Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


WOF-Raegan

Moore Family Child 1

Raegan Moore

Globoid Cell Leukodystrophy
(Krabbe Disease)

Atlantic, IA

Born: 6/22/02
Went to Heaven: 2/1/04

Zoey

Moore Family Child 2

Zoey Moore

Globoid Cell Leukodystrophy
(Krabbe Disease)

Atlantic, IA

Born: 7/15/05
Transplant

WOF-Connor M.

Moreland Family

Connor Moreland

Globoid Cell Leukodystrophy
(Krabbe Disease)

Greensburg, PA

Born: 8/27/08
Went to Heaven: 8/21/16

Caoilainn - Krabbe

Morgan O’Donnell Family

Caoilainn O’Donnell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Hemet, CA

Born: 7/20/14
Went to Heaven: 5/15/17

Morris Family

Zane Morris

Pelizaeus Merzbacher Disease (X-linked spastic paraplegia)

Fort Bragg, NC

Born: 8/21/13

WOF-Greyson M.

Morris Family

Greyson Morris

Globoid Cell Leukodystrophy
(Krabbe Disease)

Canyon Lake, TX

Born: 12/18/07
Went to Heaven: 12/12/08
Grey’s Gift

WOF-Jonathan

Morris Family Child 1

Jonathan Morris

Adrenoleukodystrophy
(ALD)

Gloucester, NC

Born: 2/14/95
Went to Heaven: 4/15/12

WOF-Matthew M.

Morris Family Child 2

Matthew Morris

Adrenoleukodystrophy
(ALD)

Gloucester, NC

Born: 2/14/95
Transplant

Morse Family

Grayson Morse

Globoid Cell Leukodystrophy
(Krabbe)

Boise, ID

Born: 10/30/15
https://www.facebook.com/graysonssmile/

WOF-Daphne

Munishvaran Family

Daphne Munishvaran

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durban, South Africa

Born: 6/19/96
Went to Heaven: 5/13/06

WOF-Kyle M.

Murphy Family

Kyle Murphy

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 11/21/97
Went to Heaven: 7/28/98

WOF-Kendra

Murray Family

Kendra Murray

Unspecified Leukodystrophy

Sunnyside, WA

Born: 11/12/09
Went to Heaven: 11/18/12

WOF-Chance

Myerscough Family

Chance Myerscough

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brantford, ON Canada

Born: 5/18/01
Went to Heaven: 11/16/10
Chance’s CaringBridge Site

Beautiful Bear

NBS Bears Psalm 23:4

“Even if I walk through a valley, I will not be afraid, because you are with me.”
~Psalm 23:4

WOF-Kaitlin

Nelkie Family

Kaitlin Nelkie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mc Cordsville, IN

Born: 6/7/05
Went to Heaven: 8/18/06

Hunter Bears

Newborn Screening

“For I am the Lord, your God, who takes hold of your right hand and says to you, “do not fear; I will help you.” ~ Isaiah 41:13

Hunter's Hope Wall of Fame

Nichols-Jenkins Family

Logan Nichols

Globoid Cell Leukodystrophy
(Krabbe)

Chicago, IL

Born: 3/10/15
Went to Heaven: 6/20/17

WOF-Emma N.

Nickerson Family

Emma Nickerson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Carey, OH

Born: 2/8/12
Transplant

WOF-Lucas N.

Nims Family

Lucas Nims

Globoid Cell Leukodystrophy
(Krabbe Disease)

Satsuma, AL

Born: 4/15/99
Went to Heaven: 8/24/13

WOF-Marshall N.

Nivens Family

Marshall Nivens

Adrenoleukodystrophy
(ALD)

Stanley, NC

Born: 9/19/01
Transplant

WOF-Logan N.

Nobis Family

Logan Nobis

Metachromatic Leukodystrophy
(MLD)

Exeter, IL

Born: 1/1/04
Went to Heaven: 9/24/16

Nocera Family

Ryan Nocera

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mendon, MA

Born: 6/4/02
Went to Heaven: 6/6/05

Hunter's Hope Wall of Fame

O’Boyle Family

Michael O’Boyle

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rocky River, OH

Born: 7/4/09
Transplant

WOF-Matthew T.

