Welcome to the Leukodystrophy Wall of Fame.

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.

If you are a family affected by a Leukodystrophy and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.


Hunter's Hope Wall of Fame

Stroup Family

Johanna “JoJo” Stroup

Metachromatic Leukodystrophy
(MLD)

Port Republic, MD

Born: 7/9/2009
Transplant

WOF-James

Sturtevant Family

James Sturtevant

Adrenoleukodystrophy
(ALD)

Claremont, NH

Born: 6/7/91
Went to Heaven: 11/1/13

WOF-Reesa S.

Stutzman Family

Reesa Stutzman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsdale, AZ

Born: 7/30/11
Baby Reesa’s Website

WOF-Evie

Sugden Family

Evie Sugden

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brafferton, United Kingdom

Born: 2/21/01
Went to Heaven: 1/21/02

WOF-Darcee

Suhr Family Child 1

Darcee Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 6/28/85
Went to Heaven: 12/16/95

WOF-Lindy

Suhr Family Child 2

Lindy Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 9/21/1980

Mika Aaron

Summers Family

Mika Summers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsboro, AL

Born: 9/9/96
Went to Heaven: 3/26/97

WOF-Adithya

Sunilkumar Family

Adithya Sunilkumar

Globoid Cell Leukodystrophy
(Krabbe Disease)

Calicut, India

Born: 8/29/02

WOF-David

Suppan Family Child 1

David Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 3/12/96
Went to Heaven: 10/8/06

Suppan Family Child 2

Sean Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 10/25/04
Transplant
Sean Suppan’s Website

WOF-Miraiya

Sutkay Family

Miraiya Sutkay

Unspecified Leukodystrophy

Flint, MI

Born: 12/26/12

WOF-Aminah

Syed Family

Aminah Syed

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bridgeview, IL

Born: 10/23/98
Went to Heaven: 7/2/01

WOF-Jayden

Taylor Family

Jayden Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Philadelphia, PA

Born: 8/26/07
Went to Heaven: 12/27/08

WOF-Jaden

Taylor Family

Jaden Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Buffton, SC

Born: 6/25/07
Went to Heaven: 3/4/08

WOF-Anna T.

Taylor Family

Anna Taylor

Globoid Cell Leukodystrophy
(Krabbe Disease)

Beaver Dam, KY

Born: 4/28/13
Went to Heaven: 4/2/15

Bear with Tears

Tears

“You are my hiding place; you will protect me from
trouble and surround me with songs of deliverance.”
~ Psalm 32:7

Faith Bear

The Lord your God

“The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing.”
~ Zephaniah 3:17

WOF - Tenley

Thompson Family

Tenley Thompson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Penncock, MN

Born: 5/7/10
Went to Heaven: 10/30/17

WOF-Jeremy

Thoms Family

Jeremy Thoms

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eau Claire, WI

Born: 10/19/00
Transplant

WOF-Madison T.

Tierney Family

Madison Tierney

Globoid Cell Leukodystrophy
(Krabbe Disease)

Fairmont, WV

Born: 5/31/04
Transplant

WOF-Michael T.

Town Family

Michael Town

Globoid Cell Leukodystrophy
(Krabbe Disease)

Spring Lake Park, MN

Born: 10/29/94
Went to Heaven: 6/5/05

WOF-Max T.

Trimper Family Child 1

Max Trimper

Metachromatic Leukodystrophy
(MLD)

Stanton, MI

Born: 4/29/95
Transplant

WOF-Maddie

Trimper Family Child 2

Maddie Trimper

Metachromatic Leukodystrophy
(MLD)

Stanton, MI

Born: 1/17/98
Went to Heaven: 11/7/05

Trimper Family Child 3

Sam Trimper

Metachromatic Leukodystrophy
(MLD)

Stanton, MI

Born: 6/14/99
Transplant

WOF-Corbin

Troia Family Child 1

Corbin Troia

Metachromatic Leukodystrophy
(MLD)

McConnellsburg, PA

Born: 1/19/08
Went to Heaven: 3/14/15

WOF-Alyssa T.

