Welcome to the Leukodystrophy Wall of Fame.
Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.
If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.
If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.
Bryant-Wilson Family
Arobella Bryant
Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)
Elmira, NY
Born: 2/21/15
Went to Heaven: 3/19/16
Bunte Family
Aleksandra Bunte
Globoid Cell Leukodystrophy
(Krabbe Disease)
Lund, Sweden
Born: 6/12/01
Went to Heaven: 6/7/02
Burk Family
Madylen Burk
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bay City, MI
Born: 8/3/06
Went to Heaven: 9/2/07
Butler Family
Harry Butler
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cardiff, UK
Born: 5/12/13
Went to Heaven: 2/25/15
Butler Family
Trey Butler
Metachromatic Leukodystrophy
(MLD)
Victor, NY
Born: 9/21/96
Went to Heaven: 3/12/16
Buttrum Family
Harlee Rae Buttrum
Globoid Cell Leukodystrophy
(Krabbe Disease)
Glenwood, AR
Born: 1/22/08
Went to Heaven: 2/9/09
Cagle Family
Jade Cagle
Globoid Cell Leukodystrophy
(Krabbe Disease)
Born: 11/10/00
Went to Heaven: 1/5/03
Calaman Family Child 1
Michael Calaman
Globoid Cell Leukodystrophy
(Krabbe Disease)
Amity, ME
Born: 9/30/00
Went to Heaven: 3/8/09
Calaman Family Child 2
Michaela Calaman
Globoid Cell Leukodystrophy
(Krabbe Disease)
Amity, ME
Born: 12/6/01
Went to Heaven: 1/30/17
Cammarata Family
C.J. Cammarata
Globoid Cell Leukodystrophy
(Krabbe Disease)
Holland, NY
Born: 7/6/95
Went to Heaven: 2/2/02
Canale Family
Rossana Canale
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bordeghera, Italy
Born: 10/8/13
Went to Heaven: 1/17/15
Carlson Family
Chase Carlson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Fullerton, CA
Born: 5/22/03
Went to Heaven: 7/21/05
Caruso Family
Anthony Caruso
Globoid Cell Leukodystrophy
(Krabbe Disease)
Glendale, NY
Born: 11/28/74
Went to Heaven: 8/27/76
Casavechia Family
Hayden Casavechia
Adenylosuccinate Lysas Deficiency
Benoit, MS
Born: 6/1/2011
Went to Heaven: 8/15/12
Hayden’s Website
Casey Family
Mac Casey
Globoid Cell Leukodystrophy
(Krabbe Disease)
Dunedin, New Zealand
Born: 8/24/09
Went to Heaven: 10/31/10
Casey Family
Caroline “CC” Casey
Metachromatic Leukodystrophy
(MLD)
Charlotte, NC
Born: 5/1/13
Caring For Caroline Facebook
Cassin-Potts Family
Anaya Cassin Potts
Globoid Cell Leukodystrophy
(Krabbe Disease)
Nelson, BC, Canada
Born: 8/26/09
Went to Heaven: 11/13/11
Changle Family
Dylan Changle
Globoid Cell Leukodystrophy
(Krabbe Disease)
New Kensington, PA
Born: 4/15/09
Went to Heaven: 12/22/09
Chappell Family
Lucas Chappell
Globoid Cell Leukodystrophy
(Krabbe Disease)
Collinsville, TX
Born: 10/18/11
Children of God
“How great is the love the Father has lavished on us, that we should be called Children of God! And that is what we are!”
