Wall of Fame

WOF-Christopher R.

Riegel Family

Christopher Riegel

Metachromatic Leukodystrophy
(MLD)

Saginaw, MI

Born: 11/29/05
Went to Heaven: 4/5/11

WOF-Joseph

Robinson Family

Joseph Robinson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Lansing, MI

Born: 9/12/96
Went to Heaven: 4/4/98

WOF-Elmer

Rodriguez Family

Elmer Bonilla Rodriguez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Durham, NC

Born: 3/4/07
Transplant

WOF-Amanda

Rogers Family Child 2

Amanda Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 2/3/78
Went to Heaven: 10/30/78

WOF-Dina

Rogers Family Child 1

Dina Rogers

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ashland, MA

Born: 9/27/72
Went to Heaven: 2/19/74

WOF-Nicholas R.

Rugari Family Child 1

Nicholas Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 5/16/86
Went to Heaven: 5/19/87

WOF-Gina

Rugari Family Child 2

Gina Rugari

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cincinnati, OH

Born: 12/23/99
Went to Heaven: 6/22/15

WOF-AJ

Rushe Family

AJ Rushe

Globoid Cell Leukodystrophy
(Krabbe Disease)

Preston, UK

Born: 11/12/13
Went to Heaven: 1/31/15

WOF-Courtney

Rutherford Family

Courtney Rutherford

Globoid Cell Leukodystrophy
(Krabbe Disease)

Uniontown, PA

Born: 9/25/96
Went to Heaven: 4/23/00

WOF-Jasline

Santana Family

Jasline Santana

Globoid Cell Leukodystrophy
(Krabbe Disease)

Bronx, NY

Born: 5/22/10
Transplant