Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


Hunter's Hope WOF Marty Luczak

Luczak Family

Marty Luczak

Adrenomyeloneuropathy
(AMN)

Lockport, NY

Born: 6/30/71

WOF-Jackson L.

Lundblad Family

Jackson Lundblad

Globoid Cell Leukodystrophy
(Krabbe Disease)

Carlsbad, CA

Born: 12/14/06
Went to Heaven: 1/28/08

WOF-Emerson

Lyle Family

Emerson Lyle

Metachromatic Leukodystrophy
(MLD)

Lockesburg, AR

Born: 3/23/09
Transplant

WOF-Jack Macpherson

Macpherson Family

Jack Macpherson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Argyll & Bute, Scotland

Born: 7/28/06
Went to Heaven: 4/29/08
Jack’s Caring Bridge Site

Hunter's Hope WOF Jase Main

Main Family

Jase Main

Globoid Cell Leukodystrophy
(Krabbe Disease)

Edmore, MI

Born: 11/12/14
Went to Heaven: 12/20/17

WOF-Morgan

Malfara Family

Morgan Malfara

Aicardi-Goutieres Syndrome
(AGS)

Melbourne Beach, FL

Born: 10/22/97
The Morgan Project

WOF-Gabriella

Manzo Family

Gabriella Paige Manzo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Howard Beach, NY

Born: 8/4/97
Went to Heaven: 4/8/15

Markel-Lapine Family Child 1

Steven Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 8/13/05
Went to Heaven: 3/5/07

WOF-Alilia

Markel-Lapine Family Child 2

Alilia Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 11/11/08
Went to Heaven: 12/23/08

WOF-Lexus

Marsh Family

Lexus Marsh

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mio, MI

Born: 9/10/02
Transplant

WOF-Ethan M.

Marshall Family

Ethan Marshall

Zellweger Syndrome

Decatur, IL

Born: 7/23/10

WOF-Austin

Martin Family

Austin Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Monroe, GA

Born: 4/4/94
Went to Heaven: 3/13/96

WOF - Troy

Martin Family

Troy Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mount Airy, NC

Born: 7/27/92
Went to Heaven: 12/6/93

WOF-Alexa

Martinez Family

Alexa Martinez

Globoid Cell Leukodystrophy
(Krabbe Disease)

San Antonio, TX

Born: 12/3/91
Went to Heaven: 9/21/92

Martinez-Galindo Family

Marcus Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Pryor, TX

Born: 5/18/09
Transplant

Martinez-Galindo Family

Mariah Galindo

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Pryor, TX

Born: 5/22/11
Transplant

WOF-Anthony Mattina

Mattina Family Child 1

Anthony Mattina

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wyandotte, MI

Born: 12/27/01
Went to Heaven: 3/20/04

Hunter's Hope Wall of Fame

Mattina Family Child 2

Marcus Mattina

Globoid Cell Leukodystrophy
(Krabbe Disease)

Wyandotte, MI

Born: 8/28/08
Transplant

WOF-Dylan Maubach

Maubach Family

Dylan Maubach

Globoid Cell Leukodystrophy
(Krabbe Disease)

Washington, IL

Born: 7/29/11
Went to Heaven: 11/11/14

WOF-Ethan M.

Maughan Family Child 1

Ethan Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 8/23/97
Went to Heaven: 10/10/00

WOF-Montgomery

Maughan Family Child 2

Montgomery “Gummy” Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 7/10/08
Went to Heaven: 2/3/13

Maughan Family Child 3

Tabitha Maughan

Metachromatic Leukodystrophy
(MLD)

Peoria, AZ

Born: 10/30/03
Transplant

WOF-Dylan May

May Family

Dylan May

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin, TN

Born: 1/16/04
Went to Heaven: 1/6/09
Dylan’s Family Website

WOF - Tyler M.

Mcadams-Allen Family

Tyler Mcadams

Metachromatic Leukodystrophy
(MLD)

Albuquerque, NM

Born: 9/24/03
Transplant

WOF-Jack Mccall

Mccall Family

Jack Mccall

Adrenoleukodystrophy
(ALD)

Cutler Bay, FL

Born: 2/15/00

WOF-Christopher M.

McClure Family

Christopher McClure

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 7/5/89
Went to Heaven: 5/31/90

WOF-Olivia M.

