Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


WOF - Taylor

Jeffries Family

Taylor Jeffries

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newport News, VA

Born: 7/25/00

Thomas Howard Hunters Hope Wall of Fame

Jessee Howard Family

Thomas Howard

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ayden, NC

Born: 9/21/15
Went to Heaven: 7/12/17

Johnson Family

Macy Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Maryville, TN

Born: 3/14/17

WOF - Trinity

Johnson Family

Trinity Johnson

Alexander Disease

Medford, OR

Born: 2/28/01

WOF-Olivia J.

Johnson Family

Olivia Johnson

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Diego, CA

Born: 5/29/04
Went to Heaven: 10/8/09

WOF - Trevor J.

Joiner Family Child 1

Trevor Lee Joiner

Metachromatic Leukodystrophy
(MLD)

Lubbock, TX

Born: 7/27/96
Went to Heaven: 10/4/04
Trevor’s Caring Bridge Site

WOF-Ross

Joiner Family Child 2

Ross David Joiner

Metachromatic Leukodystrophy
(MLD)

Lubbock, TX

Born: 9/20/01
Went to Heaven: 2/28/04
Ross’s Caring Bridge Site

WOF-Hayden J.

Jones Family

Hayden Jones

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hendersonville, NC

Born: 1/10/06
Went to Heaven: 12/6/08

WOF-Megan P.

Jurek-Plasky Family Child 1

Megan Nicole Jurek-Plasky

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 12/8/92
Went to Heaven: 4/25/94

WOF - Tanner

Jurek-Plasky Family Child 2

Tanner James Jurek-Plasky

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 6/16/95
Went to Heaven: 11/8/96

WOF-Jacek

Kadlubowski Family

Jacek Kadlubowski

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gdansk, Poland

Born: 4/18/09

WOF-Kayalvizhi

Karivalavan Family

Kayalvizhi Karivalavan

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ypsilanti, MI

Born: 12/5/06
Went to Heaven: 4/21/08

WOF-Alexandria

Keene Family

Alexandria Keene

Globoid Cell Leukodystrophy
(Krabbe Disease)

Columbus, MS

Born: 10/14/91
Went to Heaven: 3/5/95

Keiser Family

Leaigha Rose-Ann Keiser

Unspecified Leukodystrophy

Quincy, MI

Born: 6/17/11
Went to Heaven: 11/2/15

WOF-Hunter K.

Kelly Family

Hunter Kelly

Globoid Cell Leukodystrophy
(Krabbe Disease)

Orchard Park, NY

Born: 2/14/97
Went to Heaven: 8/5/05
Meet Hunter

WOF-Olivia K.

Kemist Family

Olivia Kemist

Globoid Cell Leukodystrophy
(Krabbe Disease)

 

Los Altos, CA

Born: 3/4/03
Went to Heaven: 12/4/05

Kennedy Family

Oliver Kennedy

Metachromatic Leukodystrophy

Alberta, Canada

Born: 12/16/11
Went to Heaven: 9/10/17

WOF-Kian

King-Otter Family Child 1

Kian King

Globoid Cell Leukodystrophy
(Krabbe Disease)

Loughborough, UK

Born: 11/1/07
Transplant

WOF-Luis K.

King-Otter Family Child 2

Luis King

Globoid Cell Leukodystrophy
(Krabbe Disease)

Loughborogh, UK

Born: 11/1/07
Transplant

WOF-Madison K.

Klafehn Family

Madison Klafehn

Globoid Cell Leukodystrophy
(Krabbe Disease)

Denver, CO

Born: 4/19/06
Went to Heaven: 12/29/12

WOF - Travis

Klein Family Child 1

Travis Klein

Metachromatic Leukodystrophy
(MLD)

St. Louis, MO

Born: 9/23/84
Went to Heaven: 12/19/02

Klein Family Child 2

Spencer Klein

Metachromatic Leukodystrophy
(MLD)

St. Louis, MO

Born: 1/9/87
Went to Heaven: 1/21/02

WOF-Phoebe

Knibbs-Skiddy Family

Phoebe Knibbs

Globoid Cell Leukodystrophy
(Krabbe Disease)

Suffolk, United Kingdom

Born: 5/29/11
Went to Heaven: 2/23/13

WOF-Jodie

Koester Family

Jodie Koester

Globoid Cell Leukodystrophy
(Krabbe Disease)

Waterman, IL

Born: 4/18/76
Went to Heaven: 3/27/80

WOF-Nicole

Kogut Family

Nicole Caitlin Kogut

Globoid Cell Leukodystrophy
(Krabbe Disease)

Elba, NY

Born: 6/25/94
Went to Heaven: 8/16/95

Kristoff Family Child 1

Ryan Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 3/7/01
Transplant
Went to Heaven: 12/22/17

WOF-Alyssa K.

