born: 5/29/11
Went to Heaven: 2/16/12

Jodie Koester

Jodie Koester

Globoid Cell Leukodystrophy (Krabbe Disease)
Waterman, IL
Born: 4/18/76
Went to Heaven: 3/27/80

Nicole Caitlin Kogut

Nicole Caitlin Kogut

Globoid Cell Leukodystrophy (Krabbe Disease)
Elba, NY
Born: 6/25/94
Went to Heaven: 8/16/95

Alyssa Kristoff

Alyssa Kristoff

Globoid Cell Leukodystrophy (Krabbe Disease)
Colchester, CT
Born: 7/20/04
Went to Heaven: 11/25/10

Ryan Kristoff

Ryan Kristoff

Globoid Cell Leukodystrophy (Krabbe Disease)
Colchester, CT
Born: 3/7/01
Transplant

Lexie Kruger

Lexie Kruger

Globoid Cell Leukodystrophy (Krabbe Disease)
Cape Town, South Africa
Born: 6/9/13
Went to Heaven: 3/20/14

Lexie's Blogspot

Steven Adam Krupa

Steven Adam Krupa

Globoid Cell Leukodystrophy (Krabbe Disease)
Sarasota, FL
Born: 9/30/94

Samantha Marie Lairson

Samantha Marie Lairson

Globoid Cell Leukodystrophy (Krabbe Disease)
Springboro, OH
Born: 8/3/95
Went to Heaven: 7/16/96

Madison Layton

Madison Layton

Globoid Cell Leukodystrophy (Krabbe Disease)
Jackson Center, OH
Born: 7/11/12

Trevor Leeker

Trevor Leeker

Globoid Cell Leukodystrophy (Krabbe Disease)
Wellsville, KS
Born: 5/14/99
Went to Heaven: 2/17/01

HH Logo Green No Text For with you is the Fountain of Life;
in your light we see light.
~ Psalm 36:9
Jack Leonard

Jack Leonard

Pelizaeus Merzbacher Disease (X-Linked Spastic Paraplegia)
Robbinsville, NJ
Born: 3/9/00

Judson Levasheff

Judson Levasheff

Globoid Cell Leukodystrophy (Krabbe Disease)
Irvine, CA
Born: 12/24/04
Went to Heaven: 11/7/07

Story of Judson

Eleni Levidis

Eleni Levidis

Globoid Cell Leukodystrophy (Krabbe Disease)
Macungie, PA
Born: 4/26/93
Went to Heaven: 3/1/01

Jasper Lipe

Jasper Lipe

Metachromatic Leukodystrophy
Chicago, IL
Born: 4/11/05
Went to Heaven: 2/23/13

Jericho Little

Jericho "Chase" Little

Adrenoleukodystrophy (ALD)
Rocky Ford, GA
Born: 5/12/00
Went to Heaven: 1/3/14
Victoria Lockhart

Victoria Lockhart

Globoid Cell Leukodystrophy (Krabbe Disease)
Grand Bay, AL
Born: 9/19/97
Transplant

Hadley Lorg

Hadley Lorg

Globoid Cell Leukodystrophy (Krabbe Disease)
Yukon, OK
Born: 6/30/04

Lauren Loughheed

Lauren Loughheed

Globoid Cell Leukodystrophy (Krabbe Disease)
Beaconsfield, QC Canada
Born: 01/08/11

Life with Lauren

 

Emerson Lyle

Emerson Lyle

Metachromatic Leukodystrophy (MLD)
Lockesburg, AR
Born: 3/23/09
Transplant

Jack Macpherson

Jack Macpherson

Globoid Cell Leukodystrophy (Krabbe Disease)
Argyll & Bute, Scotland
Born: 7/28/06
Went to Heaven: 4/29/08

Jack's CaringBridge Site

Morgan Malfara

Morgan Malfara

Pelizaeus Merzbacher Disease (X linked spastic paraplegia)
Melbourne Beach, FL
Born: 10/22/97

The Morgan Project

 

Gabriella Paige Manzo

Gabriella Paige Manzo

Globoid Cell Leukodystrophy (Krabbe Disease)
Howard Beach, NY
Born: 8/4/97

Steven Markel

Steven Markel

Globoid Cell Leukodystrophy (Krabbe Disease)
Saginaw, MI
Born: 8/13/05
Went to Heaven: 3/5/07

Alilia Markel

Alilia Markel

Globoid Cell Leukodystrophy (Krabbe Disease)
Saginaw, MI
Born: 11/11/08
Went to Heaven: 12/23/08

