Metachromatic Leukodystrophy (MLD)
Lockesburg, AR
Born: 3/23/09 Went to Heaven: 8/28/17
Globoid Cell Leukodystrophy (Krabbe Disease)
Argyll & Bute, Scotland
Born: 7/28/06 Went to Heaven: 4/29/08 Jack’s Caring Bridge Site
Aicardi-Goutieres Syndrome (AGS)
Melbourne Beach, FL
Born: 10/22/97 The Morgan Project
Howard Beach, NY
Born: 8/4/97 Went to Heaven: 4/8/15
Saginaw, MI
Born: 8/13/05 Went to Heaven: 3/5/07
Born: 11/11/08 Went to Heaven: 12/23/08
Mio, MI
Born: 9/10/02 Transplant
Zellweger Syndrome
Decatur, IL
Born: 7/23/10
Mount Airy, NC
Born: 7/27/92 Went to Heaven: 12/6/93
Monroe, GA
Born: 4/4/94 Went to Heaven: 3/13/96