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Family Symposium

Our annual Family & Medical Symposium brings together scientists, doctors, families, strategic partners, staff, board members and volunteers for a week of sharing information, learning, and supporting one another. Prominent researchers and families affected by Krabbe and other Leukodystrophies from around the world attend the Symposium to gain in-depth information about Leukodystrophies, learn about the latest developments in scientific research and medical care, identify available resources, and develop support systems.

Expenses, including food, lodging, conference fees and all transportation while at the Symposium are paid for by Hunter's Hope. Travel arrangements to and from the event are the responsibility of the family. For families unable to cover their travel expenses, the Foundation provides assistance through our ‘Hunter's Hope Helping Hand Grant Travel Assistance’ program. Through this program, qualified families can receive financial assistance with their travel expenses.

For more information on or questions regarding the Family & Medical Symposium, please contact our Family Programs Representative, Kathleen Scott.

Button_Sponsor a FamilyThe average cost for a family of four to attend the Symposium is $5,000. Please consider giving to help a family attend the  Symposium this year.  Any amount is greatly appreciated. With your help, we can continue to make it possible for no family to ever be turned away from attending.


July 27th – 31th  2016
Our 19th Annual Family & Medical Symposium will take place 

at Holiday Valley Resort in Ellicottville, NY  

Program & Daily Schedule
2015 Program & Schedule   2014 Program & Schedule   2013 Program & Schedule   2012 Program & Schedule    
2011 Program & Schedule   2010 Program & Schedule   2009 Program & Schedule


What Our Families Have to Say...
"In 2001 we received the devastating news that our son had a terminal disease for which there is no cure.  We felt alone and isolated.  Through Hunter's Hope we have found and connected with other families.  The annual Hunter's Hope Medical & Family Symposium gives us strength and allows us the opportunity to feel normal."
~ Mike D'Amico, dad to John (Krabbe Disease - diagnosed too late for transplant)

"Being able to go to a Hunter's Hope Symposium is, to us, a huge family reunion - we've met so many great families...especially all the kids that are Gina's best friends...Attending gives us an opportunity to share our experiences and unite because there's not another place out there for Krabbe Disease... It's not just transplant families, it's the families that are going through the disease, the families that have lost children to the disease - we all have such a wonderful bond... We all understand, and no one can really understand how truly devastating this disease is until your with another family..."
Anne Rugari, mom to Gina (Krabbe Disease, transplant) and Nicholas (Krabbe Disease, 5/16/86 - 5/19/87)

2011 Family Symposium Video     2010 Family Symposium Video     2009 Family Symposium Video  
2009 Interview with Jim & Jill Kelly 


Thank You to our Strategic Partners!
The Annual Family and Medical Symposium would not be possible without the generous contributions various organization including:

Walmart Logo
The Walmart State Giving Program provides funding to aid Hunter’s Hope with cost of the annual Family and Medical Sympsium.  Due in part to this support, Hunter’s Hope is able to cover the vast majority of expenses for attending families, including meals, lodging, and conference fees. 

NFL Foundation Logo

The NFL Foundation provides funding to support various Family Care programs, including our annual Family and Medical Symposium.

Kelly for Kids Logo
The Kelly for Kids Foundation provides funding to support various Family Care programs, including our annual Family and Medical Symposium.

 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200