Lexus Marsh

Lexus Marsh

Globoid Cell Leukodystrophy (Krabbe Disease)
Mio, MI
Born: 9/10/02
Transplant

Ethan Marshall

Ethan Marshall

Zellweger Syndrome
Decatur, IL
Born: 7/23/10

Troy Martin

Troy Martin

Globoid Cell Leukodystrophy (Krabbe Disease)
Mount Airy, NC
Born: 7/27/92
Went to Heaven: 12/6/93

Austin Martin

Austin Martin

Globoid Cell Leukodystrophy (Krabbe Disease)
Monroe, GA
Born: 4/4/94
Went to Heaven: 3/13/96

Alexa Martinez

Alexa Martinez

Globoid Cell Leukodystrophy (Krabbe Disease)
DelRio, TX
Born: 12/3/91
Went to Heaven: 9/21/92

Anthony Mattina

Anthony Mattina

Globoid Cell Leukodystrophy (Krabbe Disease)
Wyandotte, MI
Born: 12/27/01
Went to Heaven: 3/20/04

HH Logo Green No Text I thank my God every time I remember you.
~ Philippians 1:3
Marcus Mattina

Marcus Mattina

Globoid Cell Leukodystrophy (Krabbe Disease)
Wyandotte, MI
Born: 8/28/08
Transplant

Dylan Maubach

Dylan Maubach

Globoid Cell Leukodystrophy (Krabbe Disease)
Washington, IL
Born: 7/29/11

Montgomery

Montgomery "Gummy" Maughan

Metachromatic Leukodystrophy (MLD)
Peoria, AZ
Born: 7/10/08
Went to Heaven: 1/3/13

Gummy's Website

Tabitha Maughan

Tabitha Maughan

Metachromatic Leukodystrophy (MLD)
Peoria, AZ
Born: 10/30/03
Transplant

Tabitha's Website

Ethan Maughan

Ethan Maughan

Metachromatic Leukodystrophy (MLD)
Peoria, AZ
Born: 8/10/97
Went to Heaven: 10/10/00

Ethan's Website

Dylan May

Dylan May

Globoid Cell Leukodystrophy (Krabbe Disease)
Franklin, TN
Born: 1/16/04
Went to Heaven: 1/6/09

Dylan's Family Website

Tyler Mcadams

Tyler Mcadams

Metachromatic Leukodystrophy (MLD)
Albuquerque, NM
Born: 9/24/03
Transplant

Tyler's Family taking action...

Jack Mccall

Jack Mccall

Adrenoleukodystrophy (ALD)
Cutler Bay, FL
Born: 2/15/00

Casey Mccurry

Casey Mccurry

Globoid Cell Leukodystrophy (Krabbe Disease)
Longdonderry, Ireland
Born: 12/3/07

Christopher McClure

Christopher McClure

Globoid Cell Leukodystrophy (Krabbe Disease)
Chicago, IL
Born: 7/5/89
Went to Heaven: 5/31/90

Olivia McCormick

Olivia McCormick

Globoid Cell Leukodystrophy (Krabbe Disease)
Taneytown, MD
Born: 8/10/01
Went to Heaven: 3/29/97

Emma McGregor

Emma McGregor

Metachromatic Leukodystrophy (MLD)
Walnut Creek, CA
Born: 7/3/95
Transplant


Emma's Foundation

Kathleen Ann McNichol

Kathleen Ann McNichol

Globoid Cell Leukodystrophy (Krabbe Disease)
Havertown, PA
Born: 1/18/70
Went to Heaven: 2/17/71

Scarlett Measles
Scarlett Measles

Globoid Cell Leukodystrophy (Krabbe Disease)
Pikeville, TN
Born: 6/6/79
Transplant

Scarlett's Website

Scarlet's Lawfully Blonde Website
Abigail Middleton

Abigail Middleton

Globoid Cell Leukodystrophy (Krabbe Disease)
Gauteng, South Africa
Born: 1/18/13
Went to Heaven: 1/30/14
Anthony Middleton

Anthony Middleton

Adrenoleukodystrophy (ALD)
Durham, NC
Born: 3/15/99
Went to Heaven: 3/24/11

Jackie Middleton

Jackie Middleton

Adrenoleukodystrophy (ALD)
Durham, NC
Born: 4/11/01
Transplant

DeJay Middleton

DeJay Middleton

Adrenoleukodystrophy (ALD)
Durham, NC
Born: 6/28/03
Transplant

Noa Milego

Noa Milego

Globoid Cell Leukodystrophy (Krabbe Disease)
Vigo, Spain
Born: 10/29/09
Went to Heaven: 3/24/11

