Bell Family

Jadie Bell

Vanishing White Matter Disease (VWMD)

Nephi, UT

Born: 06/07/16

Renegar Family

Camden Renegar

GM1 Gangliosidosis

Walkertown, NC

Born: 02/05/19

Penney Family

Bridger Penney

Unspecified Leukodystrophy

Richfield, UT

Born: 07/20/13

Dubon Family

Angela Dubon

Globoid Cell Leukodystrophy
(Krabbe Disease)

Comayagua, Honduras

Born: 3/22/16
Went to Heaven: 4/05/22

Belyew Family

Hunter Belyew

Vanishing White Matter Disease (VWMD)

St. Louis, MO

Born: 12/04/18

Goodin Family

Grace Goodin

Multiple Sulfatase Deficiency (MSD)

Columbia, MO

Born: 9/7/10

Goodin Family

Grant Goodin

Multiple Sulfatase Deficiency (MSD)

Columbia, MO

Born: 12/3/12

Hazelton Family

William Hazelton

Globoid Cell Leukodystrophy
(Krabbe Disease)

Albany, NY

Born: 3/29/95
Went to Heaven: 6/1/99

Oagles Family

Damon Oagles

Globoid Cell Leukodystrophy
(Krabbe Disease)

Havertown, PA

Born: 12/1/21

Transplant

Myles Tucker

4H Leukodystrophy

Flintshire, United Kingdom

Born: 6/9/2018