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Light Your Heart with Hope for Every Child. Every Time. Everywhere.TM
Hunter's Hope Foundation is a non-profit organization committed to giving hope through education and awareness,
research, and family care for Krabbe, Leukodystrophies, and Newborn Screening.
 
Kelly Tough Book Cover

Learn more about Kelly Tough

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The Kelly Family Story
Learn more about our family

and how God used our precious son Hunter, who never spoke a word, to change our lives forever...


Get Your Kelly Tough Gear!
Several organizations volunteered to create t-shirts, bracelets, and more in support of the Kelly family. A portion of all proceeds go to the Foundation.

Kelly Tough 12K

Pumpkin Face
Hunter James Kelly (2/14/97-8/5/05)
 

Pregnant Belly

   NBS Heel Prick
Wall of Fame
With great honor we present to
you children affected by Leukodystrophy...

  Pregnant?
Find out what diseases your state screens for, how you can purchase supplemental newborn screening for Krabbe and similar diseases, and more...
  Positive Screen?
If a child you know received a positive screen for Krabbe Disease, click here for more information...

 

Take Action for Newborn Screening   Join a Walk Today



The Kelly Family's greatest passion is to bring encouragement and hope to families in the midst of suffering.

Learn more at the links below…

  JK Every Score Logo_No Banner   Jim Kelly HOF Logo   Every Sister framed icon   Jill's first name signature   Erin's logo    HCWG_pink mug logo  

     
 
 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 

 


About Us

Mission
Hunter
Kelly Family Story
Hunter's Hope Team

Research
HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research

 


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?

 


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Hunter's Wish Gift
Kaden's Kisses

 


Get Involved

Jim Kelly's Every Score
Jill Kelly's Every Sister
Every Step Walk
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners
Volunteer

News

Calendar

Donate

   
  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200