Kristoff Family Child 2

Alyssa Kristoff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Colchester, CT

Born: 7/20/04
Went to Heaven: 11/25/10

WOF-Lexie

Kruger Family

Lexie Kruger

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cape Town, South Africa

Born: 6/9/13
Went to Heaven: 3/20/14
Lexie’s Blogspot

Krupa Family

Steven Adam Krupa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sarasota, FL

Born: 9/30/94

WOF-Hunter L.

Lafe Family

Hunter Lafe

Unspecified Leukodystrophy

Claysville, PA

Born: 3/30/13
Went to Heaven: 1/31/14

Lairson Family

Samantha Marie Lairson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Springboro, OH

Born: 8/3/95
Went to Heaven: 7/16/96

Landsman Family Child 1

Benny Landsman

Canavan Disease

Brooklyn, NY

Born: 6/27/16

Landsman Family Child 2

Josh Landsman

Canavan Disease

Brooklyn, NY

Born: 7/16/17

LaVictoire Family

Lauren LaVictoire

H-ABC
(Hypomyelination with Atrophy of the Basal Ganglia and Cerebellum)

Ontario, Canada

Born: 12/12/12
Went to Heaven: 11/3/16

WOF-Madison L.

Layton Family

Madison Layton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson Center, OH

Born: 7/11/12
Went to Heaven: 6/22/2014

WOF - Trevor L.

Leeker Family

Trevor Leeker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wellsville, KS

Born: 5/14/99
Went to Heaven: 2/17/01

WOF-Jack L.

Leonard Family

Jack Leonard

Pelizaeus Merzbacher Disease
(X-Linked Spastic Paraplegia)

Robbinsville, NJ

Born: 3/9/00
Went to Heaven: 6/20/15

WOF-Judson L.

Levasheff Family

Judson Levasheff

Globoid Cell Leukodystrophy
(Krabbe Disease)

Irvine, CA

Born: 12/24/04
Went to Heaven: 11/7/07
Judson’s Legacy

WOF-Eleni

Levidis Family

Eleni Levidis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Macungie, PA

Born: 4/26/93
Went to Heaven: 3/1/01

WOF-Ledger

Lewis Family

Ledger Lewis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mt. Pleasant, UT

Born: 1/2/14
Went to Heaven: 9/18/14

Lewis Family

Cory Lewis

Metachromatic Leukodystrophy
(MLD)

Moores Hill, IN

Born: 9/12/96
Transplant

Lindsey-Minnick Family

Dalton Minnick

Adrenoleukodystrophy
(ALD)

Evansville, IN

Born: 12/1/05
Went to Heaven: 12/13/16

 

WOF-Jasper

Lipe Family

Jasper Lipe

Metachromatic Leukodystrophy
(MLD)

Chicago, IL

Born: 4/11/05
Went to Heaven: 2/23/13

WOF-Jericho

Little Family

Jericho “Chase” Little

Adrenoleukodystrophy
(ALD)

Rocky Ford, GA

Born: 5/12/00
Went to Heaven: 1/3/14

WOF - Victoria L.

Lockhart Family

Victoria Lockhart

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Bay, AL

Born: 9/19/97
Transplant

WOF-Hadley

Lorg-Luse Family

Hadley Lorg

Globoid Cell Leukodystrophy
(Krabbe Disease)

Oklahoma City, OK

Born: 6/30/04
Went to Heaven: 8/28/15

WOF-Lauren L.

Loughheed Family

Lauren Loughheed

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaconsfield, QC Canada

Born: 1/08/11
Went to Heaven: 4/13/15
Life with Lauren

Lola - Krabbe

Louter Family

Lola Louter

Globoid Cell Leukodystrophy
(Krabbe Disease)

West Palm Beach, FL

Born: 2/20/16
Went to Heaven: 3/19/17

Bear Love Endures

Love

“Love always protects, always trusts,
always hopes, always perseveres.”
~ 1 Corinthians 13:7

Bear Love Endures

Love Endures

“I trust in Your unfailing love; my heart rejoices in your salvation.”
~ Psalm 13:5