Wall of Fame

Stokes Family

Martin Stokes

Globoid Cell Leukodystrophy
(Krabbe Disease)

Exeter, United Kingdom

Born: 11/11/16
Went to Heaven: 02/02/18

Newbury Family

Alanna Newbury

Globoid Cell Leukodystrophy
(Krabbe Disease)

Garson, Canada

Born: 01/18/90
Went to Heaven: 01/31/91

Lingren Family

Josiah Lingren

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cedar Rapids, IA

Born: 11/27/99
Went to Heaven: 02/03/01

Fourie Family

Rebekah Fourie

Globoid Cell Leukodystrophy
(Krabbe Disease)

Cape Town, South Africa

Born: 7/15/2018
Went to Heaven: 12/05/19

Rettenmeier Family (Child 2)

Amy Rettenmeier

Metachromatic Leukodystrophy
(MLD)

Hiawatha, IA

Born: 9/26/91
Went to Heaven: 9/19/2019

Rettenmeier Family (Child 1)

Staci Rettenmeier

Metachromatic Leukodystrophy
(MLD)

Hiawatha, IA

Born: 8/19/88
Went to Heaven: 11/5/10

Posey Family

Corion Posey

Unspecified Leukodystrophy

Greenville, SC

Born: 1/20/05

Paul Family

Jeriah Paul

Vanishing White Matter Disease

Holderness, NH

Born: 12/28/2012

Haag Family

Ruby Haag

Alexander Disease

Harvard, MA

Born: 8/24/10

Goncalves Family

Valentina Guidi Goncalves

Globoid Cell Leukodystrophy
(Krabbe Disease)

Marilia, Brazil