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Newborn Screening

Kelly Family Picture - Hunter & Grammie   Did you know that a simple heel prick through a newborn screening test could have saved my grandson, Hunter’s life? Well, it’s true.

For diseases like Krabbe, early detection through newborn screening is crucial for affected children to receive potentially lifesaving treatment, which is only effective if administered before a child is symptomatic. 

Help ensure that the children in your state are screened at birth for Krabbe and similar diseases by Taking Action!  Thank you!

With Hope,
Jacque Waggoner signature
CEO & Hunter's Grandmother
A simple heel prick
could have saved
his life...

 
NBS baby

What is Newborn Screening?
Basic facts and information about Newborn Screening.

Krabbe NBS Brochure graphic

Krabbe Newborn Screening
Information for parents whose child received a positive screen for Krabbe.

Jim Testifying

Take Action
Advocate for Krabbe Newborn Screening in your state.

Jim Speaking at Genetic Diseases in Children Conference

State and Federal Information
Learn more about Hunter's Hope involvement in Newborn Screening across the U.S.

California Testimony Video_SB 224

Families Taking Action
See how families are taking action for Krabbe Newborn Screening in states across the country.


NBS_baby sleeping

Why Newborn Screening
Watch videos to learn more about the importance of Newborn Screening.

NBS photo Sadie

Supplemental NBS
Ensure your newborn is screened for Krabbe and other disorders through Supplemental Newborn Screening.


     
 
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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 

 


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Krabbe and Leukodystrophies

About Krabbe
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Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?

 


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  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200