News     Calendar    Donate Facebook Badge_Light GreyTwitter Badge_Light GreyInstagram Badge_Light GreyYoutube Badge_Light Grey  
  Green Line_Homepage

Light Your Heart with Hope for Every Child. Every Time. Everywhere.TM
Hunter's Hope Foundation is a non-profit organization committed to giving hope through education and awareness,
research, and family care for Krabbe, Leukodystrophies, and Newborn Screening.

Hunter Pumpkin Face Lighter Background

Hunter James Kelly (2/14/97 - 8/5/05)

2016 Kelly Tough logo

Kelly Tough
12K Run 1.2K Fun Run/Walk


2016 Symposium Gemma Square

Sponsor a Family for the Symposium

   LCN logo  

Learn more about the Leukodystrophy Care Network

Watch our new video... 
Hunter's Hope - Hope through Newborn ScreeningHope Through Newborn Screening


NBS_baby sleeping

Hope and a Future -


Hunter's Hero Heart logo


HopeSpot_Research Issue_Cover_Top


Love Endures

Pregnant Belly

   NBS Heel Prick

Wall of Fame

With great honor we present to
you children affected by Leukodystrophy...



Find out what diseases your state screens for, how you can purchase supplemental newborn screening for Krabbe and similar diseases, and more...


Positive Screen?

If a child you know received a positive screen for Krabbe Disease, click here for more information...


Take Action for Newborn Screening   Join a Walk Today    Get Your Kelly Tough Gear!   Amazon Smile button

2014 Symposium_Kelly Family

The Kelly Family Story
Learn more about our family and how God used our precious son Hunter, who never spoke a word, to change our lives forever...



Kelly Tough NYT Best Seller

Learn more about Kelly Tough
Proceeds benefit Hunter's Hope


The Kelly Family's greatest passion is to bring encouragement and hope to families in the midst of suffering.
Learn more at the links below.

JK Every Score Logo_No Banner   Jim Kelly HOF Logo     Every Sister framed icon
Jill's first name signature
Erin's logo
 HCWG_pink mug logo  

 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Ralph C. Wilson Jr. Wish Gift


Get Involved

The Kelly Tough
Jm Kelly's Every Score
Jill Kelly's Every Sister
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200