Wall of Fame
Rugari Family Child 1
Nicholas Rugari
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cincinnati, OH
Born: 5/16/86
Went to Heaven: 5/19/87
Rugari Family Child 2
Gina Rugari
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cincinnati, OH
Born: 12/23/99
Went to Heaven: 6/22/15
Rushe Family
AJ Rushe
Globoid Cell Leukodystrophy
(Krabbe Disease)
Preston, UK
Born: 11/12/13
Went to Heaven: 1/31/15
Rutherford Family
Courtney Rutherford
Globoid Cell Leukodystrophy
(Krabbe Disease)
Uniontown, PA
Born: 9/25/96
Went to Heaven: 4/23/00
Santana Family
Jasline Santana
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bronx, NY
Born: 5/22/10
Transplant
Santucci Family
Christian Santucci
4H Syndrome
Fair Lawn, NJ
Born: 6/30/07
Schmitt Family
Jimmy Schmitt
Adrenoleukodystrophy
(ALD)
Amherst, NY
Born: 9/7/89
Went to Heaven: 7/3/13
Schroeder Family
Blaine Schroeder
Globoid Cell Leukodystrophy
(Krabbe Disease)
Eldorado, OH
Born: 3/10/13
Schroeder Family
Mason Schroeder
Adrenoleukodystrophy
(ALD)
Sheboygan Falls, WI
Born: 11/18/96
Went to Heaven: 7/31/08
Scott Family
Jacquelyn Scott
Globoid Cell Leukodystrophy
(Krabbe Disease)
Camarillo, CA
Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video