News     Calendar    Donate Facebook Badge_Light GreyTwitter Badge_Light GreyInstagram Badge_Light GreyYoutube Badge_Light Grey  
 
 
  Green Line_Homepage
 

Newborn Screening - State and Federal Information

California Testimony Video_SB 224

Hunter's Hope advocates for newborn screening to include Krabbe Disease and similar disorders in every state across the United States.

Currently, New York, Missouri, and Kentucky are the only states screening for Krabbe Disease at birth.  Illinois, New Mexico, New Jersey, Pennsylvania, Ohio and Tennessee have passed legislation to add Krabbe Disease to their newborn screening panels with implementation dates varying by state.

Find out what's happening in your state on our Take Action page.

In addition to the disorders noted above, we advocate screening for all treatable diseases.  To find out what conditions your state screens for, visit Baby's First Test, the nation's Newborn Screening Clearinghouse.

Federal Newborn Screening Activities

Although each state determines which diseases to include in its newborn screening program, important funding, research and recommendations are made through various federal agencies.

Hunter's Hope is actively involved in several of these national newborn screening efforts.  We serve on the Standing Committee and Bioethics Committee of the Newborn Screening Translational Research Network (NBSTRN). 

Through our active involvement in both state and federal newborn screening efforts, Hunter's Hope is working hard to ensure Krabbe Newborn Screening is a reality nationwide.


     
 
 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 

 


About Us

Mission
Hunter
Kelly Family Story
Hunter's Hope Team

Research
HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research

 


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?

 


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Ralph C. Wilson Jr. Wish Gift

 


Get Involved

The Kelly Tough
Jm Kelly's Every Score
Jill Kelly's Every Sister
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners
Volunteer

News

Calendar

Donate

   
  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200