Welcome to our Wall of Fame
Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their special children.
If you would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.
If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.
If you are a visitor to the Wall of Fame and would like to donate to Hunter’s Hope and help us support Leukodystrophy children and their families, please click here.
Brown Family
Eilish Brown
Globoid Cell Leukodystrophy
(Krabbe Disease)
Leven, UK
Born: 11/16/13
Went to Heaven: 9/9/14
Brown Family
David Aaron
Globoid Cell Leukodystrophy
(Krabbe Disease)
Durham, NC
Born: 12/2/97
Went to Heaven: 3/19/99
Brueske Family
Ryan John Brueske
Globoid Cell Leukodystrophy
(Krabbe Disease)
Granby, CO
Born: 4/20/89
Went to Heaven: 3/27/90
Bryant-Wilson Family
Arobella Bryant
Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)
Elmira, NY
Born: 2/21/15
Went to Heaven: 3/19/16
Bunte Family
Aleksandra Bunte
Globoid Cell Leukodystrophy
(Krabbe Disease)
Lund, Sweden
Born: 6/12/01
Went to Heaven: 6/7/02
Burk Family
Madylen Burk
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bay City, MI
Born: 8/3/06
Went to Heaven: 9/2/07
Burroughs Family
Nico Burroughs
Globoid Cell Leukodystrophy
(Krabbe Disease)
Machesney Park, IL
Born: 8/9/21
Transplant
Butler Family
Harry Butler
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cardiff, UK
Born: 5/12/13
Went to Heaven: 2/25/15
Butler Family
Trey Butler
Metachromatic Leukodystrophy
(MLD)
Victor, NY
Born: 9/21/96
Went to Heaven: 3/12/16
Butterfield Family
Taiten Butterfield
Globoid Cell Leukodystrophy
(Krabbe Disease)
Eagle Mountain, UT
Born: 12/17/19
Went to Heaven: 03/14/21
Buttrum Family
Harlee Rae Buttrum
Globoid Cell Leukodystrophy
(Krabbe Disease)
Glenwood, AR
Born: 1/22/08
Went to Heaven: 2/9/09
Cagle Family
Jade Cagle
Globoid Cell Leukodystrophy
(Krabbe Disease)
Born: 11/10/00
Went to Heaven: 1/5/03
Calaman Family Child 1
Michael Calaman
Globoid Cell Leukodystrophy
(Krabbe Disease)
Amity, ME
Born: 9/30/00
Went to Heaven: 3/8/09
Calaman Family Child 2
Michaela Calaman
Globoid Cell Leukodystrophy
(Krabbe Disease)
Amity, ME
Born: 12/6/01
Went to Heaven: 1/30/17
Cammarata Family
C.J. Cammarata
Globoid Cell Leukodystrophy
(Krabbe Disease)
Holland, NY
Born: 7/6/95
Went to Heaven: 2/2/02
Canale Family
Rossana Canale
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bordeghera, Italy
Born: 10/8/13
Went to Heaven: 1/17/15
Carlson Family
Chase Carlson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Fullerton, CA
Born: 5/22/03
Went to Heaven: 7/21/05
Caruso Family
Anthony Caruso
Globoid Cell Leukodystrophy
(Krabbe Disease)
Glendale, NY
Born: 11/28/74
Went to Heaven: 8/27/76
Casavechia Family
Hayden Casavechia
Adenylosuccinate Lysas Deficiency
Benoit, MS
Born: 6/1/11
Went to Heaven: 8/15/12
Hayden’s Website
Casey Family
Mac Casey
Globoid Cell Leukodystrophy
(Krabbe Disease)
Dunedin, New Zealand
Born: 8/24/09
Went to Heaven: 10/31/10
Casey Family
Caroline “CC” Casey
Metachromatic Leukodystrophy
(MLD)
Charlotte, NC
Born: 5/1/13
Caring For Caroline Facebook
Cassin-Potts Family
Anaya Cassin Potts
Globoid Cell Leukodystrophy
(Krabbe Disease)
Nelson, BC, Canada
Born: 8/26/09
Went to Heaven: 11/13/11
Changle Family
Dylan Changle
Globoid Cell Leukodystrophy
(Krabbe Disease)
New Kensington, PA
Born: 4/15/09
Went to Heaven: 12/22/09
Chappell Family
Lucas Chappell
Globoid Cell Leukodystrophy
(Krabbe Disease)
Collinsville, TX
Born: 10/18/11
Went to Heaven: 12/21/20
Children of God
“How great is the love the Father has lavished on us, that we should be called Children of God! And that is what we are!”
