Welcome to our Wall of Fame

Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their special children.

If you would like to honor your child by adding them to the Wall of Fame, please click below and fill out the Wall of Fame form.

Wall of Fame Form

If your child is already on the Wall of Fame and you would like to update their information and/or photo, please contact us here.

If you are a visitor to the Wall of Fame and would like to donate to Hunter’s Hope and help us support Leukodystrophy children and their families, please click here.


Matevz Tislar

Rebol Family

Matevz Rebol

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mokronog, Slovenia

Born: 3/17/10
Went to Heaven: 3/29/13

Rennie Family

Raife Rennie

Metachromatic Leukodystrophy
(MLD)

Seymour, TN

Born: 08/30/03

Rettenmeier Family (Child 1)

Staci Rettenmeier

Metachromatic Leukodystrophy
(MLD)

Hiawatha, IA

Born: 8/19/88

Heaven Date: 11/5/10

Rettenmeier Family (Child 2)

Amy Rettenmeier

Metachromatic Leukodystrophy
(MLD)

Hiawatha, IA

Born: 9/26/91

Heaven Date: 9/19/2019

WOF-Christopher R.

Riegel Family

Christopher Riegel

Metachromatic Leukodystrophy
(MLD)

Saginaw, MI

Born: 11/29/05
Went to Heaven: 4/5/11

Hunter's Hope Wall of Fame

Rivera Family Child 1

Randy Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 12/4/96
Went to Heaven: 2/28/10

Hunter's Hope Wall of Fame

Rivera Family Child 2

Yury Rivera

Adrenoleukodystrophy
(ALD)

Paterson, NJ

Born: 10/12/07
Went to Heaven: 5/31/16

Robberts Family

Roman Robberts

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dorsey, UK

Born: 7/25/20

Went to heaven: 4/16/21

WOF-Joseph

Robinson Family

Joseph Robinson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lansing, MI

Born: 9/12/96
Went to Heaven: 4/4/98

Robinson Family

Rowdy Robinson

Oculodetatoldigital Dysplasia 

Vancouver, WA

Born: 8/19/17

WOF-Elmer

Rodriguez Family

Elmer Bonilla Rodriguez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 3/4/07
Transplant

Rodriguez Family

Abdiel Joel Rodriguez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rochester, NY

Born: 08/13/18
Went to Heaven: 10/20/20

WOF-Dina

Rogers Family Child 1

Dina Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 9/27/72
Went to Heaven: 2/19/74

WOF-Amanda

Rogers Family Child 2

Amanda Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 2/3/78
Went to Heaven: 10/30/78

Romano Family

Teagan Romano

Metachromatic Leukodystrophy
(MLD)

Elbert, CO

11/13/16

Ruchlewicz Family

Carson Ruchlewicz

Metachromatic Leukodystrophy (MLD)

Azusa, CA

Born: 3/1/16

WOF-Nicholas R.

Rugari Family Child 1

Nicholas Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 5/16/86
Went to Heaven: 5/19/87

WOF-Gina

Rugari Family Child 2

Gina Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 12/23/99
Went to Heaven: 6/22/15

Rumpe Family

Zane Rumpe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dundaga, Latvia

Born: 1/10/15

WOF-AJ

Rushe Family

AJ Rushe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Preston, UK

Born: 11/12/13
Went to Heaven: 1/31/15

WOF-Courtney

Rutherford Family

Courtney Rutherford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uniontown, PA

Born: 9/25/96
Went to Heaven: 4/23/00

Hunter's Hope Wall of Fame

Sain Family

Sophia Sain

Globoid Cell Leukodystrophy
(Krabbe Disease)

Kannapolis, NC

Born: 5/10/15
Went to Heaven: 4/7/16

WOF-Jasline

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant

WOF-Christian S.

Santucci Family

Christian Santucci

4H Syndrome

Fair Lawn, NJ

Born: 6/30/07

Scheibe Family

Josiah Scheibe

Unspecified Leukodystrophy

Norristown, PA

Born: 10/27/18

WOF-Jimmy

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/13

Schonbachler Family

Asher Schonbachler

4H Syndrome

Hermiston, OR

Born: 7/3/2013

WOF-Mason S.

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

WOF-Blaine

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

WOF-Jacquelyn

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

Delilah - Krabbe

Searle Family

Delilah Karen Wade

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tunbridge Wells, United Kingdom

Born: 11/2/15
Went to Heaven: 10/21/16

WOF-Haley S.

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

WOF-Jhyrve

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Born: 7/8/87
Transplant

Hunter's Hope Wall of Fame

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Hunter's Hope Wall of Fame

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant

Hunter's Hope Wall of Fame

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

WOF-Melina

Sevilla Family

Melina Sevilla

Globoid Cell Leukodystrophy
(Krabbe Disease)

Neenah, WI

Born: 7/7/01
Went to Heaven: 4/12/02

WOF-Emma S.

Sharp Family

Emma Sharp

Globoid Cell Leukodystrophy
(Krabbe Disease)

Alexandria, Scotland

Born: 7/16/11
Went to Heaven: 4/16/13

Sheffer Family

Cruz Sheffer

Adrenoleukodystrophy
(ALD)

Endicott, NY

Born: 10/02/11

Sheffer Family

Ryder Sheffer

Adrenoleukodystrophy
(ALD)

Endicott, NY

Born: 08/13/20

WOF-Anthony Shell

Shell-Greene Family Child 1

Anthony Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 1/22/88
Went to Heaven: 2/21/89

Hunter's Hope Wall of Fame

Shell-Greene Family Child 2

Dalton Shell

Globoid Cell Leukodystrophy
(Krabbe Disease)

Millers Creek, NC

Born: 10/3/96
Went to Heaven: 6/25/18
Transplant

Shelton Family

Lana Shelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

North Riverside, IL

Born: 7/4/16
Went to Heaven: 12/31/17

https://www.facebook.com/groups/1157144810987597/

WOF-Matthew S.

Shilling Family

Matthew Shilling

Globoid Cell Leukodystrophy
(Krabbe Disease)

Farwell, MI

Born: 11/17/88
Went to Heaven: 12/23/06

Hunter's Hope Wall of Fame

Shoemaker Family

Parker Shoemaker

Globoid Cell Leukodystrophy
(Krabbe Disease)

Dunkirk, MD

Born: 11/9/14
Went to Heaven: 9/14/15

Hunter's Hope Wall of Fame

Shullanberger Family

Bryleigh Shullanberger

Metachromatic Leukodystrophy
(MLD)

New Braunfels, TX

Born: 11/1/2010

Went to Heaven: 10/20/21

WOF-Christopher S.

Silbernagel-Frazier Family

Christopher Silbernagel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Culver, OR

Born: 6/6/76
Went to Heaven: 5/18/77

WOF-Katherine

Simmons Family

Katherine Rose Simmons

Canavan Disease

Orange Park, FL

Born: 1/28/97
Went to Heaven: 3/6/08

WOF-Jennifer

Sluis Family

Jennifer Sluis

Globoid Cell Leukodystrophy
(Krabbe Disease)

Tinley Park, IL

Born: 1/1/89
Went to Heaven: 9/9/05

WOF-Erin

Smallwood Family

Erin Smallwood

Globoid Cell Leukodystrophy
(Krabbe Disease)

Conway, AR

Born: 1/1/09
Went to Heaven: 3/15/10