Degan Cain Miles

Degan Cain Miles

Globoid Cell Leukodystrophy (Krabbe Disease)
Grand Junction, CO
Born: 6/8/03
Transplant

HH Logo Green No Text I have not stopped giving thanks for you,
remembering you in my prayers.
~ Ephesians 1:16
Megan Miles

Megan Miles

Globoid Cell Leukodystrophy (Krabbe Disease)
Grand Junction, CO
Born: 10/28/97
Went to Heaven: 8/8/00

Branden Miller

Branden Miller

Globoid Cell Leukodystrophy (Krabbe Disease)
La Salle, MB Canada
Born: 10/31/04

Logan Miller

Logan Miller

Adrenoleukodystrophy (ALD)
Bellwood, PA
Born: 1/23/02

Logan's CaringBridge Site

Makinley Mills

Makinley Mills

Globoid Cell Leukodystrophy (Krabbe Disease)
Garner, IA
Born: 9/19/06
Went to Heaven: 12/22/07

Airionna Mills

Airionna Mills

Globoid Cell Leukodystrophy (Krabbe Disease)
Jackson, TN
Born: 12/23/03
Went to Heaven: 5/24/08

Daniel Mogavero

Daniel Mogavero

Adrenoleukodystrophy (ALD)
Cheektowaga, NY
Born: 10/10/04

Transplant

Zoey Moore

Zoey Moore

Globoid Cell Leukodystrophy (Krabbe Disease)
Atlantic, IA
Born: 7/15/05
Transplant

Zoey's Family taking action...

Raegan Moore

Raegan Moore

Globoid Cell Leukodystrophy (Krabbe Disease)
Atlantic, IA
Born: 6/22/02
Went to Heaven: 2/1/04

Connor Moreland

Connor Moreland

Globoid Cell Leukodystrophy (Krabbe Disease)
Greensburg, PA
Born: 8/27/08

Greyson Morris
Greyson Morris

Globoid Cell Leukodystrophy (Krabbe Disease)
Canyon Lake, TX
Born: 12/18/07
Went to Heaven: 12/12/08

Greyson's Family taking action...

Grey's Gift
Matthew Morris

Matthew Morris

Adrenoleukodystrophy (ALD)
Gloucester, NC
Born: 2/14/95
Transplant

Jonathan Morris

Jonathan Morris

Adrenoleukodystrophy (ALD)
Gloucester, NC
Born: 2/14/95
Went to Heaven: 4/15/12

Daphne Munishvaran

Daphne Munishvaran

Globoid Cell Leukodystrophy (Krabbe Disease)
Durban, South Africa
Born: 6/19/96
Went to Heaven: 5/13/06

Kyle Murphy

Kyle Murphy

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 11/21/97
Went to Heaven: 7/28/98

Kendra Murray

Kendra Murray

Unspecified Leukodystrophy
Sunnyside, WA
Born: 11/12/09
Went to Heaven: 11/18/12

Chance Myerscough

Chance Myerscough

Globoid Cell Leukodystrophy (Krabbe Disease)
Brantford, ON Canada
Born: 5/18/01
Went to Heaven: 11/16/10

Chance's CaringBridge Site

Kaitlin Nelkie

Kaitlin Nelkie

Globoid Cell Leukodystrophy (Krabbe Disease)
Mc Cordsville, IN
Born: 6/7/05
Went to Heaven: 8/18/06

Lucas Nims

Lucas Nims

Globoid Cell Leukodystrophy (Krabbe Disease)
Molino, FL
Born: 4/15/99
Went to Heaven: 8/24/13

Lucas's CaringBridge Site

Marshall Nivens

Marshall Nivens

Adrenoleukodystrophy (ALD)
Stanley, NC
Born: 9/19/01
Transplant

Logan Nobis

Logan Nobis

Metachromatic Leukodystrophy (MLD)
Exeter, IL
Born: 1/1/04
Transplant

Logan's CaringBridge Site

Hope and a Future Bear Find rest, O my soul, in God alone; my hope comes from Him.
~Psalm 62:5
Michael O'Boyle

Michael O'Boyle

Globoid Cell Leukodystrophy (Krabbe Disease)
Lakewood, OH
Born: 7/4/09
Transplant

