Wall of Fame
Johnson Family
Alexzander “Zander” Johnson
Aicardi-Goutieres Syndrome
(AGS)
Olin, NC
Born: 5/6/13
Maurya Family
Ansh Maurya
Adrenoleukodystrophy
(ALD)
Uttar Pradesh, India
Born: 3/12/10
Went to Heaven: 7/30/2021
Purschke Family
Nicholas Purschke
Adrenoleukodystrophy
(ALD)
Chesterfield, MO
Born: 10/29/04
Beltran Family
Arturo Beltran
Canavan Disease
Dayton, OH
Born: 8/31/21
Conn Family
Jordyn Conn
Alexander Disease
Jackson, MO
Born: 12/17/13
Schroeder Family
Ronald “Ronnie” Schroeder
Unspecified Leukodystrophy
Springfield, MA
Born: 9/1/56
Went to Heaven: 6/12/64
Johnson Family
Lucy Johnson
Globoid Cell Leukodystrophy
(Krabbe Disease)
Beaverton, Oregon
Born: 8/30/20
Went to Heaven: 10/21/22
Fisher Family
Brie Fisher
Aicardi-Goutieres Syndrome
(AGS)
Pittsburgh, PA
Born: 3/10/20
Hoffman Family
Liam Hoffman
Hypomyelinating Leukodystrophy type 3
London, Ohio
Born: 12/22/22
Lalu Family
Jaydev Lalu
Globoid Cell Leukodystrophy
(Krabbe Disease)
Jetpur, India
Born: 11/29/22
Went to Heaven: 10/21/23