Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


DeLaCruz Family

Abel DeLaCruz

Vanishing White Matter Disease
(Childhood ataxia with diffuse
central nervous system
hypomyelination, or CACH)

Houston, TX

Born: 5/9/09

WOF-Hannah D.

Dement Family

Hannah Dement

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pocahontas, AR

Born: 8/18/07
Went to Heaven: 8/19/08

DeRossett Family

Tygh DeRossett

Globoid Cell Leukodystrophy
(Krabbe Disease)

Puryear, TN

Born: 11/29/16
Transplant

WOF - Yannick

Dion Family Child 1

Yannick Dion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laval, QC Canada

Born: 10/4/90
Went to Heaven: 10/4/93

Dion Family Child 2

Sandrine Dion

Globoid Cell Leukodystrophy
(Krabbe Disease)

Laval, QC Canada

Born: 9/27/00
Transplant

WOF-Jaylah

Donaire-Bechtel Family

Jaylah Donaire-Bechtel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Harrisburg, PA

Born: 4/19/12
Went to Heaven: 7/27/14

WOF-Ludmina

Dotti Family

Ludmina Dotti

Globoid Cell Leukodystrophy
(Krabbe Disease)

Santa Fe, Argentina

Born: 1/13/12
Went to Heaven: 1/2/14

WOF-Jonas

Droessler Family

Jonas Droessler

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cuba City, WI

Born: 4/20/88
Went to Heaven: 9/29/90

WOF-Ellane

du Toit Family

Ellane du Toit

Globoid Cell Leukodystrophy
(Krabbe Disease)

Karen Park, South Africa

Born: 12/23/09
Went to Heaven: 7/4/11

WOF-Haley D.

Duffer Family

Haley Duffer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chase City, VA

Born: 11/26/07
Transplant
Hope For Haley Facebook

WOF-Robin

DuPerron Family

Robin DuPerron

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lincoln, NE

Born: 5/10/98
Went to Heaven: 1/19/99

WOF-Marwa E.

Elmouzayen Family

Marwa Elmouzayen

Globoid Cell Leukodystrophy
(Krabbe Disease)

El Cerrito, CA

Born: 8/13/98
Went to Heaven: 3/15/05

Evchich Family Child 1

Mason Evchich

Unspecified Leukodystrophy

Lockport, NY

Born: 5/28/13
Mason’s Mission Foundation Website

Evchich Family Child 2

Matthew Evchich

Unspecified Leukodystrophy

Lockport, NY

Born: 6/18/14

WOF-Jeramie

Eveland Family

Jeramie Eveland

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 9/27/97
Went to Heaven: 3/14/01

Faith Bear

Faith

“Faith is being sure of what we hope for
and certain of what we do not see.”
~ Hebrews 11:1

WOF-Jared

Faria Family

Jared Faria

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taunton, MA

Born: 10/17/00
Transplant

Beautiful Bear

Fearfully and Wonderfully Made

“You knit me together in my mother’s womb
I praise you because I am fearfully and wonderfully made.”
~ Psalm 139:13-14

WOF-Chloe F.

Fedorak Family Child 1

Chloe Fedorak

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Vancouver, BC Canada

Born: 2/5/01
Went to Heaven: 12/2/02

Fedorak Family Child 2

Scarlett Fedorak

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Vancouver, BC Canada

Born: 8/30/05
Transplant

WOF-Dylan Flinchum

Flinchum Family

Dylan Flinchum

Metachromatic Leukodystrophy
(MLD)

Lafayette, NJ

Born: 1/15/09

WOF-Palomita

Flores Family

Palomita Flores

Globoid Cell Leukodystrophy
(Krabbe Disease)

Surprise, AZ

Born: 11/11/11

WOF-Connor F.

