There are over 50 identified Leukodystrophies, which are genetic, progressive disorders that affect the brain, spinal cord and nervous systems. Alone, each Leukodystrophy may be considered rare, but as a group, Leukodystrophies affect approximately 1 in 7,000 individuals.
Helpful information for families can be found here.
The Wall of Fame is a tribute to children affected by Leukodystrophies.
Click here to meet our Heroes