~ 1 John 3:1a
Christiansen Family
Andrew Christiansen
Globoid Cell Leukodystrophy
(Krabbe Disease)
Dublin, CA
Born: 4/8/13
Went to Heaven: 6/28/14
Chumbley Family
Kieran Chumbley
Globoid Cell Leukodystrophy
(Krabbe Disease)
Harlow, United Kingdom
Born: 11/9/84
Went to Heaven: 4/11/01
Chynn Family Child 1
Autumn Chynn
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newfoundland, Canada
Born: 2/14/16
Went to Heaven: 1/30/17
Chynn Family Child 2
Freya Chynn
Globoid Cell Leukodystrophy
(Krabbe Disease)
Newfoundland, Canada
Born: 2/14/16
Went to Heaven: 6/11/18
Claassen Family
Jessica Claassen
Globoid Cell Leukodystrophy
(Krabbe Disease)
Durban, South Africa
Born: 3/2/10
Went to Heaven: 1/27/17
Claflin Family
Aubrey Claflin
Globoid Cell Leukodystrophy
(Krabbe Disease)
Streetsboro, OH
Born: 12/11/00
Went to Heaven: 12/15/02
Clarkson Family
Laylani Rose Clarkson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Clifton Heights, PA
Born: 7/13/16
Claverie Family
Linda Jane Claverie
Globoid Cell Leukodystrophy
(Krabbe Disease)
Netherlands
Born: 3/4/84
Went to Heaven: 1/28/85
Clayton Family Child 1
Bryce Clayton
Aicardi-Goutieres Syndrome
(AGS)
Queens Creek, AZ
Born: 1/25/07
Clayton’s Quest Blog
Clayton Family Child 2
Annalise Clayton
Aicardi-Goutieres Syndrome
(AGS)
Queens Creek, AZ
Born: 5/24/09
Clayton’s Quest Facebook
Cole Family Child 1
Devon Cole
Adrenoleukodystrophy
(ALD)
Chicago, IL
Born: 12/6/97
Cole Family Child 2
Jacob Cole
Adrenoleukodystrophy
(ALD)
Chicago, IL
Born: 8/15/00
Cooley Family Child 1
Gracie Cooley
Globoid Cell Leukodystrophy
(Krabbe Disease)
Marshall, WI
Born: 6/12/00
Went to Heaven: 9/20/01
Cooley Family Child 2
Ella Grace Cooley
Globoid Cell Leukodystrophy
(Krabbe Disease)
Marshall, WI
Born: 5/11/06
Went to Heaven: 6/14/06
Cooper Family
Ashley Cooper
Globoid Cell Leukodystrophy
(Krabbe Disease)
Sun Prairie, WI
Born: 5/5/00
Went to Heaven: 11/24/01
Cousineau Family
Evan Cousineau
Adrenoleukodystrophy
(ALD)
San Clemente, CA
Born: 11/3/97
Went to Heaven: 11/2/07
Craft Family
Katelyn Craft
Globoid Cell Leukodystrophy
(Krabbe Disease)
Born: 7/4/05
Went to Heaven: 9/25/07
Katelyn’s Caring Bridge Site
Crilly Family
Carmen Crilly
Globoid Cell Leukodystrophy
(Krabbe Disease)
Toronto, ON Canada
Born: 3/2/07
Went to Heaven: 1/21/08
Cross Family Child 1
Joshua Cross
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cedar Rapids, IA
Born: 11/12/92
Went to Heaven: 2/20/95
Cross Family Child 2
Laura Cross
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cedar Rapids, IA
Born: 7/31/99
Transplant
Crowell Family
Connor Crowell
Globoid Cell Leukodystroph
(Krabbe Family)
Phoenix, AZ
Born: 3/16/16
Went to Heaven: 3/25/17
Cullen Family Child 1
Emily Cullen
Unspecified Leukodystrophy
Dixon, IL
Born: 2/16/03
Went to Heaven: 4/22/08
Cullen Family Child 2
Abigail Cullen
Unspecified Leukodystrophy
Dixon, IL
Born: 8/05/09
Went to Heaven: 3/1/13
Cunningham Family
Brady Cunningham
Globoid Cell Leukodystrophy
(Krabbe Disease)
Campbell, MO
Born: 4/16/08
Went to Heaven: 4/6/09
Cushman Family
Collin Cushman
Globoid Cell Leukodystrophy
(Krabbe Disease)
Wisconsin Rapids, WI
Born: 12/19/10
Collin’s Crew Facebook
D’Amico Family
John D’Amico
Globoid Cell Leukodystrophy
(Krabbe Disease)
Martinez, GA
Born: 10/25/99
Daigneault Family
Jasmine Daigneault
Aicardi-Goutieres Syndrome
(AGS)
St-Martine, QC Canada
Born: 5/23/97
Daniels Family Child 1
Emma Daniels
Globoid Cell Leukodystrophy
(Krabbe Disease)
Franklin Park, NJ
Born: 7/20/09
Went to Heaven: 3/24/12
Daniels Family Child 2
Olivia Daniels
Globoid Cell Leukodystrophy
(Krabbe Disease)
Franklin Park, NJ
Davis Family
Madelyn “Maddie” Davis
Globoid Cell Leukodystrophy
(Krabbe Disease)
Danville, VA
Born: 7/21/11
Went to Heaven: 2/2/13