Globoid Cell Leukodystrophy (Krabbe Disease)
Bracknell, UK
Born: 6/10/17 Went to Heaven: 10/28/18
Portland, MI
Born: 12/16/13 Transplant
Harrisburg, NC
Born: 11/8/17 Went to Heaven: 9/27/18
Aicardi-Goutieres Syndrome (AGS)
Statesville, NC
Born: 6/6/17
Vanishing White Matter Disease (Childhood ataxia with diffuse central nervous system hypomyelination, or CACH)
Bakersfield, CA
Born: 7/29/13 Went to Heaven: 2/15/18
Greece
Born: 6/20/17 Went to Heaven: 3/29/18
Bayside, CA
Born: 10/2/17 Went to Heaven: 9/29/18
La Pryor, TX
Born: 5/22/11 Transplant
Born: 5/18/09 Transplant
Adrenoleukodystrophy (ALD)
Cliffside Park, NJ
Born: 7/31/01
Massimo’s CaringBridge Website