O’Brien Family

Matthew Thomas O’Brien

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dousman, WI

Born: 9/9/10
Went to Heaven: 2/2/13

Hunter's Hope Wall of Fame

O’Hanlon Family

Maxwell O’Hanlon

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tewksbury, MA

Born: 11/21/14
Went to Heaven: 5/22/16

WOF-Connor O.

O’Keefe Family

Connor O’Keefe

4H Syndrome

Gibsonton, FL

Born: 9/29/00

Ochoa Family

Sophia Ochoa

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chino, CA

Born: 11/4/13
Went to Heaven: 2/19/15

WOF - Wally

Ordoyne Family

Wally Ordoyne

Globoid Cell Leukodystrophy
(Krabbe Disease)

Thibodaux, LA

Born: 11/29/79

WOF-Eric

Osman Family Child 1

Eric Osman

Adrenoleukodystrophy
(ALD)

Falls Church, VA

Born: 10/26/00
Went to Heaven: 10/25/09

WOF-Jacob O.

Osman Family Child 2

Jacob Osman

Adrenoleukodystrophy
(ALD)

Falls Church, VA

Born: 7/15/04
Went to Heaven: 9/1/12

WOF-Jack P.

Palamaro Family

Jack Palamaro

Globoid Cell Leukodystrophy
(Krabbe Disease)

Concord, CA

Born: 8/14/01
Transplant

WOF-Naeva

Paquette Family

Naeva Paquette

Globoid Cell Leukodystrophy
(Krabbe Disease)

Granby, QC Canada

Born: 9/16/11
Went to Heaven: 2/23/13
Naeva’s Facebook

WOF-Jaymie

Parke Family

Jaymie Leigh Parke

Globoid Cell Leukodystrophy
(Krabbe Disease)

Westmidlands, UK

Born: 9/9/99
Went to Heaven: 3/8/01

Hunter's Hope Wall of Fame

Patil Family

Devashree Patil

Globoid Cell Leukodystrophy
(Krabbe Disease)

Osmanabad, India

Born: 7/4/15
Went to Heaven: 8/7/16

 

WOF-Judson P.

Peacock Family

Judson Peacock

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaumont, TX

Born: 1/5/98
Went to Heaven: 10/16/98

Phillipy Family

Massimo Phillipy

Adrenoleukodystrophy
(ALD)

Cliffside Park, NJ

Born: 7/31/01

Massimo’s CaringBridge Website

WOF-Angela

Pitra Family

Angela Pitra

Globoid Cell Leukodystrophy
(Krabbe Disease)

Downers Grove, IL

Born: 12/26/97
Went to Heaven: 11/11/98

WOF-Freddie

Place Family

Freddie Place

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bow, NH

Born: 11/25/98
Went to Heaven: 10/29/99

Plans

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11

Ponce Family

Hayden Ponce

Globoid Cell Leukodsytrophy
(Krabbe)

Coal Valley, IL

Born: 1/26/17
Went to Heaven: 9/25/17

WOF-Liviana

Price Family Child 1

Liviana Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/18/08
Went to Heaven: 9/26/13
Liviana’s Journey

HOF-Giovanni P.

Price Family Child 2

Giovanni Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/16/10

Hunter's Hope Wall of Fame

Price Family Child 3

Cecilia Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 2/13/14

WOF-Noah

Prichard Family

Noah Prichard

Globoid Cell Leukodystrophy
(Krabbe Disease)

DuPont, WA

Born: 9/16/02
Went to Heaven: 10/7/03

WOF-Michael R.

Ramos Family

Michael “Mikey” Ramos Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Woodstown, NJ

Born: 11/12/98
Went to Heaven: 4/15/2014

Ramsey-Payton Family

Michael Ramsey, Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Meridian, MS

Born: 4/25/06

WOF-Max

Randell Family

Max Randell

Canavan Disease

Buffalo Grove, IL

WOF-Chandler

Raney Family

Chandler Raney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Indianapolis, IN

Born: 11/1/98
Went to Heaven: 12/5/00

WOF-Katalina

Ranken Family

Katalina Ranken

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sewell, NJ

Born: 7/19/02

WOF Kevin Rauner Affected by ALD

Rauner Family

Kevin Rauner

Adrenoleukodystrophy
(ALD)

Lincoln, NB

Born: 9/10/82
Went to Heaven: 10/8/03