The Leukodystrophy Publications and Videos section of our website includes valuable information developed through the LCN and shared at Hunter’s Hope meetings
Leukodystrophy Publications & Videos
Archives
Kids Leukodystrophy Guide
“Just for Kids: This Thing Called Leukodystrophy” This is a special book written for kids by kids.
Helpful Resources
There are many great organizations and resources available for families caring for a child with a Leukodystrophy.
Wish Gift
The Wish Gift helps families in the United States who face extreme financial stress attributed to the costs associated with caring for a child with Krabbe or another Leukodystrophy. Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for… Read more »
Equipment & Supply Exchange
Hunter’s Hope Equipment and Supply Exchange program has been designed to help fulfill the equipment and supply needs of Leukodystrophy children as well as help families place equipment and supplies that they are no longer using. Hunter’s Hope will cover the shipping cost (48 contiguous states) to place the equipment with the family in need.
Wall of Fame
Hundreds of Leukodystrophy families have contacted Hunter’s Hope since we started the Foundation in 1997. The Wall of Fame is a tribute to all of their children and to everyone affected by Leukodystrophies.
Family Programs
Hunter’s Hope offers many programs for Leukodystrophy families. They include the Wall of Fame, Wish Gift, Equipment and Exchange, and other Helpful Resources.