Welcome to our Wall of Fame

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their special children.

If you would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.

If you are a visitor to the Wall of Fame and would like to donate to Hunter’s Hope and help us support Leukodystrophy children and their families, please click here.


WOF-Camden

Smith Family

Camden Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seattle, WA

Born: 3/15/06
Went to Heaven: 12/30/07

WOF-Anthony Smith

Smith Family

Anthony Smith

Adrenoleukodystrophy
(ALD)

Charlotte, NC

Born: 7/20/70
Went to Heaven: 4/22/12

Smith Family

Rufus Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Somerset, United Kingdom

Born: 4/22/08
Went to Heaven: 2/8/09

Hunter's Hope Wall of Fame

Smith Family

Lillian Grace Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leonardtown, MD

Born: 9/26/11
Transplant

Bear with Tears

Songs of Joy

“Those who sow in Tears will reap with songs of Joy.”
~ Psalm 126:5

WOF-Jacob S.

Sontag Family

Jacob Sontag

Canavan Disease

Harrison, NY

Born: 2/24/96
Went to Heaven: 1/18/16

Spencer-Witczak Family

Kenan Spencer-Witczak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 2/5/11
Went to Heaven: 5/31/18

WOF - Vanessa

Spinello Family

Vanessa Spinello

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brooklyn, NY

Born: 7/19/99
Went to Heaven: 8/23/17

Spraggins Family

Sam Spraggins

Metachromatic Leukodystrophy
(MLD)

Ponce Inlet, FL

Born: 5/17/01
Transplant
Sam’s Caring Bridge Site
Sam’s Website

WOF-Bruce

Springer Family

Bruce Springer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Charlotte, NC

Born: 10/27/66
Went to Heaven: 11/8/68

WOF-Jameson S.

St. Clair Family

Jameson St. Clair

Globoid Cell Leukodystrophy
(Krabbe Disease)

Naperville, IL

Born: 12/19/89

Stewart Family

Eric Stewart

Cerebrotendinous Xanthomatosis (CTX)

Albany, OR

Born: 01/09/91

Stocki Family

David Stocki

Alexander Disease

Clarence, NY

Born: 4/29/08

WOF-Kenny

Stoeckle Family

Kenny Stoeckle

Globoid Cell Leukodystrophy
(Krabbe Disease)

The Woodlands, TX

Born: 8/2/94
Went to Heaven: 11/8/96

Stokes Family

Martin Stokes

Globoid Cell Leukodystrophy
(Krabbe Disease)

Exeter, United Kingdom

Born: 11/11/16

Went to Heaven: 02/02/18

Hunter's Hope Wall of Fame

Stroup Family

Johanna “JoJo” Stroup

Metachromatic Leukodystrophy
(MLD)

Port Republic, MD

Born: 7/9/2009
Transplant

WOF-James

Sturtevant Family

James Sturtevant

Adrenoleukodystrophy
(ALD)

Claremont, NH

Born: 6/7/91
Went to Heaven: 11/1/13

WOF-Reesa S.

Stutzman Family

Reesa Stutzman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsdale, AZ

Born: 7/30/11
Baby Reesa’s Website

WOF-Evie

Sugden Family

Evie Sugden

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brafferton, United Kingdom

Born: 2/21/01
Went to Heaven: 1/21/02

WOF-Darcee

Suhr Family Child 1

Darcee Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 6/28/85
Went to Heaven: 12/16/95

WOF-Lindy

Suhr Family Child 2

Lindy Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 9/21/1980

Mika Aaron

Summers Family

Mika Summers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsboro, AL

Born: 9/9/96
Went to Heaven: 3/26/97

WOF-Adithya

Sunilkumar Family

Adithya Sunilkumar

Globoid Cell Leukodystrophy
(Krabbe Disease)

Calicut, India

Born: 8/29/02

WOF-David

Suppan Family Child 1

David Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 3/12/96
Went to Heaven: 10/8/06

Suppan Family Child 2

Sean Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 10/25/04
Transplant
Sean Suppan’s Website

