Grant us Grace Line

Rare disease can be invisible. Our family has never looked much different than other families. Our children Grant (age 9) and Grace (age 11) have always been very active. Grace has been in dance since she was three years old. Grant loves playing baseball, basketball, his guitar and harmonica. Our children had slight needs such as needing speech therapy and occupational therapy to fine tune things, but nothing that ever screamed RARE disease.Learn more here.

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