Wall of Fame

WOF-Emerson

Lyle Family

Emerson Lyle

Metachromatic Leukodystrophy
(MLD)

Lockesburg, AR

Born: 3/23/09
Went to Heaven: 8/28/17

WOF-Jack Macpherson

Macpherson Family

Jack Macpherson

Globoid Cell Leukodystrophy
(Krabbe Disease)

Argyll & Bute, Scotland

Born: 7/28/06
Went to Heaven: 4/29/08
Jack’s Caring Bridge Site

WOF-Morgan

Malfara Family

Morgan Malfara

Aicardi-Goutieres Syndrome
(AGS)

Melbourne Beach, FL

Born: 10/22/97
The Morgan Project

WOF-Gabriella

Manzo Family

Gabriella Paige Manzo

Globoid Cell Leukodystrophy
(Krabbe Disease)

Howard Beach, NY

Born: 8/4/97
Went to Heaven: 4/8/15

Markel-Lapine Family Child 1

Steven Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 8/13/05
Went to Heaven: 3/5/07

WOF-Alilia

Markel-Lapine Family Child 2

Alilia Markel

Globoid Cell Leukodystrophy
(Krabbe Disease)

Saginaw, MI

Born: 11/11/08
Went to Heaven: 12/23/08

WOF-Lexus

Marsh Family

Lexus Marsh

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mio, MI

Born: 9/10/02
Transplant

WOF-Ethan M.

Marshall Family

Ethan Marshall

Zellweger Syndrome

Decatur, IL

Born: 7/23/10

WOF - Troy

Martin Family

Troy Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Mount Airy, NC

Born: 7/27/92
Went to Heaven: 12/6/93

WOF-Austin

Martin Family

Austin Martin

Globoid Cell Leukodystrophy
(Krabbe Disease)

Monroe, GA

Born: 4/4/94
Went to Heaven: 3/13/96