Family & Medical Symposium brings together scientists, doctors,
families, strategic partners, staff, board members and volunteers for a
week of sharing information, learning, and supporting one another.
Prominent researchers and families affected by Krabbe and other
Leukodystrophies from around the world attend the Symposium to gain
in-depth information about Leukodystrophies, learn about the latest
developments in scientific research and medical care, identify available
resources, and develop support systems.
Expenses, including food, lodging, conference fees and all
transportation while at the Symposium are paid for by Hunter's Hope. Travel arrangements to and from the event are
the responsibility of the family. For families unable to cover their
travel expenses, the Foundation provides assistance through our ‘Hunter's Hope Helping Hand Grant Travel Assistance’ program. Through this program, qualified families can receive financial assistance with their travel expenses.
For more information on or questions regarding the Family & Medical
Symposium, please contact our Family Programs Representative, Kathleen Scott.
The average cost for a family of four to attend the Symposium is $5,000. Please consider giving to help a family attend the Symposium this year. Any amount is greatly appreciated. With your help, we can continue to make it possible for no family to ever be turned away from attending.
Family Registration The 2015 Symposium will take place Wednesday, July 8 - Sunday, July 12. Registration Deadline: May 25, 2015 Please submit the 'Family Registration' form as soon as you know your family plans to attend. You can submit your payment and travel plans at a later time; however, you must complete all three forms for your family's symposium registration to be complete.
What Our Families Have to Say...
"In 2001 we received the devastating news that our son had a
terminal disease for which there is no cure. We felt alone and
isolated. Through Hunter's Hope we have found and connected with other
families. The annual Hunter's Hope Medical & Family Symposium gives
us strength and allows us the opportunity to feel normal." ~ Mike D'Amico, dad to John (Krabbe Disease - diagnosed too late for transplant)
"Being able to go to a Hunter's Hope Symposium is, to us, a huge family reunion - we've met so many great families...especially all the kids that are Gina's best friends...Attending gives us an opportunity to share our experiences and unite because there's not another place out there for Krabbe Disease... It's not just transplant families, it's the families that are going through the disease, the families that have lost children to the disease - we all have such a wonderful bond... We all understand, and no one can really understand how truly devastating this disease is until your with another family..." ~ Anne Rugari, mom to Gina (Krabbe Disease, transplant) and Nicholas (Krabbe Disease, 5/16/86 - 5/19/87)