News     Calendar    Donate Facebook Badge_Light GreyTwitter Badge_Light GreyInstagram Badge_Light GreyYoutube Badge_Light Grey  
  Green Line_Homepage

Every Step Buffalo NY 2010 Photo_Committee w/ Jim & Jill

“After organizing and being a part
of the Every Step Walk committee
in Buffalo, NY; I couldn’t help that
day, but be overwhelmed with
feelings that we just did a great
thing and have contributed to saving children’s lives.  It was one of the
best things I ever did! All our hard
work paid off!”

Mike Vadala,
CEO, Summit Federal Credit Union

Get Involved

Because of wonderful supporters who continue to get involved in our programs, events and campaigns, we are able to advance our mission of finding treatments and a cure for Krabbe and other leukodystrophies as well as educate and advocate for Expanded & Universal Newborn Screening. Your generosity is vital for funding research and to heighten awareness of the importance of newborn screening on a national level.

There are many ways to get involved!

Make a Donation

Support our Affected Families

Take Action for Expanded & Universal Newborn Screening

Participate In or Host an Every Step Walk

Coordinate a Special Event or Organize a Campaign

Check out our Calendar

Become a Strategic Partner


For more ways you can get involved with Hunter's Hope, please contact us at (716) 667-1200 or email

 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200