Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


WOF-Aleksandra

Bunte Family

Aleksandra Bunte

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lund, Sweden

Born: 6/12/01
Went to Heaven: 6/7/02

WOF-Madylen

Burk Family

Madylen Burk

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bay City, MI

Born: 8/3/06
Went to Heaven: 9/2/07

WOF-Harry

Butler Family

Harry Butler

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cardiff, UK

Born: 5/12/13
Went to Heaven: 2/25/15

Butler Family

Trey Butler

Metachromatic Leukodystrophy
(MLD)

Victor, NY

Born: 9/21/96
Went to Heaven: 3/12/16

 

WOF-Harlee

Buttrum Family

Harlee Rae Buttrum

Globoid Cell Leukodystrophy
(Krabbe Disease)

Glenwood, AR

Born: 1/22/08
Went to Heaven: 2/9/09

WOF-Jade

Cagle Family

Jade Cagle

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 11/10/00
Went to Heaven: 1/5/03

Hunter's Hope Wall of Fame

Calaman Family Child 1

Michael Calaman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Amity, ME

Born: 9/30/00
Went to Heaven: 3/8/09

WOF-Michaela

Calaman Family Child 2

Michaela Calaman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Amity, ME

Born: 12/6/01
Went to Heaven: 1/30/17

WOF-C.J.

Cammarata Family

C.J. Cammarata

Globoid Cell Leukodystrophy
(Krabbe Disease)

Holland, NY

Born: 7/6/95
Went to Heaven: 2/2/02

Canale Family

Rossana Canale

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bordeghera, Italy

Born: 10/8/13
Went to Heaven: 1/17/15

WOF-Chase C.

Carlson Family

Chase Carlson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fullerton, CA

Born: 5/22/03
Went to Heaven: 7/21/05

WOF-Anthony C.

Caruso Family

Anthony Caruso

Globoid Cell Leukodystrophy
(Krabbe Disease)

Glendale, NY

Born: 11/28/74
Went to Heaven: 8/27/76

WOF-Hayden C.

Casavechia Family

Hayden Casavechia

Adenylosuccinate Lysas Deficiency

Benoit, MS

Born: 6/1/2011
Went to Heaven: 8/15/12
Hayden’s Website

WOF-Mac

Casey Family

Mac Casey

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunedin, New Zealand

Born: 8/24/09
Went to Heaven: 10/31/10

Hunter's Hope WOF Caroline Casey

Casey Family

Caroline “CC” Casey

Metachromatic Leukodystrophy
(MLD)

Charlotte, NC

Born: 5/1/13
Caring For Caroline Facebook

WOF-Anaya

Cassin-Potts Family

Anaya Cassin Potts

Globoid Cell Leukodystrophy
(Krabbe Disease)

Nelson, BC, Canada

Born: 8/26/09
Went to Heaven: 11/13/11

WOF-Dylan C.

Changle Family

Dylan Changle

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Kensington, PA

Born: 4/15/09
Went to Heaven: 12/22/09

Hunter's Hope Wall of Fame

Chappell Family

Lucas Chappell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Collinsville, TX

Born: 10/18/11

All Bears

Children of God

“How great is the love the Father has lavished on us, that we should be called Children of God! And that is what we are!”
~ 1 John 3:1a

WOF-Andrew

Christiansen Family

Andrew Christiansen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dublin, CA

Born: 4/8/13
Went to Heaven: 6/28/14

WOF-Kieran

Chumbley Family

Kieran Chumbley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harlow, United Kingdom

Born: 11/9/84
Went to Heaven: 4/11/01

Chynn Family Child 1

Autumn Chynn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newfoundland, Canada

Born: 2/14/16
Went to Heaven: 1/30/17

Chynn Family Child 2

Freya Chynn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newfoundland, Canada

Born: 2/14/16

WOF-Jessica

Claassen Family

Jessica Claassen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durban, South Africa

Born: 3/2/10
Went to Heaven: 1/27/17

WOF-Aubrey

Claflin Family

Aubrey Claflin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Streetsboro, OH

Born: 12/11/00
Went to Heaven: 12/15/02

Clarkson Family

Laylani Rose Clarkson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Clifton Heights, PA

Born: 7/13/16

WOF-Linda

Claverie Family

Linda Jane Claverie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Netherlands

Born: 3/4/84
Went to Heaven: 1/28/85

WOF-Bryce C.