~ 1 John 3:1a
Christiansen Family
Andrew Christiansen
Globoid Cell Leukodystrophy
(Krabbe Disease)
Dublin, CA
Born: 4/8/13
Went to Heaven: 6/28/14
Chumbley Family
Kieran Chumbley
Globoid Cell Leukodystrophy
(Krabbe Disease)
Harlow, United Kingdom
Born: 11/9/84
Went to Heaven: 4/11/01
Chynn Family Child 1
Autumn Chynn
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newfoundland, Canada
Born: 2/14/16
Went to Heaven: 1/30/17
Chynn Family Child 2
Freya Chynn
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newfoundland, Canada
Born: 2/14/16
Went to Heaven: 6/11/18
Claassen Family
Jessica Claassen
Globoid Cell Leukodystrophy
(Krabbe Disease)
Durban, South Africa
Born: 3/2/10
Went to Heaven: 1/27/17
Claflin Family
Aubrey Claflin
Globoid Cell Leukodystrophy
(Krabbe Disease)
Streetsboro, OH
Born: 12/11/00
Went to Heaven: 12/15/02
Clarkson Family
Laylani Rose Clarkson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Clifton Heights, PA
Born: 7/13/16
Went to Heaven: 2/21/19
Clausen Family
Bryce Clausen
Globoid Cell Leukodystrophy
(Krabbe Disease)
Indianapolis, IN
Born: 1/25/18
Went to Heaven: 4/5/19
Claverie Family
Linda Jane Claverie
Globoid Cell Leukodystrophy
(Krabbe Disease)
Netherlands
Born: 3/4/84
Went to Heaven: 1/28/85
Clayton Family Child 1
Bryce Clayton
Aicardi-Goutieres Syndrome
(AGS)
Queen Creek, AZ
Born: 1/25/07
Clayton’s Quest Blog
Clayton Family Child 2
Annalise Clayton
Aicardi-Goutieres Syndrome
(AGS)
Queen Creek, AZ
Born: 5/24/09
Clayton’s Quest Facebook
Cole Family Child 1
Devon Cole
Adrenoleukodystrophy
(ALD)
Chicago, IL
Born: 12/6/97
Cole Family Child 2
Jacob Cole
Adrenoleukodystrophy
(ALD)
Chicago, IL
Born: 8/15/00
Coleman Family
Trea Coleman Jr.
Pelizaeus Merzbacher Disease (X-linked spastic paraplegia)
(PMD)
Gadsen, Alabama
Born: 3/16/20
Cooley Family Child 1
Gracie Cooley
Globoid Cell Leukodystrophy
(Krabbe Disease)
Marshall, WI
Born: 6/12/00
Went to Heaven: 9/20/01
Cooley Family Child 2
Ella Grace Cooley
Globoid Cell Leukodystrophy
(Krabbe Disease)
Marshall, WI
Born: 5/11/06
Went to Heaven: 6/14/06
Cooper Family
Ashley Cooper
Globoid Cell Leukodystrophy
(Krabbe Disease)
Sun Prairie, WI
Born: 5/5/00
Went to Heaven: 11/24/01
Coupe Family
Avery Coupe
Globoid Cell Leukodystrophy
(Krabbe Disease)
Warwick, RI
Born: 10/29/18
Went to Heaven: 5/2/20
Cousineau Family
Evan Cousineau
Adrenoleukodystrophy
(ALD)
San Clemente, CA
Born: 11/3/97
Went to Heaven: 11/2/07
Craft Family
Katelyn Craft
Globoid Cell Leukodystrophy
(Krabbe Disease)
Born: 7/4/05
Went to Heaven: 9/25/07
Katelyn’s Caring Bridge Site
Crilly Family
Carmen Crilly
Globoid Cell Leukodystrophy
(Krabbe Disease)
Toronto, ON Canada
Born: 3/2/07
Went to Heaven: 1/21/08
Cross Family Child 1
Joshua Cross
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cedar Rapids, IA
Born: 11/12/92
Went to Heaven: 2/20/95
Cross Family Child 2
Laura Cross
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cedar Rapids, IA
Born: 7/31/99
Transplant
Crowell Family
Connor Crowell
Globoid Cell Leukodystrophy
(Krabbe Family)
Phoenix, AZ
Born: 3/16/16
Went to Heaven: 3/25/17
Cullen Family Child 1
Emily Cullen
Unspecified Leukodystrophy
Dixon, IL
Born: 2/16/03
Went to Heaven: 4/22/08