Pelizaeus Merzbacher Disease (X-Linked Spastic Paraplegia)
Robbinsville, NJ
Born: 3/9/00 Went to Heaven: 6/20/15
Globoid Cell Leukodystrophy (Krabbe Disease)
Irvine, CA
Born: 12/24/04 Went to Heaven: 11/7/07 Judson’s Legacy
Macungie, PA
Born: 4/26/93 Went to Heaven: 3/1/01
Mt. Pleasant, UT
Born: 1/2/14 Went to Heaven: 9/18/14
Metachromatic Leukodystrophy (MLD)
Chicago, IL
Born: 4/11/05 Went to Heaven: 2/23/13
Adrenoleukodystrophy (ALD)
Rocky Ford, GA
Born: 5/12/00 Went to Heaven: 1/3/14
Grand Bay, AL
Born: 9/19/97 Transplant
Oklahoma City, OK
Born: 6/30/04 Went to Heaven: 8/28/15
Beaconsfield, QC Canada
Born: 1/08/11 Went to Heaven: 4/13/15 Life with Lauren
Carlsbad, CA
Born: 12/14/06 Went to Heaven: 1/28/08