Clayton Family Child 1

Bryce Clayton

Aicardi-Goutieres Syndrome
(AGS)

Queens Creek, AZ

Born: 1/25/07
Clayton’s Quest Blog

WOF-Annalise

Clayton Family Child 2

Annalise Clayton

Aicardi-Goutieres Syndrome
(AGS)

Queens Creek, AZ

Born: 5/24/09
Clayton’s Quest Facebook

WOF-Devon

Cole Family Child 1

Devon Cole

Adrenoleukodystrophy
(ALD)

Chicago, IL

Born: 12/6/97

WOF-Jacob C.

Cole Family Child 2

Jacob Cole

Adrenoleukodystrophy
(ALD)

Chicago, IL

Born: 8/15/00

WOF-Gracie

Cooley Family Child 1

Gracie Cooley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marshall, WI

Born: 6/12/00
Went to Heaven: 9/20/01

WOF-Ella C.

Cooley Family Child 2

Ella Grace Cooley

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marshall, WI

Born: 5/11/06
Went to Heaven: 6/14/06

WOF-Ashley C.

Cooper Family

Ashley Cooper

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sun Prairie, WI

Born: 5/5/00
Went to Heaven: 11/24/01

WOF-Evan

Cousineau Family

Evan Cousineau

Adrenoleukodystrophy
(ALD)

San Clemente, CA

Born: 11/3/97
Went to Heaven: 11/2/07

WOF-Katelyn

Craft Family

Katelyn Craft

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/4/05
Went to Heaven: 9/25/07
Katelyn’s Caring Bridge Site

WOF-Carmen

Crilly Family

Carmen Crilly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Toronto, ON Canada

Born: 3/2/07
Went to Heaven: 1/21/08

WOF-Joshua C.

Cross Family Child 1

Joshua Cross

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 11/12/92
Went to Heaven: 2/20/95

WOF-Laura C.

Cross Family Child 2

Laura Cross

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 7/31/99
Transplant

Crowell Family

Connor Crowell

Globoid Cell Leukodystroph
(Krabbe Family)

Phoenix, AZ

Born: 3/16/16
Went to Heaven: 3/25/17

WOF-Emily C.

Cullen Family Child 1

Emily Cullen

Unspecified Leukodystrophy

Dixon, IL

Born: 2/16/03
Went to Heaven: 4/22/08

WOF-Abigail C.

Cullen Family Child 2

Abigail Cullen

Unspecified Leukodystrophy

Dixon, IL

Born: 8/05/09
Went to Heaven: 3/1/13

WOF-Brady

Cunningham Family

Brady Cunningham

Globoid Cell Leukodystrophy
(Krabbe Disease)

Campbell, MO

Born: 4/16/08
Went to Heaven: 4/6/09

Hunter's Hope Wall of Fame

Cushman Family

Collin Cushman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wisconsin Rapids, WI

Born: 12/19/10
Collin’s Crew Facebook

WOF-John

D’Amico Family

John D’Amico

Globoid Cell Leukodystrophy
(Krabbe Disease)

Martinez, GA

Born: 10/25/99

WOF-Jasmine D.

Daigneault Family

Jasmine Daigneault

Aicardi-Goutieres Syndrome
(AGS)

St-Martine, QC Canada

Born: 5/23/97

WOF-Emma D.

Daniels Family Child 1

Emma Daniels

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin Park, NJ

Born: 7/20/09
Went to Heaven: 3/24/12

Hunter's Hope Wall of Fame

Daniels Family Child 2

Olivia Daniels

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin Park, NJ

WOF-Madelyn

Davis Family

Madelyn “Maddie” Davis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Danville, VA

Born: 7/21/11
Went to Heaven: 2/2/13

Hunter's Hope Wall of Fame

Davis Family

Addilyn Davis

Globoid Cell Leukodystrophy
(Krabbe Disease)

New Sharon, ME

Born: 8/23/11
Went to Heaven: 10/21/15