Phelps/Benton Family

Jaxon Benton

Metachromatic Leukodystrophy
(MLD)

O’fallon, MO

Born: 4/6/2023

Roach Family

Owen Roach

Globoid Cell Leukodystrophy
(Krabbe Disease)

Gretna, VA

Born: 12/4/24

Trinidad Family

Wade Trinidad

4h Syndrome

Wittington Family

Peroxisomal Biogenesis Disorder – Zellweger

Garcia Family

Khloe Skye Garcia

Metachromatic Leukodystrophy MLD

Shephard Family

Hudson Shephard

Pelizaeus Merzbacher disease (PMD)

Kuna, Idaho

Born: 05-12-20

Borchardt Family

Daniel Bochardt

4H Syndrome

Rialto, California

Born: 07-16-22

Prescot Family

Ronan Prescot

Krabbe

Columbia, Missouri

Born: 03-03-24

Adkins Family

Hotlyn Adkins

Other Leukodystrophy (TBCD)

Fortgay, West Virginia

Born: 10-25-21

Tauscher Family

Norah Tauscher

Other Leukodystrophy

Pittsburgh, Ohio

Born: 5-26-18