Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


WOF-Katarina

Ravnjak Family

Katarina Ravnjak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Slovenia

Born: 10/26/97
Went to Heaven: 2/6/03

Matevz Tislar

Rebol Family

Matevz Rebol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mokronog, Slovenia

Born: 3/17/10
Went to Heaven: 3/29/13

WOF-Christopher R.

Riegel Family

Christopher Riegel

Metachromatic Leukodystrophy
(MLD)

Saginaw, MI

Born: 11/29/05
Went to Heaven: 4/5/11

Hunter's Hope Wall of Fame

Rivera Family Child 1

Randy Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 12/4/96
Went to Heaven: 2/28/10

Hunter's Hope Wall of Fame

Rivera Family Child 2

Yury Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 10/12/07
Went to Heaven: 5/31/16

WOF-Joseph

Robinson Family

Joseph Robinson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lansing, MI

Born: 9/12/96
Went to Heaven: 4/4/98

WOF-Elmer

Rodriquez Family

Elmer Bonilla Rodriquez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 3/4/07
Transplant

WOF-Dina

Rogers Family Child 1

Dina Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 9/27/72
Went to Heaven: 2/19/74

WOF-Amanda

Rogers Family Child 2

Amanda Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 2/3/78
Went to Heaven: 10/30/78

WOF-Nicholas R.

Rugari Family Child 1

Nicholas Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 5/16/86
Went to Heaven: 5/19/87

WOF-Gina

Rugari Family Child 2

Gina Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 12/23/99
Went to Heaven: 6/22/15

WOF-AJ

Rushe Family

AJ Rushe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Preston, UK

Born: 11/12/13
Went to Heaven: 1/31/15

WOF-Courtney

Rutherford Family

Courtney Rutherford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uniontown, PA

Born: 9/25/96
Went to Heaven: 4/23/00

Hunter's Hope Wall of Fame

Sain Family

Sophia Sain

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kannapolis, NC

Born: 5/10/15
Went to Heaven: 4/7/16

WOF-Jasline

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant

WOF-Christian S.

Santucci Family

Christian Sanctucci

4H Syndrome

Fairlawn, NJ

Born: 6/30/07

WOF-Jimmy

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/2013

WOF-Mason S.

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

WOF-Blaine

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

WOF-Jacquelyn

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

Delilah - Krabbe

Searle Family

Delilah Karen Wade

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tunbridge Wells, United Kingdom

Born: 11/2/15
Went to Heaven: 10/21/16

WOF-Haley S.

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

WOF-Jhyrve

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/8/87
Transplant

Hunter's Hope Wall of Fame

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Hunter's Hope Wall of Fame

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant

Hunter's Hope Wall of Fame

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

WOF-Melina

Sevilla Family

Melina Sevilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Neenah, WI

Born: 7/7/01
Went to Heaven: 4/12/02

WOF-Emma S.

Sharp Family

Emma Sharp

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alexandria, Scotland

Born: 7/16/11
Went to Heaven: 4/16/13

WOF-Anthony Shell

Shell-Greene Family Child 1

Anthony Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 1/22/88
Went to Heaven: 2/21/89

Hunter's Hope Wall of Fame

Shell-Greene Family Child 2

Dalton Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 10/3/96
Transplant

Shelton Family

Lana Shelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Riverside, IL

Born: 7/4/16

https://www.facebook.com/groups/1157144810987597/

WOF-Matthew S.

Shilling Family

Matthew Shilling

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farwell, MI

Born: 11/17/88
Went to Heaven: 12/23/06

Hunter's Hope Wall of Fame

Shoemaker Family

Parker Shoemaker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunkirk, MD

Born: 11/9/14
Went to Heaven: 9/14/15

Hunter's Hope Wall of Fame

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010

WOF-Christopher S.

Silbernagel-Frazier Family

Christopher Silbernagel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Culver, OR

Born: 6/6/76
Went to Heaven: 5/18/77

WOF-Katherine

Simmons Family

Katherine Rose Simmons

Canavan Disease

Orange Park, FL

Born: 1/28/97
Went to Heaven: 3/6/08

WOF-Jennifer

Sluis Family

Jennifer Sluis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tinley Park, IL

Born: 1/1/89
Went to Heaven: 9/9/05

WOF-Erin

Smallwood Family

Erin Smallwood

Globoid Cell Leukodystrophy
(Krabbe Disease)

Conway, AR

Born: 1/1/09
Went to Heaven: 3/15/10

WOF-Camden

Smith Family

Camden Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seattle, WA

Born: 3/15/06
Went to Heaven: 12/30/07

WOF-Anthony Smith

Smith Family

Anthony Smith

Adrenoleukodystrophy
(ALD)

Charlotte, NC

Born: 7/20/70
Went to Heaven: 4/22/12

Smith Family

Rufus Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Somerset, United Kingdom

Born: 4/22/08
Went to Heaven: 2/8/09

Hunter's Hope Wall of Fame

Smith Family

Lillian Grace Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leonardtown, MD

Born: 9/26/11
Transplant

Bear with Tears

Songs of Joy

“Those who sow in Tears will reap with songs of Joy.”
~ Psalm 126:5

WOF-Jacob S.

Sontag Family

Jacob Sontag

Canavan Disease

Harrison, NY

Born: 2/24/96
Went to Heaven: 1/18/16

WOF-Kenan

Spencer-Witczak Family

Kenan Spencer-Witczak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 2/5/11

WOF - Vanessa

Spinello Family

Vanessa Spinello

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brooklyn, NY

Born: 7/19/99
Went to Heaven: 8/23/17

Spraggins Family

Sam Spraggins

Metachromatic Leukodystrophy
(MLD)

Ponce Inlet, FL

Born: 5/17/01
Transplant
Sam’s Caring Bridge Site
Sam’s Website

WOF-Bruce

Springer Family

Bruce Springer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Charlotte, NC

Born: 10/27/66
Went to Heaven: 11/8/68

WOF-Jameson S.

St. Clair Family

Jameson St. Clair

Globoid Cell Leukodystrophy
(Krabbe Disease)

Naperville, IL

Born: 12/19/89

WOF-Kenny

Stoeckle Family

Kenny Stoeckle

Globoid Cell Leukodystrophy
(Krabbe Disease)

The Woodlands, TX

Born: 8/2/94
Went to Heaven: 11/8/96