Wall of Fame
Parke Family
Jaymie Leigh Parke
Globoid Cell Leukodystrophy
(Krabbe Disease)
West Midlands, UK
Born: 9/9/99
Went to Heaven: 3/8/01
Peacock Family
Judson Peacock
Globoid Cell Leukodystrophy
(Krabbe Disease)
Beaumont, TX
Born: 1/5/98
Went to Heaven: 10/16/98
Pitra Family
Angela Pitra
Globoid Cell Leukodystrophy
(Krabbe Disease)
Downers Grove, IL
Born: 12/26/97
Went to Heaven: 11/11/98
Place Family
Freddie Place
Globoid Cell Leukodystrophy
(Krabbe Disease)
Bow, NH
Born: 11/25/98
Went to Heaven: 10/29/99
Jurek-Plasky Family Child 2
Tanner James Jurek-Plasky
Globoid Cell Leukodystrophy
(Krabbe Disease)
International Falls, MN
Born: 6/16/95
Went to Heaven: 11/8/96
Jurek-Plasky Family Child 1
Megan Nicole Jurek-Plasky
Globoid Cell Leukodystrophy
(Krabbe Disease)
International Falls, MN
Born: 12/8/92
Went to Heaven: 4/25/94
Price Family Child 2
Giovanni Price
Metachromatic Leukodystrophy
(MLD)
Omaha, NE
Born: 1/16/10
Price Family Child 1
Liviana Price
Metachromatic Leukodystrophy
(MLD)
Omaha, NE
Born: 1/18/08
Went to Heaven: 9/26/13
Liviana’s Journey
Prichard Family
Noah Prichard
Globoid Cell Leukodystrophy
(Krabbe Disease)
DuPont, WA
Born: 9/16/02
Went to Heaven: 10/7/03
Ramos Family
Michael “Mikey” Ramos Jr.
Globoid Cell Leukodystrophy
(Krabbe Disease)
Woodstown, NJ
Born: 11/12/98
Went to Heaven: 4/15/2014