Matthew Thomas O'Brien

Matthew Thomas O'Brien

Globoid Cell Leukodystrophy (Krabbe Disease)
Dousman, WI
Born: 9/9/10
Went to Heaven: 2/2/13

Matthew's Program

Connor O'Keefe

Connor O'Keefe

4H Syndrome
Gibsonton, FL
Born: 9/29/00

Anna Okarski

Anna Okarski

Globoid Cell Leukodystrophy (Krabbe Disease)
Ormond Beach, FL
Born: 11/28/99
Went to Heaven: 12/17/00

Wally Ordoyne

Wally Ordoyne

Globoid Cell Leukodystrophy (Krabbe Disease)
Thibodaux, LA
Born: 11/29/79

Eric Osman

Eric Osman

Adrenoleukodystrophy (ALD)
Falls Church, VA
Born: 10/26/00
Went to Heaven: 10/25/09

Jacob Osman

Jacob Osman

Adrenoleukodystrophy (ALD)
Falls Church, VA
Born: 10/15/04
Went to Heaven: 9/1/12

Jack Palamaro

Jack Palamaro

Alexander Disease
Born: 8/14/01

Naeva Paquette

Naeva Paquette

Globoid Cell Leukodystrophy (Krabbe Disease)
Granby, QC Canada
Born: 9/16/11
Went to Heaven: 2/23/13

Naeva's Facebook Community Page

Jaymie Leigh Parke

Jaymie Leigh Parke

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 9/9/99
Went to Heaven: 3/8/01

Judson Peacock

Judson Peacock

Globoid Cell Leukodystrophy (Krabbe Disease)
Beaumont, TX
Born: 1/5/98
Went to Heaven: 10/16/98

Angela Pitra

Angela Pitra

Globoid Cell Leukodystrophy (Krabbe Disease)
Downers Grove, IL
Born: 12/26/97
Went to Heaven: 11/11/98

Freddie Place

Freddie Place

Globoid Cell Leukodystrophy (Krabbe Disease)
Bow, NH
Born: 11/25/98
Went to Heaven: 10/29/99

Tanner James Jurek  Plasky

Tanner James Jurek Plasky

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 6/16/95
Went to Heaven: 11/8/96

Megan Nicole Jurek  Plasky

Megan Nicole Jurek Plasky

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 12/8/92
Went to Heaven: 4/25/94

Giovanni Price

Giovanni Price

Metachromatic Leukodystrophy (MLD)
Omaha, NE
Born: 1/16/10

Liviana Price

Liviana Price

Metachromatic Leukodystrophy (MLD)
Omaha, NE
Born: 1/18/08
Went to Heaven: 9/26/13

Liviana's Journey

Noah Pichard

Noah Prichard

Globoid Cell Leukodystrophy (Krabbe Disease)
DuPont, WA
Born: 9/16/02
Went to Heaven: 10/7/03

Michael Ramos Jr.

Michael Ramos Jr.

Globoid Cell Leukodystrophy (Krabbe Disease)
Woodstown, NJ
Born: 11/12/98

Max Randell

Max Randell

Canavan Disease
Buffalo Grove, IL

Faith Bear The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing.
~ Zephaniah 3:17
Chandler Raney

Chandler Raney

Globoid Cell Leukodystrophy (Krabbe Disease)
Indianapolis, IN
Born: 11/1/98
Went to Heaven: 12/5/00

Katalina Ranken

Katalina Ranken

Globoid Cell Leukodystrophy (Krabbe Disease)
Sewell, NJ
Born: 7/19/02

Katarina Ravnjak

Katarina Ravnjak

Globoid Cell Leukodystrophy (Krabbe Disease)
Slovenia
Born: 10/26/97
Went to Heaven: 2/6/03

Matevz Tislar

Matevz Rebol

Globoid Cell Leukodystrophy (Krabbe Disease)
Mokronog, Slovenia
Born: 3/17/10
Went to Heaven: 3/29/13

Christopher Riegel

Christopher Riegel

Metachromatic Leukodystrophy (MLD)
Saginaw, MI
Born: 11/29/05
Went to Heaven: 4/5/11

Joseph Robinson

Joseph Robinson

Globoid Cell Leukodystrophy (Krabbe Disease)
Lansing, MI
Born: 9/12/96
Went to Heaven: 4/4/98

