Wall of Fame
Ordoyne Family
Wally Ordoyne
Globoid Cell Leukodystrophy
(Krabbe Disease)
Thibodaux, LA
Born: 11/29/79
Went to Heaven: 4/15/19
Osman Family Child 1
Eric Osman
Adrenoleukodystrophy
(ALD)
Falls Church, VA
Born: 10/26/00
Went to Heaven: 10/25/09
Osman Family Child 2
Jacob Osman
Adrenoleukodystrophy
(ALD)
Falls Church, VA
Born: 7/15/04
Went to Heaven: 9/1/12
Palamaro Family
Jack Palamaro
Alexander Disease
Concord, CA
Born: 8/14/01
Paquette Family
Naeva Paquette
Globoid Cell Leukodystrophy
(Krabbe Disease)
Granby, QC Canada
Born: 9/16/11
Went to Heaven: 2/23/13
Naeva’s Facebook
Parke Family
Jaymie Leigh Parke
Globoid Cell Leukodystrophy
(Krabbe Disease)
West Midlands, UK
Born: 9/9/99
Went to Heaven: 3/8/01
Peacock Family
Judson Peacock
Globoid Cell Leukodystrophy
(Krabbe Disease)
Beaumont, TX
Born: 1/5/98
Went to Heaven: 10/16/98
Pitra Family
Angela Pitra
Globoid Cell Leukodystrophy
(Krabbe Disease)
Downers Grove, IL
Born: 12/26/97
Went to Heaven: 11/11/98
Place Family
Freddie Place
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bow, NH
Born: 11/25/98
Went to Heaven: 10/29/99
Jurek-Plasky Family Child 2
Tanner James Jurek-Plasky
Globoid Cell Leukodystrophy
(Krabbe Disease)
International Falls, MN
Born: 6/16/95
Went to Heaven: 11/8/96