Welcome to our Wall of Fame for Children

Hundreds of families with sick children have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their special children.

If you are a family with a sick child and would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.

If you are a visitor to the Wall of Fame and would like to donate to Hunter’s Hope and help us support Leukodystrophy children and their families, please click here.


WOF-Jasline

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant

WOF-Christian S.

Santucci Family

Christian Santucci

4H Syndrome

Fair Lawn, NJ

Born: 6/30/07

Scheibe Family

Josiah Scheibe

Unspecified Leukodystrophy

Norristown, PA

Born: 10/27/18

WOF-Jimmy

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/13

WOF-Mason S.

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

WOF-Blaine

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

WOF-Jacquelyn

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

Delilah - Krabbe

Searle Family

Delilah Karen Wade

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tunbridge Wells, United Kingdom

Born: 11/2/15
Went to Heaven: 10/21/16

WOF-Haley S.

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

WOF-Jhyrve

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/8/87
Transplant

Hunter's Hope Wall of Fame

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Hunter's Hope Wall of Fame

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant

Hunter's Hope Wall of Fame

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

WOF-Melina

Sevilla Family

Melina Sevilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Neenah, WI

Born: 7/7/01
Went to Heaven: 4/12/02

WOF-Emma S.

Sharp Family

Emma Sharp

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alexandria, Scotland

Born: 7/16/11
Went to Heaven: 4/16/13

WOF-Anthony Shell

Shell-Greene Family Child 1

Anthony Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 1/22/88
Went to Heaven: 2/21/89

Hunter's Hope Wall of Fame

Shell-Greene Family Child 2

Dalton Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 10/3/96
Went to Heaven: 6/25/18
Transplant

Shelton Family

Lana Shelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Riverside, IL

Born: 7/4/16
Went to Heaven: 12/31/17

https://www.facebook.com/groups/1157144810987597/

WOF-Matthew S.

Shilling Family

Matthew Shilling

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farwell, MI

Born: 11/17/88
Went to Heaven: 12/23/06

Hunter's Hope Wall of Fame

Shoemaker Family

Parker Shoemaker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunkirk, MD

Born: 11/9/14
Went to Heaven: 9/14/15

Hunter's Hope Wall of Fame

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010

WOF-Christopher S.

Silbernagel-Frazier Family

Christopher Silbernagel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Culver, OR

Born: 6/6/76
Went to Heaven: 5/18/77

WOF-Katherine

Simmons Family

Katherine Rose Simmons

Canavan Disease

Orange Park, FL

Born: 1/28/97
Went to Heaven: 3/6/08

WOF-Jennifer

Sluis Family

Jennifer Sluis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tinley Park, IL

Born: 1/1/89
Went to Heaven: 9/9/05

WOF-Erin

Smallwood Family

Erin Smallwood

Globoid Cell Leukodystrophy
(Krabbe Disease)

Conway, AR

Born: 1/1/09
Went to Heaven: 3/15/10

WOF-Camden

Smith Family

Camden Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seattle, WA

Born: 3/15/06
Went to Heaven: 12/30/07

WOF-Anthony Smith

Smith Family

Anthony Smith

Adrenoleukodystrophy
(ALD)

Charlotte, NC

Born: 7/20/70
Went to Heaven: 4/22/12

Smith Family

Rufus Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Somerset, United Kingdom

Born: 4/22/08
Went to Heaven: 2/8/09

Hunter's Hope Wall of Fame

Smith Family

Lillian Grace Smith

Globoid Cell Leukodystrophy
(Krabbe Disease)

Leonardtown, MD

Born: 9/26/11
Transplant

Bear with Tears

Songs of Joy

“Those who sow in Tears will reap with songs of Joy.”
~ Psalm 126:5

WOF-Jacob S.

Sontag Family

Jacob Sontag

Canavan Disease

Harrison, NY

Born: 2/24/96
Went to Heaven: 1/18/16

Spencer-Witczak Family

Kenan Spencer-Witczak

Globoid Cell Leukodystrophy
(Krabbe Disease)

Chicago, IL

Born: 2/5/11
Went to Heaven: 5/31/18

WOF - Vanessa

Spinello Family

Vanessa Spinello

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brooklyn, NY

Born: 7/19/99
Went to Heaven: 8/23/17

Spraggins Family

Sam Spraggins

Metachromatic Leukodystrophy
(MLD)

Ponce Inlet, FL

Born: 5/17/01
Transplant
Sam’s Caring Bridge Site
Sam’s Website

WOF-Bruce

Springer Family

Bruce Springer

Globoid Cell Leukodystrophy
(Krabbe Disease)

Charlotte, NC

Born: 10/27/66
Went to Heaven: 11/8/68

WOF-Jameson S.

St. Clair Family

Jameson St. Clair

Globoid Cell Leukodystrophy
(Krabbe Disease)

Naperville, IL

Born: 12/19/89

Stocki Family

David Stocki

Alexander Disease

Clarence, NY

Born: 4/29/08

WOF-Kenny

Stoeckle Family

Kenny Stoeckle

Globoid Cell Leukodystrophy
(Krabbe Disease)

The Woodlands, TX

Born: 8/2/94
Went to Heaven: 11/8/96

Stokes Family

Martin Stokes

Globoid Cell Leukodystrophy
(Krabbe Disease)

Exeter, United Kingdom

Born: 11/11/16

Went to Heaven: 02/02/18

Hunter's Hope Wall of Fame

Stroup Family

Johanna “JoJo” Stroup

Metachromatic Leukodystrophy
(MLD)

Port Republic, MD

Born: 7/9/2009
Transplant

WOF-James

Sturtevant Family

James Sturtevant

Adrenoleukodystrophy
(ALD)

Claremont, NH

Born: 6/7/91
Went to Heaven: 11/1/13

WOF-Reesa S.

Stutzman Family

Reesa Stutzman

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsdale, AZ

Born: 7/30/11
Baby Reesa’s Website

WOF-Evie

Sugden Family

Evie Sugden

Globoid Cell Leukodystrophy
(Krabbe Disease)

Brafferton, United Kingdom

Born: 2/21/01
Went to Heaven: 1/21/02

WOF-Darcee

Suhr Family Child 1

Darcee Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 6/28/85
Went to Heaven: 12/16/95

WOF-Lindy

Suhr Family Child 2

Lindy Suhr

Metachromatic Leukodystrophy
(MLD)

West Linn, OR

Born: 9/21/1980

Mika Aaron

Summers Family

Mika Summers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Scottsboro, AL

Born: 9/9/96
Went to Heaven: 3/26/97

WOF-Adithya

Sunilkumar Family

Adithya Sunilkumar

Globoid Cell Leukodystrophy
(Krabbe Disease)

Calicut, India

Born: 8/29/02

WOF-David

Suppan Family Child 1

David Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 3/12/96
Went to Heaven: 10/8/06

Suppan Family Child 2

Sean Suppan

Adrenoleukodystrophy
(ALD)

Tobyhanna, PA

Born: 10/25/04
Transplant
Sean Suppan’s Website

Surrett Family

David Glen Chester Surrett

Globoid Cell Leukodystrophy
(Krabbe Disease)

Moncks Corner, SC

Born: 03/03/98
Went to Heaven: 11/11/98