Elmer Bonilla Rodriquez

Elmer Bonilla Rodriquez

Globoid Cell Leukodystrophy (Krabbe Disease)
Durham, NC
Born: 3/4/07
Transplant

Amanda Rogers

Amanda Rogers

Globoid Cell Leukodystrophy (Krabbe Disease)
Ashland, MA
Born: 2/3/78
Went to Heaven: 10/30/78

Dina Rogers

Dina Rogers

Globoid Cell Leukodystrophy (Krabbe Disease)
Ashland, MA
Born: 9/27/72
Went to Heaven: 2/19/74

Nicholas Rugari

Nicholas Rugari

Globoid Cell Leukodystrophy (Krabbe Disease)
Cincinnati, OH
Born: 5/16/86
Went to Heaven: 5/19/87

Gina Rugari

Gina Rugari

Globoid Cell Leukodystrophy (Krabbe Disease)
Cincinnati, OH
Born: 12/23/99
Transplant

Courtney Rutherford

Courtney Rutherford

Globoid Cell Leukodystrophy (Krabbe Disease)
Born: 9/25/96
Went to Heaven: 4/23/00

Jasline Santana

Jasline Santana

Globoid Cell Leukodystrophy (Krabbe Disease)
Bronx, NY
Born: 5/22/10
Transplant

Christian Santucci

Christian Santucci

4H Syndrome
Fairlawn, NJ
Born: 6/30/07

Jimmy Schmitt

Jimmy Schmitt

Adrenoleukodystrophy (ALD)
Amherst, NY
Born: 9/7/89
Went to Heaven: 7/3/2013

Sylvie Schicker

Sylvie Schnicker

Globoid Cell Leukodystrophy (Krabbe Disease)
Burlington, VT
Born: 11/23/06

Sylvie's CaringBridge Site

Mason Schroeder

Mason Schroeder

Adrenoleukodystrophy (ALD)
Sheboygan Falls, WI
Born: 11/18/96
Went to Heaven: 7/31/08

Jacquelyn Scott

Jacquelyn Scott

Globoid Cell Leukodystrophy (Krabbe Disease)
Camarillo, CA
Born: 7/10/02
Went to Heaven: 2/10/07

Jacque's Video

Jhyrve Sears

Jhyrve Sears

Globoid Cell Leukodystrophy (Krabbe Disease - Later Onset)
Born: 7/8/87
Transplant

Haley Sears

Haley Sears

Globoid Cell Leukodystrophy (Krabbe Disease)
Seneca, SC
Born: 12/8/96
Went to Heaven: 9/10/98

HH Logo Green No Text I trust in Your unfailing love; my heart rejoices in your salvation.
~ Psalm 13:5
Aidan Seeger

Aidan Seeger

Adrenoleukodystrophy (ALD)
Brooklyn, NY
Born: 11/29/05
Went to Heaven: 4/29/12

Aidan Seeger

Giovanni Sereno

Giovanni Sereno

Metachromatic Leukodystrophy (MLD)
West Caldwell, NJ
Born: 11/17/08
Transplant

Salvatore Sereno

Salvatore Sereno

Metachromatic Leukodystrophy (MLD)
West Caldwell, NJ
Born: 4/5/03
Transplant

Melina Sevilla

Melina Sevilla

Globoid Cell Leukodystrophy (Krabbe Disease)
Neenah, WI
Born: 7/7/01
Went to Heaven: 4/19/02

Emma Sharp

Emma Sharp

Globoid Cell Leukodystrophy (Krabbe Disease)
Dumbartonshire, Scotland
Born: 7/16/11
Went to Heaven: 4/16/13

Dalton Shell

Dalton Shell

Globoid Cell Leukodystrophy (Krabbe Disease)
Millers Creek, NC
Born: 10/3/96
Transplant

Anthony Shell

Anthony Shell

Globoid Cell Leukodystrophy (Krabbe Disease)
Millers Creek, NC
Born: 1/22/88
Went to Heaven: 2/21/89

Matthew Shilling

Matthew Shilling

Globoid Cell Leukodystrophy (Krabbe Disease)
Farwell, MI
Born: 11/17/88
Went to Heaven: 12/23/06

Christopher Silbernagel

Christopher Silbernagel

Globoid Cell Leukodystrophy (Krabbe Disease)
Culver, OR
Born: 6/6/76
Went to Heaven: 5/18/77

Erin Smallwood

Erin Smallwood

Globoid Cell Leukodystrophy (Krabbe Disease)
Conway, AR
Born: 1/1/09
Went to Heaven: 3/15/10

