Santucci Family

Christian Santucci

4H Syndrome

Fair Lawn, NJ

Born: 6/30/07

Schmitt Family

Jimmy Schmitt

Adrenoleukodystrophy
(ALD)

Amherst, NY

Born: 9/7/89
Went to Heaven: 7/3/13

Schroeder Family

Blaine Schroeder

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eldorado, OH

Born: 3/10/13

Schroeder Family

Mason Schroeder

Adrenoleukodystrophy
(ALD)

Sheboygan Falls, WI

Born: 11/18/96
Went to Heaven: 7/31/08

Scott Family

Jacquelyn Scott

Globoid Cell Leukodystrophy
(Krabbe Disease)

Camarillo, CA

Born: 7/10/02
Went to Heaven: 2/10/07
Jacque’s Video

Sears Family

Jhyrve Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Transplant

Sears Family

Haley Sears

Globoid Cell Leukodystrophy
(Krabbe Disease)

Seneca, SC

Born: 12/8/96
Went to Heaven: 9/10/98

Seeger Family

Aidan Seeger

Adrenoleukodystrophy
(ALD)

Brooklyn, NY

Born: 7/21/04
Went to Heaven: 4/29/12
Aidan Seeger

Sereno Family Child 2

Giovanni Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 11/17/08
Transplant

Sereno Family Child 1

Salvatore Sereno

Metachromatic Leukodystrophy
(MLD)

West Caldwell, NJ

Born: 4/5/03
Transplant