Annual Workshop on Krabbe Disease

Attendance to the scientific and medical symposium is by invitation only. For more information please email

Please Save the Date!

The Annual Medical & Science Symposium will take place Monday, July 25 – Thursday, July 28, 2016 at Holiday Valley Resort in Ellicottville, NY.  *Please note the change in dates*

This annual multidisciplinary workshop brings together over 60 child neurologists, geneticists, basic scientists, neuroradiologists, neurodevelopmental pediatricians, transplanters, oncologists, neuropsychologists and experts in newborn screening to discuss advances in clinical and basic science research in Krabbe Disease and other Leukodystrophies.

Past programs and schedules (downloadable):

2015 Workshop Program
2014 Workshop Program
2013 Workshop Program
2012 Workshop Program
2011 Workshop Program
2010 Workshop Program

The Family Symposium is scheduled for the week of July 27th – 31st, 2015 at Holiday Valley Resort in Ellicottville, NY.

For information on the family component of the symposium, which welcomes over 45 Krabbe & Leukodystrophy families each year, please visit the Family & Medical Symposium page under our Family Programs.