Troia Family Child 2

Alyssa Troia

Metachromatic Leukodystrophy
(MLD)

McConnellsburg, PA

Born: 6/4/10
Went to Heaven: 10/30/11

Hunter Bear

Trust in the Lord

“Trust in the Lord with ALL your heart, and lean not on your own understanding…”
~ Proverbs 3:5

Uresti Family

Samuel Uresti

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uruapan, Mexico

Born: 1/28/10
Went to Heaven: 8/11/13

WOF-Luciano

Uribe Family

Luciano Uribe

Adrenoleukodystrophy
(ALD)

Danbury, CT

Born: 2/10/09

WOF-Jody

Vance Family

Jody Vance

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Liberty, IA

Born: 2/2/85
Went to Heaven: 4/25/11

WOF-Gabriel

Vasquez Family

Gabriel Jimenez Vasquez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Monterrey Nuevo Leon, Mexico

Born: 3/30/10
Went to Heaven: 7/21/13

WOF-Lisa

Vaughan Family

Lisa Ellen Vaughan

Globoid Cell Leukodystrophy
(Krabbe Disease)

Williamsville, NY

Born: 6/14/56
Went to Heaven: 7/23/58

WOF-Aaron V.

Viglianco Family Child 1

Aaron Viglianco

Globoid Cell Leukodystrophy (Krabbe Disease)

Nutter Fort, WV

Born: 10/28/84
Transplant

WOF-Erica

Viglianco Family Child 2

Erica Viglianco

Globoid Cell Leukodystrophy (Krabbe Disease)

Nutter Fort, WV

Born: 9/22/79

WOF - William V.

Viglianco Family Child 3

William Viglianco

Globoid Cell Leukodystrophy (Krabbe Disease)

Nutter Fort, WV

Born: 3/20/86

WOF-Nicholas V.

Villalobos Family

Nicholas Villalobos

Globoid Cell Leukodystrophy
(Krabbe Disease)

Trenton, NJ
Born: 8/29/99
Went to Heaven: 6/1/10
Nicholas’s Caring Bridge Site

WOF-Lucas V.

Viscomi Family

Lucas Viscomi

Metachromatic Leukodystrophy
(MLD)

Eatontown, NJ

Born: 5/13/99
Went to Heaven: 5/21/13

WOF-Emily W.

Wagner Family

Emily Rose Wagner

Unspecified Leukodystrophy

Oxford, MA

Born: 8/21/12

WOF-Eli

Wagner Family

Eli Wagner

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bridgeport, WV

Born: 12/13/01
Transplant

WOF-Rachelle

Wallace Family

Rachelle Wallace

Globoid Cell Leukodystrophy
(Krabbe Disease)

Sidney, Ohio

Born: 4/18/01
Transplant

Wallace Family

Jackson Wallace

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rhome, TX

Born: 4/18/13
Went to Heaven: 7/4/16

WOF-Brittany

Walters Family

Brittany Walters

Globoid Cell Leukodystrophy
(Krabbe Disease)

Radcliff, KY

Born: 10/6/01
Went to Heaven: 8/20/02

WOF-Gemma

Ward Family

Gemma Rose Ward

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bailey, MS

Born: 9/3/13
Gemma’s Krabbe Journey

WOF-Michael Warechowski

Warechowski Family

Michael Warechowski

Metachromatic Leukodystrophy
(MLD)

Marietta, GA

Born: 4/30/10
Michael’s Website

WOF-Candise

Watson-Winkler Family Child 1

Candise Watson

Metachromatic Leukodystrophy
(MLD)

Greenville, SC

Born: 6/16/03
Went to Heaven: 1/21/13

WOF-Katie

Watson-Winkler Family Child 2

Katie Watson

Metachromatic Leukodystrophy
(MLD)

Greenville, SC

Born: 1/10/06
Went to Heaven: 1/5/15

WOF-Lucas W.

Webb Family (KY) Child 1

Lucas Webb

Metachromatic Leukodystrophy
(MLD)

Louisville, KY

Born: 9/5/08
Went to Heaven: 3/2/10

WOF - Thomas W.

Webb Family (KY) Child 2

Thomas Webb

Metachromatic Leukodystrophy
(MLD)

Louisville, KY

Born: 12/22/06
Went to Heaven: 9/20/14

WOF-Mabry Kate

Webb Family (TN) Child 1

Mabry Kate Webb

Globoid Cell Leukodystrophy
(Krabbe Disease)

Powell, TN

Born: 3/13/14
Went to Heaven: 2/7/15
Miracles for Mabry Kate and Owen Facebook
Team MKO Blog

Hunter's Hope Wall of Fame

Webb Family (TN) Child 2

Owen Baxter Webb

Globoid Cell Leukodystrophy
(Krabbe Disease)

Powell, TN

Born: 3/30/15
Transplant
Miracles for Mabry Kate and Owen Facebook
Team MKO Blog