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Light Your Heart with Hope for Every Child. Every Time. Everywhere.TM
Hunter's Hope Foundation is a non-profit organization committed to giving hope through education and awareness,
research, and family care for Krabbe, Leukodystrophies, and Newborn Screening.

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If a child you know received a positive screen for Krabbe Disease through newborn screening,
click here for more information on what to do next.


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Get Your Kelly Tough Gear!
Thank you for your continued prayers and support for the Kelly family. Several organizations volunteered to create t-shirts, bracelets, and more in support of the Kelly family and Hunter's Hope, and are generously donating a portion of proceeds to the Foundation. 




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The Kelly Family Story
Learn more about our family
and how God used our precious son Hunter, who never spoke a word, to change our lives forever...
  Wall of Fame
With great honor we present to you
children affected by Leukodystrophy...

Hunter James Kelly (2/14/97-8/5/05)

Find out what diseases your state screens for, how you can purchase supplemental newborn screening for Krabbe and similar diseases, & more...



Make Every Point the Bills Score Count   Take Action for Newborn Screening   Join a Walk Today


The Kelly Family's greatest passion is to bring encouragement and hope to families in the midst of suffering.

Learn more at the links below…

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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200