Wall of Fame
Stephens Family
McKenzie Stephens
EIF2B related disorder (Vanishing White Matter Disease or CACH)
Salado, Texas
Born: 07/07/2022
Reindl Family
Ben Reindl
GM1 Gangliosidosis
Kewaskum, Wisconsin
Born: 08/14/2014
Outman Family
Jason Outman
EIF2B related disorder (Vanishing White Matter Disease or CACH)
Rushford, NY
Born: 08/11/93
Phelps/Benton Family
Jaxon Benton
Metachromatic Leukodystrophy
(MLD)
O’fallon, MO
Born: 4/6/2023
Roach Family
Owen Roach
Globoid Cell Leukodystrophy
(Krabbe Disease)
Gretna, VA
Born: 12/4/24
Trinidad Family
Wade Trinidad
4h Syndrome
San Antonio, Texas
Born: 5/15/24
Wittington Family
Cameron Chamberlin
Peroxisomal Biogenesis Disorder – Zellweger
Baton Rouge, Louisiana
Born 9/15/2014
Garcia Family
Khloe Skye Garcia
Metachromatic Leukodystrophy MLD
Nashville, Tennessee
Born 9/4/2017
Shephard Family
Hudson Shephard
Pelizaeus Merzbacher disease (PMD)
Kuna, Idaho
Born: 05-12-20
Borchardt Family
Daniel Bochardt
4H Syndrome
Rialto, California
Born: 07-16-22