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Get Involved

Because of wonderful supporters who continue to get involved in our programs, events and campaigns, we are able to advance our mission of finding treatments and a cure for Krabbe and other leukodystrophies as well as educate and advocate for Expanded & Universal Newborn Screening. Your generosity is vital for funding research and to heighten awareness of the importance of newborn screening on a national level.

There are many ways to get involved!

Make a Donation

Support our Affected Families

Take Action for Expanded & Universal Newborn Screening

Participate In or Host an Every Step Walk

Coordinate a Special Event or Organize a Campaign

Check out our Calendar

Become a Strategic Partner


For more ways you can get involved with Hunter's Hope, please contact us at
(716) 667-1200 or email


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Every Step Buffalo NY 2010 Photo_Committee w/ Jim & Jill

“After organizing and being a part of
the Every Step Walk committee in
Buffalo, NY; I couldn’t help that day,
but be overwhelmed with feelings
that we just did a great thing and have contributed to saving children’s lives. 
It was one of the best things I ever did!

All our hard work paid off!”

Mike Vadala,
Volunteer Co-Chair, Every Step Walk
CEO, Summit Federal Credit Union