Wall of Fame
Michael Family
Emmett Michael
Globoid Cell Leukodystrophy
(Krabbe Disease)
Whycocomagh NS, Canada
Born: 6/1/16
Went to Heaven: 6/21/17
Stocki Family
David Stocki
Alexander Disease
Clarence, NY
Born: 4/29/08
Rumpe Family
Zane Rumpe
Globoid Cell Leukodystrophy
(Krabbe Disease)
Dundaga, Latvia
Born: 1/10/15
Clausen Family
Bryce Clausen
Globoid Cell Leukodystrophy
(Krabbe Disease)
Indianapolis, IN
Born: 1/25/18
Went to Heaven: 4/5/19
Romano Family
Teagan Romano
Metachromatic Leukodystrophy
(MLD)
Elbert, CO
Born: 11/13/16
Went to Heaven: 02/19/23
Trimble Family
Jacob Trimble
Adrenoleukodystrophy
(ALD)
Youngsville, LA
Born: 2/24/99
Went to Heaven: 3/13/14
Opunui Family Child 2
Kaimana Opunui
Metachromatic Leukodystrophy
(MLD)
Saint George, UT
Born: 9/9/15
Went to Heaven: 01/01/22
Opunui Family Child 1
Kapena Opunui
Metachromatic Leukodystrophy
(MLD)
Saint George, UT
Born: 9/9/15
Ruchlewicz Family
Carson Ruchlewicz
Metachromatic Leukodystrophy (MLD)
Azusa, CA
Born: 3/1/16
Guernsey Family
Jaxson Cole
Vanishing White Matter Disease
Dryden, NY
Born: 7/21/16
Went to Heaven: 7/19/20