Lillian Grace Smith

Lillian Grace Smith

Globoid Cell Leukodystrophy (Krabbe Disease)
Leonardtown, MC
Born: 9/26/11
Transplant

Lillian's Caring Bridge Site

Rufus Smith

Rufus Smith

Globoid Cell Leukodystrophy (Krabbe Disease)
Somerset, United Kingdom
Born: 4/22/08
Went to Heaven: 2/8/09

Anthony Smith

Anthony Smith

Adrenoleukodystrophy (ALD)
Charlotte, NC
Born: 7/20/70
Passed Away: 4/22/12

Camden Rainier Smith

Camden Rainier Smith

Globoid Cell Leukodystrophy (Krabbe Disease)
Seattle, WA
Born: 3/15/06
Went to Heaven: 12/30/07

Jacob Sontag

Jacob Sontag

Canavan Disease
Harrison, NY
Born: 2/24/96

Vanessa Spinello

Vanessa Spinello

Globoid Cell Leukodystrophy (Krabbe Disease)
Brooklyn, NY
Born: 7/19/99

Sam Spraggins
Sam Spraggins

Metachromatic Leukodystrophy (MLD)
Ponce Inlet, FL
Born: 5/17/01
Transplant

Sam's Caring Bridge Site

Sam's Website

Bruce Springer

Bruce Springer

Globoid Cell Leukodystrophy (Krabbe Disease)
Charlotte, NC
Born: 10/27/66
Went to Heaven: 11/8/68

Jameson St. Clair

Jameson St. Clair

Globoid Cell Leukodystrophy (Krabbe Disease)
Naperville, IL
Born: 12/19/89

Kenny Stoeckle

Kenny Stoeckle

Globoid Cell Leukodystrophy (Krabbe Disease)
The Woodlands, TX
Born: 8/2/94
Went to Heaven: 11/8/96

Beautiful and Baby Bella Even if I walk through a valley, I will not be afraid, because you are with me.
~Psalm 23:4
James Sturtevant

James Sturtevant

Adrenoleukodystrophy (ALD)
Claremont, NH
Born: 6/7/91
Went to Heaven: 11/4/13
Reesa Stutzman

Reesa Stutzman

Globoid Cell Leukodystrophy (Krabbe Disease)
Scottsdale, AZ
Born: 7/30/11

Baby Reesa's Website

Evie Sugden

Evie Sugden

Globoid Cell Leukodystrophy (Krabbe Disease)
Brafferton, United Kingdom
Born: 2/21/01
Went to Heaven: 1/21/02

Darcee Suhr

Darcee Suhr

Metachromatic Leukodystrophy (MLD)
West Linn, OR

Diagnosed: 8/1/95
Went to Heaven: 12/16/95

Lindy Suhr

Lindy Suhr

Metachromatic Leukodystrophy (MLD)
West Linn, OR
Diagnosed: 7/1/95

Mika Summers

Mika Summers

Globoid Cell Leukodystrophy (Krabbe Disease)
Scottsboro, AL
Born: 9/9/96
Went to Heaven: 3/26/97

Adithya Sunikumar

Adithya Sunilkumar

Globoid Cell Leukodystrophy (Krabbe Disease)
Calicut, India
Born: 8/29/02

David Suppan

David Suppan

Adrenoleukodystrophy (ALD)
Tobyhanna, PA
Born: 3/12/96
Went to Heaven: 10/8/96

David Suppan's Website

Sean Suppan

Sean Suppan

Adrenoleukodystrophy (ALD)
Tobyhanna, PA
Born: 10/25/04
Transplant

Sean Suppan's Website

Miraiya Sutkay

Miraiya Sutkay

Unspecified Leukodystrophy
Flint, MI
Born: 12/26/12

Aminah Syed

Aminah Syed

Globoid Cell Leukodystrophy (Krabbe Disease)
Bridgeview, IL
Born: 10/23/98
Went to Heaven: 7/2/01

Anna Taylor

Anna Taylor

Globoid Cell Leukodystrophy (Krabbe Disease)
Beaver Dam, KY
Born: 4/28/13
Jaden Taylor

Jaden Taylor

Globoid Cell Leukodystrophy (Krabbe Disease)
Buffton, SC
Born: 6/25/07
Went to Heaven: 3/4/08

Jayden Taylor

Jayden Taylor

Globoid Cell Leukodystrophy (Krabbe Disease)
Philadelphia, PA
Born: 8/26/07
Went to Heaven: 12/27/08