Surrett Family

David Glen Chester Surrett

Globoid Cell Leukodystrophy
(Krabbe Disease)

Moncks Corner, SC

Born: 03/03/98
Went to Heaven: 11/11/98

WOF-Miraiya

Sutkay Family

Miraiya Sutkay

Unspecified Leukodystrophy

Flint, MI

Born: 12/26/12

WOF-Aminah

Syed Family

Aminah Syed

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bridgeview, IL

Born: 10/23/98
Went to Heaven: 7/2/01

WOF-Jayden

Taylor Family

Jayden Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Philadelphia, PA

Born: 8/26/07
Went to Heaven: 12/27/08

WOF-Jaden

Taylor Family

Jaden Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bluffton, SC

Born: 6/25/07
Went to Heaven: 3/4/08

WOF-Anna T.

Taylor Family

Anna Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaver Dam, KY

Born: 4/28/13
Went to Heaven: 4/2/15

Bear with Tears

Tears

“You are my hiding place; you will protect me from
trouble and surround me with songs of deliverance.”
~ Psalm 32:7

Faith Bear

The Lord your God

“The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing.”
~ Zephaniah 3:17

WOF - Tenley

Thompson Family

Tenley Thompson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pennock, MN

Born: 5/7/10
Went to Heaven: 10/30/17

WOF-Jeremy

Thoms Family

Jeremy Thoms

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eau Claire, WI

Born: 10/19/00
Transplant

WOF-Madison T.

Tierney Family

Madison Tierney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fairmont, WV

Born: 5/31/04
Transplant

WOF-Michael T.

Town Family

Michael Town

Globoid Cell Leukodystrophy
(Krabbe Disease)

Spring Lake Park, MN

Born: 10/29/94
Went to Heaven: 6/5/05

Trimble Family

Jacob Trimble

Adrenoleukodystrophy
(ALD)

Youngsville, LA

Born: 2/24/99

Went to Heaven: 3/13/14

WOF-Max T.

Trimper Family Child 1

Max Trimper

Metachromatic Leukodystrophy
(MLD)

Stanton, MI

Born: 4/29/95
Transplant

WOF-Maddie

Trimper Family Child 2

Maddie Trimper

Metachromatic Leukodystrophy
(MLD)

Stanton, MI

Born: 1/17/98
Went to Heaven: 11/7/05

Trimper Family Child 3

Sam Trimper

Metachromatic Leukodystrophy
(MLD)

Stanton, MI

Born: 6/14/99
Transplant

Zoe Tristan

Tristan Family

Zoe Monroe Tristan

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)

Bakersfield, CA

Born: 7/29/13
Went to Heaven: 2/15/18

WOF-Corbin

Troia Family Child 1

Corbin Troia

Metachromatic Leukodystrophy
(MLD)

McConnellsburg, PA

Born: 1/19/08
Went to Heaven: 3/14/15

WOF-Alyssa T.

Troia Family Child 2

Alyssa Troia

Metachromatic Leukodystrophy
(MLD)

McConnellsburg, PA

Born: 6/4/10
Went to Heaven: 10/30/11

Hunter Bear

Trust in the Lord

“Trust in the Lord with ALL your heart, and lean not on your own understanding…”
~ Proverbs 3:5

Uresti Family

Samuel Uresti

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uruapan, Mexico

Born: 1/28/10
Went to Heaven: 8/11/13

WOF-Luciano

Uribe Family

Luciano Uribe

Adrenoleukodystrophy
(ALD)

Danbury, CT

Born: 2/10/09

Van Houten Family

Ky’Zion Van Houten

Globoid Cell Leukodystrophy
(Krabbe Disease)

Willemstad, Curaçao

Born: 10/20/15

WOF-Jody

Vance Family

Jody Vance

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Liberty, IA

Born: 2/2/85
Went to Heaven: 4/25/11

WOF-Gabriel

Vasquez Family

Gabriel Jimenez Vasquez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Monterrey Nuevo Leon, Mexico

Born: 3/30/10
Went to Heaven: 7/21/13