McCormick Family

Olivia McCormick

Globoid Cell Leukodystrophy
(Krabbe Disease)

Taneytown, MD

Born: 8/5/01
Went to Heaven: 3/30/02

WOF-Casey

Mccurry Family

Casey Mccurry

Globoid Cell Leukodystrophy
(Krabbe Disease)

Longdonderry, Ireland

Born: 12/3/07

WOF-Emma M.

McGregor-Goodrich Family

Emma McGregor

Metachromatic Leukodystrophy
(MLD)

Walnut Creek, CA

Born: 7/3/95
Transplant
Emma’s Foundation

McNamara-Williams Family

Autumn Williams

Globoid Cell Leukodystrophy
(Krabbe Disease)

Santa Rosa, CA

Born: 8/3/16
Went to Heaven: 12/8/17

WOF-Kathleen

McNichol Family

Kathleen Ann McNichol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Havertown, PA

Born: 1/18/70
Went to Heaven: 2/17/71

Measles Family

Scarlett Measles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Pikeville, TN

Born: 6/6/79
Transplant

Menditto-Giliberti Family

Alessandro Giliberti

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rome, Italy

Born: 4/20/15

 

WOF-Jackson Messerschmidt

Messerschmidt Family

Jackson Messerschmidt

Unspecified Leukodystrophy

Spokane, WA

Born: 10/28/11
Went to Heaven: 2/23/15

WOF-Josh D.

Meyer Family

Josh Denzil Meyer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dalton, South Africa

Born: 6/3/13
Went to Heaven: 3/24/14

WOF-Abigail M.

Middleton Family

Abigail Middleton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gauteng, South Africa

Born: 1/18/13
Went to Heaven: 1/30/14

WOF-Anthony Middleton

Middleton-Snider Family Child 1

Anthony Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 3/15/99
Went to Heaven: 3/24/11

WOF-Jackie Middleton

Middleton-Snider Family Child 2

Jackie Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 4/11/01
Transplant

WOF-DeJay

Middleton-Snider Family Child 3

DeJay Middleton

Adrenoleukodystrophy
(ALD)

Durham, NC

Born: 6/28/03
Transplant

WOF-Noa

Milego Family

Noa Milego

Globoid Cell Leukodystrophy
(Krabbe Disease)

Vigo, Spain

Born: 10/29/09
Went to Heaven: 3/24/11

WOF-Megan M.

Miles Family Child 1

Megan Miles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Junction, CO

Born: 10/28/97
Went to Heaven: 8/8/00

Hunter's Hope Wall of Fame

Miles Family Child 2

Degan Cain Miles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Grand Junction, CO

Born: 6/8/03
Transplant

WOF-Logan M.

Miller Family

Logan Miller

Adrenoleukodystrophy
(ALD)

Bellwood, PA
Born: 1/23/02
Logan’s Caring Bridge Site

Miller Family

Branden Miller

Globoid Cell Leukodystrophy
(Krabbe Disease)

La Salle, MB Canada

Born: 10/31/04
Went to Heaven: 8/27/17

WOF Jackson Miller affect by PMD

Miller Family

Jackson Miller

Pelizaeus Merzbacher Disease
(X-linked spastic paraplegia)

Smithburg, MD

Born: 10/28/12
Joy In Jack’s Journey Facebook

WOF-Airionna

Mills Family

Airionna Mills

Globoid Cell Leukodystrophy
(Krabbe Disease)

Jackson, TN

Born: 12/23/03
Went to Heaven: 5/24/08

WOF-Makinley

Mills Family

Makinley Mills

Globoid Cell Leukodystrophy
(Krabbe Disease)

Garner, IA

Born: 9/19/06
Went to Heaven: 12/22/07

WOF-Daniel M.

Mogavero Family

Daniel Mogavero

Adrenoleukodystrophy
(ALD)

Cheektowaga, NY

Born: 10/10/04
Transplant

WOF Zander Mohr

Mohr Family

Zander Mohr

Globoid Cell Leukodystrophy
(Krabbe Disease)

Erie, PA

Born: 6/20/14
Went to Heaven: 8/29/16

WOF Charles Moody

Moody Family

Charles Moody

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mesa, AZ

Born: 2/27/15
Went to Heaven: 6/27/16