Tenley Thompson

Tenley Thompson

Globoid Cell Leukodystrophy (Krabbe Disease)
Penncock, MN
Born: 5/7/10

Jeremy Thoms

Jeremy Thoms

Globoid Cell Leukodystrophy (Krabbe Disease)
Eau Claire, WI
Born: 10/19/00
Transplant

Madison Tierney

Madison Tierney

Globoid Cell Leukodystrophy (Krabbe Disease)
Fairmont, WV
Born: 5/31/04
Transplant

Maddie Trimper

Maddie Trimper

Metachromatic Leukodystrophy (MLD)
Stanton, MI
Born: 1/17/98
Went to Heaven: 11/7/05

Max Trimper

Max Trimper

Metachromatic Leukodystrophy (MLD)
Stanton, MI
Born: 4/29/95
Transplant

Sam Trimper

Sam Trimper

Metachromatic Leukodystrophy (MLD)
Stanton, MI
Born: 6/14/99
Transplant

Hunter and Baby Hunter For I am the Lord, your God, who takes hold of your right hand and says to you, "do not fear; I will help you." ~ Isaiah 41:13
Michael Town

Michael Town

Globoid Cell Leukodystrophy (Krabbe Disease)
Spring Lake Park, MN
Born: 10/29/94
Went to Heaven: 6/5/05

Alyssa Troia

Alyssa Troia

Metachromatic Leukodystrophy (MLD)
McConnellsburg, PA
Born: 6/4/10
Went to Heaven: 10/30/11

Corbin Troia

Corbin Troia

Metachromatic Leukodystrophy (MLD)
McConnellsburg, PA
Born: 11/19/08

Samuel Uresti

Samuel Uresti

Globoid Cell Leukodystrophy (Krabbe Disease)
Uruapan, Mexico
Born: 1/28/10
Went to Heaven: 8/11/13

Luciano Uribe

Luciano Uribe

Adrenoleukodystrophy (ALD)
Danbury, CT
Born: 2/10/09
Jody Vance

Jody Vance

Globoid Cell Leukodystrophy (Krabbe Disease)
North Liberty, IA
Born: 2/2/85
Went to Heaven: 4/25/11

Lisa Ellen Vaughan

Lisa Ellen Vaughan

Globoid Cell Leukodystrophy (Krabbe Disease)
Williamsville, NY
Born: 6/14/56
Went to Heaven: 7/23/58

William Viglianco

William Viglianco

Globoid Cell Leukodystrophy (Krabbe Disease)
Nutter Fort, WV
Born: 3/20/86

Erica Viglianco

Erica Viglianco

Globoid Cell Leukodystrophy (Krabbe Disease)
Nutter Fort, WV
Born: 9/22/79

Aaron Viglianco

Aaron Viglianco

Globoid Cell Leukodystrophy (Krabbe Disease)
Nutter Fort, WV
Born: 10/28/84

Nicholas Villalobos

Nicholas Villalobos

Metachromatic Leukodystrophy (MLD)
Trenton, NJ
Born: 8/29/99
Went to Heaven: 6/1/10

Nicholas's Caring Bridge Site

Lucas Viscomi

Lucas Viscomi

Metachromatic Leukodystrophy (MLD)
Little Silver, NJ
Born: 5/13/99
Went to Heaven: 5/21/13

Eli Wagner

Eli Wagner

Globoid Cell Leukodystrophy (Krabbe Disease)
Bridgeport, WV
Born: 12/13/01
Transplant

Emily Rose Wagner

Emily Rose Wagner

Unspecified Leukodystrophy
Oxford, MA
Born: 8/21/12

Jackson Wallace

Jackson Wallace

Globoid Cell Leukodystrophy (Krabbe Disease)
Fort Worth, TX
Born: 4/18/13

Rachelle Wallace

Rachelle Wallace

Globoid Cell Leukodystrophy (Krabbe Disease)
Sidney, Ohio
Born: 4/18/01
Transplant

Brittany Walters

Brittany Walters

Globoid Cell Leukodystrophy (Krabbe Disease)
Radcliff, KY
Born: 10/6/01
Went to Heaven: 8/20/02

Gemma Rose_Ward

Gemma Rose Ward

Globoid Cell Leukodystrophy (Krabbe Disease)
Bailey, MS
Born: 9/3/13

Michael Warechowski

Michael Warechowski

Metachromatic Leukodystrophy (MLD)
Marietta, GA
Born: 4/30/10

Michael's Website

Candise Watson

Candise Watson

Metachromatic Leukodystrophy (MLD)
Greenville, SC
Born: 6/16/03
Went to Heaven: 1/21/13

