Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.

If you are a visitor to the Wall of Fame and would like to donate to Hunter’s Hope and help us support Leukodystrophy children and their families, please click here.


WOF-Jaymie

Parke Family

Jaymie Leigh Parke

Globoid Cell Leukodystrophy
(Krabbe Disease)

Westmidlands, UK

Born: 9/9/99
Went to Heaven: 3/8/01

Hunter's Hope Wall of Fame

Patil Family

Devashree Patil

Globoid Cell Leukodystrophy
(Krabbe Disease)

Osmanabad, India

Born: 7/4/15
Went to Heaven: 8/7/16

 

Paul Family

Jeriah Paul

Vanishing White Matter

Holderness, NH

Born: 12/28/2012

WOF-Judson P.

Peacock Family

Judson Peacock

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaumont, TX

Born: 1/5/98
Went to Heaven: 10/16/98

Petersen Family

Jace Petersen

Globoid Cell Leukodystrophy
(Krabbe Disease)

Portland, MI

Born: 12/16/13
Transplant

Phillips Family

Adeline Phillips

Aicardi-Goutieres Syndrome
(AGS)

Castle Creek, NY

Born: 4/7/16

Phillipy Family

Massimo Phillipy

Adrenoleukodystrophy
(ALD)

Cliffside Park, NJ

Born: 7/31/01

Massimo’s CaringBridge Website

WOF-Angela

Pitra Family

Angela Pitra

Globoid Cell Leukodystrophy
(Krabbe Disease)

Downers Grove, IL

Born: 12/26/97
Went to Heaven: 11/11/98

WOF-Freddie

Place Family

Freddie Place

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bow, NH

Born: 11/25/98
Went to Heaven: 10/29/99

Plans

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”
~ Jeremiah 29:11

Ponce Family

Hayden Ponce

Globoid Cell Leukodsytrophy
(Krabbe)

Coal Valley, IL

Born: 1/26/17
Went to Heaven: 9/25/17

Posey Family

Corion Posey

Unspecified Leukodystrophy

Greenville, SC

Born: 1/20/05

WOF-Liviana

Price Family Child 1

Liviana Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/18/08
Went to Heaven: 9/26/13
Liviana’s Journey

HOF-Giovanni P.

Price Family Child 2

Giovanni Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 1/16/10

Hunter's Hope Wall of Fame

Price Family Child 3

Cecilia Price

Metachromatic Leukodystrophy
(MLD)

Omaha, NE

Born: 2/13/14

WOF-Noah

Prichard Family

Noah Prichard

Globoid Cell Leukodystrophy
(Krabbe Disease)

DuPont, WA

Born: 9/16/02
Went to Heaven: 10/7/03

WOF-Michael R.

Ramos Family

Michael “Mikey” Ramos Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Woodstown, NJ

Born: 11/12/98
Went to Heaven: 4/15/2014

Ramsey-Payton Family

Michael Ramsey, Jr.

Globoid Cell Leukodystrophy
(Krabbe Disease)

Meridian, MS

Born: 4/25/06

WOF-Max

Randell Family

Max Randell

Canavan Disease

Buffalo Grove, IL

WOF-Chandler

Raney Family

Chandler Raney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Indianapolis, IN

Born: 11/1/98
Went to Heaven: 12/5/00

WOF-Katalina

Ranken Family

Katalina Ranken

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sewell, NJ

Born: 7/19/02

WOF Kevin Rauner Affected by ALD

Rauner Family

Kevin Rauner

Adrenoleukodystrophy
(ALD)

Lincoln, NB

Born: 9/10/82
Went to Heaven: 10/8/03

WOF-Katarina

Ravnjak Family

Katarina Ravnjak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Slovenia

Born: 10/26/97
Went to Heaven: 2/6/03

Matevz Tislar

Rebol Family

Matevz Rebol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mokronog, Slovenia

Born: 3/17/10
Went to Heaven: 3/29/13

Rettenmeier Family (Child 1)

Staci Rettenmeier

Metachromatic Leukodystrophy
(MLD)

Hiawatha, IA

Born: 8/19/88

Heaven Date: 11/5/10

Rettenmeier Family (Child 2)

Amy Rettenmeier

Metachromatic Leukodystrophy
(MLD)

Hiawatha, IA

Born: 9/26/91

Heaven Date: 9/19/2019

WOF-Christopher R.

Riegel Family

Christopher Riegel

Metachromatic Leukodystrophy
(MLD)

Saginaw, MI

Born: 11/29/05
Went to Heaven: 4/5/11

Hunter's Hope Wall of Fame

Rivera Family Child 1

Randy Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 12/4/96
Went to Heaven: 2/28/10

Hunter's Hope Wall of Fame

Rivera Family Child 2

Yury Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 10/12/07
Went to Heaven: 5/31/16

WOF-Joseph

Robinson Family

Joseph Robinson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lansing, MI

Born: 9/12/96
Went to Heaven: 4/4/98

Rodriguez Family

Abdiel Rodriguez

Unspecified Leukodystrophy

Douglas, GA

Born: 8/13/18

WOF-Elmer

Rodriquez Family

Elmer Bonilla Rodriquez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 3/4/07
Transplant

WOF-Dina

Rogers Family Child 1

Dina Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 9/27/72
Went to Heaven: 2/19/74

WOF-Amanda

Rogers Family Child 2

Amanda Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 2/3/78
Went to Heaven: 10/30/78

Romano Family

Teagan Romano

Metachromatic Leukodystrophy
(MLD)

Elbert, CO

11/13/16

Ruchlewicz Family

Carson Ruchlewicz

Metachromatic Leukodystrophy (MLD)

Azusa, CA

Born: 3/1/16

WOF-Nicholas R.

Rugari Family Child 1

Nicholas Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 5/16/86
Went to Heaven: 5/19/87

WOF-Gina

Rugari Family Child 2

Gina Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 12/23/99
Went to Heaven: 6/22/15

Rumpe Family

Zane Rumpe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dundaga, Latvia

Born: 1/10/15

WOF-AJ

Rushe Family

AJ Rushe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Preston, UK

Born: 11/12/13
Went to Heaven: 1/31/15

WOF-Courtney

Rutherford Family

Courtney Rutherford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uniontown, PA

Born: 9/25/96
Went to Heaven: 4/23/00

Hunter's Hope Wall of Fame

Sain Family

Sophia Sain

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kannapolis, NC

Born: 5/10/15
Went to Heaven: 4/7/16

WOF-Jasline

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant

WOF-Christian S.

Santucci Family

Christian Sanctucci

4H Syndrome

Fairlawn, NJ

Born: 6/30/07

Scheibe Family

Josiah Scheibe

Undiagnosed Leukodystrophy

Norristown, PA

Born: 10/27/18

WOF-Jimmy

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/2013

WOF-Mason S.

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

WOF-Blaine

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

WOF-Jacquelyn

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

Delilah - Krabbe

Searle Family

Delilah Karen Wade

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tunbridge Wells, United Kingdom

Born: 11/2/15
Went to Heaven: 10/21/16