Forde Family

Connor Forde

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dubai

Born: 11/8/95
Went to Heaven: 2/9/07

WOF-Frankie

Forgione Family

Frankie Forgione

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lancashire, United Kingdom

Born: 8/28/09
Went to Heaven: 1/1/11
Frankie’s Caring Bridge Site

Forman-Shifferly Family

Stephen Shifferly

Unspecified Leukodystrophy

Victoria, TX

Born: 5/28/09
Went to Heaven: 12/1/13

WOF-Mitchell

Forslind Family Child 1

Mitchell Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 9/21/99
Went to Heaven: 1/18/03

WOF-Kyle F.

Forslind Family Child 2

Kyle Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 6/25/01
Transplant

WOF-Jason

Forslind Family Child 3

Jason Forslind

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farmington, NH

Born: 11/9/03
Transplant

WOF - Tadan

Foss Family

Tadan Foss

Vanishing White Matter Disease
(Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)

Belton, MO

Born: 12/29/06
Went to Heaven: 4/26/12

Lennon - Krabbe

Foster Family

Lennon Foster

Globoid Cell Leukodystrophy
(Krabbe Disease)

Piketon, OH

Born: 4/19/17
Transplant

WOF-Anthony F.

Foster Family

Anthony Foster

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 3/9/96
Went to Heaven: 9/16/01

Hunter's Hope Bear

Fountain of Life

“For with you is the Fountain of Life;
in your light we see light.”
~ Psalm 36:9

WOF-Ava

Francisco Family

Ava Francisco

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fountain, CO

Born: 11/24/01
Went to Heaven: 9/22/02

WOF-Haley F.

Freeman Family

Haley Nicole Freeman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fort Wayne, IN

Born: 12/20/96
Went to Heaven: 4/22/98

WOF-Dylan Freeman

Freeman Family

Dylan Freeman

Alexander Disease

Salem, OH

Born: 11/20/96
Went to Heaven: 4/30/04

Hope Future Hunter Bears

Friends & Family

“I thank my God every time I remember you.”
~ Philippians 1:3

WOF-Nickolaus

Frisch Family

Nickolaus Frisch

Zellweger Spectrum: Zellweger Syndrome

Troy, NY

Born: 7/5/07
Went to Heaven: 6/7/11

WOF-Dominic

Froio Family

Dominic Froio

Globoid Cell Leukodystrophy
(Krabbe Disease)

Baltimore, MD

Born: 7/5/80
Went to Heaven: 7/3/98

WOF-Leandra

Frye Family

Leandra Frye

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brazil, IN

Born: 2/3/01
Went to Heaven: 12/28/03

WOF-Kinnari

Gala Family

Kinnari Gala

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fremont, CA

Born: 10/21/97
Went to Heaven: 3/26/01

WOF Zarely

Galindo Family Child 1

Zarely Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Whittier, CA

Born: 6/2/04
Went to Heaven: 2/26/07

Hunter's Hope Wall of Fame

Galindo Family Child 2

Faith Aleah Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/28/15
Transplant

WOF-Johnny

Galvan Family

Johnny Galvan

Adrenoleukodystrophy
(ALD)

Costa Mesa, CA

Born: 7/13/00
Went to Heaven: 2/21/17

WOF - Trevor G.

Garbe Family

Trevor Garbe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newhall, CA

Born: 9/2/89
Went to Heaven: 7/15/12

Hunter's Hope Wall of Fame

Garcia Family

Jackson Garcia

Globoid Cell Leukodystrophy
(Krabbe)

Lawrenceville, GA

Born: 8/9/15
Went to Heaven: 10/21/16

WOF-Ailene

Garcia Family

Ailene Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Puente, CA

Born: 11/2/03
Went to Heaven: 10/20/07

WOF - Victoria G.

Garcia Family Child 1

Victoria Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 7/2/03
Went to Heaven: 8/6/04

WOF-Adam G.

Garcia Family Child 2

Adam Garcia

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 12/22/10
Went to Heaven: 1/27/13

Garrison Family

Bradley Garrison

Adrenoleukodystrophy
(ALD)

Lancaster, CA

Born: 11/30/95
Went to Heaven: 7/22/17

WOF-Hailey

Gaston Family

Hailey Gaston

Unspecified Leukodystrophy

Las Vegas, NV

Born: 5/12/08