All Bears Jesus called the children to Him and said,
"Let the little children come to me, and do not hinder them,
for the kingdom of God belongs to such as these."
~ Luke 18:16
Katie Watson

Katie Watson

Metachromatic Leukodystrophy (MLD)
Greenville, SC
Born: 1/10/06

Lucas Webb

Lucas Webb

Metachromatic Leukodystrophy (MLD)
Jeffersonville, IN
Born: 9/5/08
Went to Heaven: 3/2/10

Thomas Webb

Thomas Webb

Metachromatic Leukodystrophy (MLD)
Jeffersonville, IN
Born: 12/22/06

Elias Wendland

Elias Wendland

Globoid Cell Leukodystrophy (Krabbe Disease)
Liberty Township, OH
Born: 2/19/07

Daddy's Blog

Saniya Wesley

Saniya Wesley

Globoid Cell Leukodystrophy (Krabbe Disease)
Sarasota, FL
Born: 12/13/11
Went to Heaven: 3/17/14

Andrea Wesselius

Andrea Wesselius

Globoid Cell Leukodystrophy (Krabbe Disease)
Dundas, ON Canada
Born: 1/13/93
Went to Heaven: 12/17/97

Natasha Wesselius

Natasha Wesselius

Globoid Cell Leukodystrophy (Krabbe Disease)
Dundas, ON Canada
Born: 6/28/94
Went to Heaven: 11/21/97

Jasmine Wharton

Jasmine Wharton

Globoid Cell Leukodystrophy (Krabbe Disease)
Newaygo, MI
Born: 11/8/11

Jackson White

Jackson White

Globoid Cell Leukodystrophy (Krabbe Disease)
Concord, CA
Born: 3/30/03
Transplant

Jackson's Website

Peyton White

Peyton White

Metachromatic Leukodystrophy (MLD)
Bettendorf, IA
Born: 11/18/05
Transplant

Timothy Willett

Timothy Willett

Globoid Cell Leukodystrophy (Krabbe Disease)
Arroyo Grande, CA
Born: 2/12/77
Went to Heaven: 5/29/09

Alyjah Williams

Alyjah Williams

Globoid Cell Leukodystrophy (Krabbe Disease)
Meridian, ID
Born: 8/19/12
Went to Heaven: 3/18/14

Collin Williams

Collin Williams

Globoid Cell Leukodystrophy (Krabbe Disease)
Hiawassee, GA
Born: 6/1/09
Went to Heaven: 7/21/10

Jacob Alexander Wilson

Jacob Alexander Wilson

Globoid Cell Leukodystrophy (Krabbe Disease)
Manhattan, KS
Born: 12/21/91
Went to Heaven: 9/10/92

Marshall Wilson

Marshall Wilson

Globoid Cell Leukodystrophy (Krabbe Disease)
Dayton, OR
Born: 6/15/09

Marshall's Caring Bridge Site

Michael Wilson

Michael Wilson

Globoid Cell Leukodystrophy (Krabbe Disease)
Dayton, OR
Born: 9/25/10
Transplant

Michael's CaringBridge Site

Logan Windley

Logan Windley

Globoid Cell Leukodystrophy (Krabbe Disease)
Tacoma, WA
Born: 7/7/01
Went to Heaven: 3/22/02

Kenan Spencer Witczak

Kenan Spencer Witczak

Globoid Cell Leukodystrophy (Krabbe Disease)
Chicago, IL
Born: 2/5/11

Jaiden Wood

Jaiden Wood

Metachromatic Leukodystrophy (MLD)
Pittsburgh, PA
Born: 4/6/06
Went to Heaven: 7/12/12

Colby Woodall

Colby Woodall

Globoid Cell Leukodystrophy (Krabbe Disease)
Williamston, SC
Born: 3/2/01
Went to Heaven: 9/28/05

Michelle Wright

Michelle Wright

Globoid Cell Leukodystrophy (Krabbe Disease)
Spokane, WA
Born: 2/24/72
Went to Heaven: 9/18/72

Georgina Wyse

Georgina Wyse

Alexander Disease
Cambs, United Kingdom
Born: 10/5/07
Went to Heaven: 3/27/11

HH Logo Green No Text You are my hiding place; you will protect me from
trouble and surround me with songs of deliverance.
~ Psalm 32:7