Primary Children’s Hospital

Core Team

Josh Bonkowsky, MD, PhD | Child Neurologist

Clinic Director

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Heather Fairfield RN, BSN, CPN, CCRN | Registered Nurse, Pediatric Neurology 

LCN Care Coordinator

 

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2021 Hunter's Hope Symposium

Learn more about Primary Children’s Hospital through their presentation at the 2021 Hunter’s Hope Symposium.

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About the Center

Our Leukodystrophy Care Center is operated by University of Utah Health, Department of Pediatrics, and Primary Children’s Hospital, Western Leukodystrophy Project and is a Leukodystrophy Care Network (LCN) Center; which meets or exceeds the criteria for LCN certification.

The LCN is a community of affected families, organizations, and medical providers committed to revolutionizing the health and quality of life of individuals affected by leukodystrophies with proactive, innovative, and comprehensive medical care standards and specialized centers.

Conditions Treated

Evaluate and care for patients with every form of leukodystrophy including, but not limited to:

  • Krabbe disease
  • Metachromatic leukodystrophy
  • Adrenoleukodystrophy (ALD)
  • Alexander disease
  • Canavan disease
  • Pelizaeus-Merzbacher disease
  • Vanishing white matter disease
  • Undiagnosed leukodystrophies

Appointments

Requests for referrals can be made by phone (801-213-3599); email (joshua.bonkowsky@hsc.utah.edu); or through our Referral Page.

Location

Eccles Primary Children’s Outpatient Services Building

801-213-3599
81 N Mario Capecchi Drive
Salt Lake City, UT 84113