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 Newborn Screening - State Information


 

 Hunter’s Hope Advocates for Expanded & Universal
Newborn Screening


This means we advocate for every state to screen for the maximum number of diseases possible and that all states screen universally for the same diseases. Otherwise, a child's chance for a healthy life depends on the state they are born in.

Krabbe and other LSDs

Hunter's Hope advocates screening for six disorders called Lysosomal Storage Diseases - Krabbe, Pompe, Gaucher, Niemann-Pick, Fabry and Hurler Syndrome.

These disorders can be cost-effectively screened together. These disorders must be diagnosed early to save children's lives.
Therefore, it is critical they be screened for at birth.

 In addition to the Lysosomal disorders noted above, we advocate screening for the 55 disorders on the American College of Medical Genetics (ACMG) and the Secretary Advisory Committee on Heritable Disorders in Infants and Newborns recommended minimum screening panel.

Useful Links

National Newborn Screening and Genetics Resource Center Chart listing Disorders by State

National Newborn Screening and Genetics Resource Center Website

National Conference of State Legislatures Newborn Screening Legislation by State

 

 Number of Diseases Screened by State
This data was taken from the National Newborn Screening and Genetic Resource Center (NNSGRC) as of 9/06/12.

Click on your state to see what diseases it screens for.

Number of Diseases Recommended
 31  25  56   Other Diseases
 
State
Core Secondary Total Screened
Alabama 29 15  44  
Alaska 29
17  46  
Arizona  28
  0
 28
 
Arkansas 29  1 30  
California 29  21
50 27
Colorado 29
16
45  
Connecticut 30 22 52 3
Delaware  29  16  45  
District of Columbia 29   23
 52 1
Florida 29  7  36  
Georgia 28  1  29  
Hawaii 29 17
 46  
Idaho  28 17
 45  
Illinois*
29  16  45  11
Indiana
30
23 53  
Iowa 29 22
 51
 
Kansas 29   2
31  
Kentucky 28  3 31  
Louisiana 29  2
31  
Maine 28 11
39 2
Maryland 30 23
53 1
Massachusetts  26  2  28
3
Michigan 30 22
52  
Minnesota 29 25
 54
 
Mississippi  29  19
 48  3
Missouri** 29 23 52  
Montana 29   2 31  
Nebraska 28   4  32
3
Nevada  28  16
44  
New Hampshire 29  7 36 1
New Jersey* 30 25  55
1
New Mexico* 29   1 30  
New York** 30 21 51 3
North Carolina 28  15
43  
North Dakota 28 22  50  2
Ohio 29 15 44  
Oklahoma 29 20
49
 
Oregon
28 11 39
Pennsylvania
29  4 33  5
Rhode Island
29
 4 33  
South Carolina
29 24 53
South Dakota
28 22 50 4
Tennessee
28 23  51  2
Texas
28   2 30  
Utah
29
18
47
 
Vermont
29  6 35  
Virginia
29  1 30  
Washington
27  2  29
 
West Virginia 30  4  34
 
Wisconsin 30 20 50  
Wyoming 29 16 45  

**Screens for Krabbe
* Legislation passed to add Krabbe, not yet implemented