Primary Children’s Hospital
Core Team
Emily Maynes Hardy |BSN, RN
Care Coordinator
801-213-7701
2021 Hunter's Hope Symposium
Learn more about Primary Children’s Hospital through their presentation at the 2021 Hunter’s Hope Symposium.
Click here to learn moreAbout the Center
Our Leukodystrophy Care Center is operated by University of Utah Health, Department of Pediatrics, and Primary Children’s Hospital, Western Leukodystrophy Project and is a Leukodystrophy Care Network (LCN) Center; which meets or exceeds the criteria for LCN certification.
The LCN is a community of affected families, organizations, and medical providers committed to revolutionizing the health and quality of life of individuals affected by leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers.
Conditions Treated
Evaluate and care for patients with every form of leukodystrophy including, but not limited to:
- Krabbe disease
- Metachromatic leukodystrophy
- Adrenoleukodystrophy (ALD)
- Alexander disease
- Canavan disease
- Pelizaeus-Merzbacher disease
- Vanishing white matter disease
- Undiagnosed leukodystrophies
Appointments
Requests for referrals should be initiated through our refer a patient page or by contacting Dr. Bonkowsky or Emily Hardy directly by email.
Location
Eccles Primary Children’s Outpatient Services Building
801-213-3599
81 N Mario Capecchi Drive
Salt Lake City, UT 84113