Wall of Fame
Phinney Family
Kelsey Phinney
Adult Onset Unspecified Leukodystrophy
Friendswood, Texas
Born: 03/19/1989
Colter Family
Ariana Colter
EIF2B Vanishing White Matter CACH
Indianapolis, Indiana
Born: 3/16/2021
Hubbard Family
Skylar Hubbard
Beta-mannosidosis Leukodystrophy
Chandler, Arizona
Born: 9/3/2020
Jarrin Family
Tessa Jarrin
TUBB4A – Leukodystrophy
Spring, Texas
Born: 10/14/2023
Samudrika Family
Rithidu Evmin
Vanishing White Matter Disease (VWMD)
Kurunegala, Sri Lanka
Born: 9/25/20
Lovell Family
Louis Lovell
Globoid Cell Leukodystrophy
(Krabbe Disease)
Wollongong, New South Wales, Australia
Born: 2/4/22
Went to Heaven: 7/8/24
Tuggle Family
Candace Tuggle
Globoid Cell Leukodystrophy
(Krabbe Disease)
Meridian, MS
Born: 1/18/04
Went to Heaven: 2/20/05
Fox Family
Ella Rose Fox
Globoid Cell Leukodystrophy
(Krabbe Disease)
Rochester, NY
Born: 4/1/24
McCoy Family
Mark McCoy, Jr.
Globoid Cell Leukodystrophy
(Krabbe Disease)
Cincinnati, Ohio
Born: 4/8/82
Went to Heaven: 8/22/83
Tater Family
Judah Tater
Adrenoleukodystrophy
(ALD)
Stone Mountain, GA
Born: 5/5/12
Went to Heaven: 4/22/24