Frost Family

Joseph Arthur Frost

Adrenoleukodystrophy
(ALD)

Poestenkill, NY

Born: 11/27/02
Went to Heaven: 03/07/14

Website: www.joyfromjoseph.com

Feldt Family

Dawson Feldt

Globoid Cell Leukodystrophy
(Krabbe Disease)

Franklin, VA

Born: 07/16/19
Went to Heaven: 11/08/20

Emery Family

Dylan Emery

Globoid Cell Leukodystrophy
(Krabbe Disease)

Ninety Six, SC

Born: 11/05/17
Went to Heaven: 10/16/18

Menard Family

Elias Menard

Adrenoleukodystrophy
(ALD)

Jackson, ME

Born: 06/13/09
Went to Heaven: 04/09/19

Perez Family

Briar Rose Perez

Pelizaeus-Merzbacher-like Disease
(PMLD)

Charleston, SC

Born: 07/04/16

Grujicic Family

Nikola Grujicic

Globoid Cell Leukodystrophy
(Krabbe Disease)

Newport News, VA

Born: 03/15/18
Went to Heaven: 6/16/24

Rodriguez Family

Abdiel Joel Rodriguez

Globoid Cell Leukodystrophy
(Krabbe Disease)

Rochester, NY

Born: 08/13/18
Went to Heaven: 10/20/20

Butterfield Family

Taiten Butterfield

Globoid Cell Leukodystrophy
(Krabbe Disease)

Eagle Mountain, UT

Born: 12/17/19
Went to Heaven: 03/14/21

James Family

Samuel James

Metachromatic Leukodystrophy
(MLD)

Fayetteville, NC

Born: 4/18/20

James Family

Emmanuel James

Metachromatic Leukodystrophy
(MLD)

Fayetteville, NC

Born: 7/25/16
Went to Heaven: 7/1/22